Epilepsy Foundation of America
@epilepsyfoundation.bsky.social
We’re an unwavering ally for 3.4 million people living with epilepsy in the U.S. 1 in 26 people will develop epilepsy at some point in their lifetime.
A7: The Epilepsy Foundation is advocating for a National Plan for Epilepsy to drive federal investment and improve care, resources, and outcomes for people living with epilepsy. Help us make it happen: www.epilepsy-national-plan.org
#NPHWChat
#NPHWChat
Home | EpilepsyNationalPlan
Join the campaign for a National Plan for Epilepsy to transform the lives and futures of the 1 in 26 people living with epilepsy everywhere.
www.epilepsy-national-plan.org
April 9, 2025 at 7:02 PM
A7: The Epilepsy Foundation is advocating for a National Plan for Epilepsy to drive federal investment and improve care, resources, and outcomes for people living with epilepsy. Help us make it happen: www.epilepsy-national-plan.org
#NPHWChat
#NPHWChat
A6: As part of reauthorization of the FAA, EF advocates for epilepsy rescue medications to be added to airplane med kits. EF supports Seizure Safe Schools and launched a nationwide initiative to pass Seizure Safe Schools legislation in all states. To date, 24 states have implemented this policy.
Advocacy: Seizure Safe Schools
The epilepsies affect many children in the U.S. making seizure safe schools critical. Find out how you can help make schools safe through advocacy efforts.
www.epilepsy.com
April 9, 2025 at 6:50 PM
A6: As part of reauthorization of the FAA, EF advocates for epilepsy rescue medications to be added to airplane med kits. EF supports Seizure Safe Schools and launched a nationwide initiative to pass Seizure Safe Schools legislation in all states. To date, 24 states have implemented this policy.
A5: The loss of the epilepsy health professionals at the CDC, NINDS & FDA is deeply concerning. In response, EFA is mobilizing our community and urging all our constituents to contact their elected officials to express opposition to these cuts. Take action TODAY through this link: bit.ly/pcdcep
Become an Epilepsy Advocate
Take action on Epilepsy Foundation advocacy priorities today.
bit.ly
April 9, 2025 at 6:39 PM
A5: The loss of the epilepsy health professionals at the CDC, NINDS & FDA is deeply concerning. In response, EFA is mobilizing our community and urging all our constituents to contact their elected officials to express opposition to these cuts. Take action TODAY through this link: bit.ly/pcdcep
A4: The Epilepsy Foundation's Wellness Institute, dedicated to promoting well-being for people living with epilepsy, offers resources, tools, and support to help individuals live full and productive lives, including information on fitness, exercise, and sleep. www.epilepsy.com/manage/manag...
Managing Epilepsy Well Network
The Managing Epilepsy Well Network (MEW) is a team of people who care about the health of people with epilepsy, their friends and family, and their caregivers. MEW Network Members come from U.S. unive...
www.epilepsy.com
April 9, 2025 at 6:30 PM
A4: The Epilepsy Foundation's Wellness Institute, dedicated to promoting well-being for people living with epilepsy, offers resources, tools, and support to help individuals live full and productive lives, including information on fitness, exercise, and sleep. www.epilepsy.com/manage/manag...
A3:People w/ epilepsy may need to utilize shelters during extreme weather situations. EFA created fact sheets for planning to evacuate with tips related to digitizing seizure action plans & stocking anti-seizure meds. EFA created a fact sheet for shelter staff to learn seizure first aid/recognition.
April 9, 2025 at 6:19 PM
A3:People w/ epilepsy may need to utilize shelters during extreme weather situations. EFA created fact sheets for planning to evacuate with tips related to digitizing seizure action plans & stocking anti-seizure meds. EFA created a fact sheet for shelter staff to learn seizure first aid/recognition.
A2: The Epilepsy Foundation partners with groups like APHA, the National Student Nursing Association, and the National Hispanic Medical Association to raise epilepsy awareness, train professionals in seizure first aid, and address the unmet social needs of those with epilepsy.
April 9, 2025 at 6:12 PM
A2: The Epilepsy Foundation partners with groups like APHA, the National Student Nursing Association, and the National Hispanic Medical Association to raise epilepsy awareness, train professionals in seizure first aid, and address the unmet social needs of those with epilepsy.
A1: There have been significant advancements in health equity, with recent milestones offering substantial benefits to the epilepsy community. Key achievements include the Affordable Care Act & Minnesota becoming the first state to pass legislation covering seizure devices in state healthcare plans.
April 9, 2025 at 6:10 PM
A1: There have been significant advancements in health equity, with recent milestones offering substantial benefits to the epilepsy community. Key achievements include the Affordable Care Act & Minnesota becoming the first state to pass legislation covering seizure devices in state healthcare plans.