Endopaedia - a study site
@endohealth.bsky.social
🌱 Green Tea Extract (EGCG) has potential to alleviate heightened pain sensitivity & modulating inflammatory pathways associated with #endo and #fibroids.
However, since it can reduce iron absorption and may contribute to iron deficiency anemia, it may not be suitable for all patients.
However, since it can reduce iron absorption and may contribute to iron deficiency anemia, it may not be suitable for all patients.
February 2, 2026 at 4:04 PM
📣 Ready for a #Relaunch? ENDOPAEDIA is all new, with lots of #science, #studies, and insights. endopaedia.com/what-is-endo - A comprehensive website for those affected, for researchers and for anyone wanting to #understand #endometriosis.
What is Endometriosis? | Understanding the Condition | Endopaedia
Complete guide to endometriosis: symptoms, 3 subtypes, disease mechanisms, origin theories and impact. Learn how this chronic condition affects 1 in 10 women worldwide.
endopaedia.com
January 21, 2026 at 5:36 PM
📣 Ready for a #Relaunch? ENDOPAEDIA is all new, with lots of #science, #studies, and insights. endopaedia.com/what-is-endo - A comprehensive website for those affected, for researchers and for anyone wanting to #understand #endometriosis.
👀 Looking back at the scientific progress in endometriosis diagnosis and treatment in 2025 📣https://www.linkedin.com/pulse/looking-back-2025-long-awaited-meaningful-progress-endometriosis-ignhc/?trackingId=%2BSgJFT5CKbfJhnTYtUPiRQ%3D%3D
Looking back at 2025: Long-Awaited, Meaningful Progress in Endometriosis Innovation
2025 nears a close, and whilst we all struggle to carve out quiet moments in the all-too-hectic holiday times, I increasingly find myself encouraged by where endometriosis research stands today—and wh...
www.linkedin.com
January 7, 2026 at 6:28 PM
👀 Looking back at the scientific progress in endometriosis diagnosis and treatment in 2025 📣https://www.linkedin.com/pulse/looking-back-2025-long-awaited-meaningful-progress-endometriosis-ignhc/?trackingId=%2BSgJFT5CKbfJhnTYtUPiRQ%3D%3D
🔆 Vitamin D might play a crucial role in pain control for #endometriosis.
🔅 Low levels of circulating vitamin D have been associated with more severe stages of disease, and some studies show that boosting #vitaminD can significantly reduce pelvic pain and #dysmenorrhea.
🔅 Low levels of circulating vitamin D have been associated with more severe stages of disease, and some studies show that boosting #vitaminD can significantly reduce pelvic pain and #dysmenorrhea.
October 5, 2025 at 2:40 PM
🔆 Vitamin D might play a crucial role in pain control for #endometriosis.
🔅 Low levels of circulating vitamin D have been associated with more severe stages of disease, and some studies show that boosting #vitaminD can significantly reduce pelvic pain and #dysmenorrhea.
🔅 Low levels of circulating vitamin D have been associated with more severe stages of disease, and some studies show that boosting #vitaminD can significantly reduce pelvic pain and #dysmenorrhea.
🪙 The hardest part isn’t always the pain. It’s the constant re-introduction to yourself. The reminder to stay in the present. -- Another line of thought for my tiny manual’s margins.
📖 If you are interested to follow the journey of my book, sign up for news here: tinymanual.space
📖 If you are interested to follow the journey of my book, sign up for news here: tinymanual.space
September 12, 2025 at 2:07 PM
🪙 The hardest part isn’t always the pain. It’s the constant re-introduction to yourself. The reminder to stay in the present. -- Another line of thought for my tiny manual’s margins.
📖 If you are interested to follow the journey of my book, sign up for news here: tinymanual.space
📖 If you are interested to follow the journey of my book, sign up for news here: tinymanual.space
Explore #research groups driving #scientific discovery, and companies developing tools and novel #therapies in #endometriosis!
directory.endopaedia.com
📣 The first directory of its kind - uniting global players in therapy & research, all in one place.
directory.endopaedia.com
📣 The first directory of its kind - uniting global players in therapy & research, all in one place.
September 8, 2025 at 7:41 PM
Explore #research groups driving #scientific discovery, and companies developing tools and novel #therapies in #endometriosis!
directory.endopaedia.com
📣 The first directory of its kind - uniting global players in therapy & research, all in one place.
directory.endopaedia.com
📣 The first directory of its kind - uniting global players in therapy & research, all in one place.
Words matter. Sometimes they’re all we have to pin down the shifting.
I’ve been writing a small lexicon for my tiny endo manual. But a proper endo book isn’t just about facts — it’s also about reframing language and perspective.
#endobook #languagematters #shapingreality #lexicon #endofight
I’ve been writing a small lexicon for my tiny endo manual. But a proper endo book isn’t just about facts — it’s also about reframing language and perspective.
#endobook #languagematters #shapingreality #lexicon #endofight
September 6, 2025 at 4:30 PM
Words matter. Sometimes they’re all we have to pin down the shifting.
I’ve been writing a small lexicon for my tiny endo manual. But a proper endo book isn’t just about facts — it’s also about reframing language and perspective.
#endobook #languagematters #shapingreality #lexicon #endofight
I’ve been writing a small lexicon for my tiny endo manual. But a proper endo book isn’t just about facts — it’s also about reframing language and perspective.
#endobook #languagematters #shapingreality #lexicon #endofight
Every wondered who is working in #endometriosis #care, #detection, #diagnostics, #apps, or #research? I have created the Endometriosis Directory (codename EndoEther) to unite all the companies, institutions and groups who work on and fight for a better future in endo care! directory.endopaedia.com
September 4, 2025 at 7:25 PM
Every wondered who is working in #endometriosis #care, #detection, #diagnostics, #apps, or #research? I have created the Endometriosis Directory (codename EndoEther) to unite all the companies, institutions and groups who work on and fight for a better future in endo care! directory.endopaedia.com
August 31, 2025 at 2:07 PM
"Yesterday’s pain didn’t look like today’s. Our body edits its own script."
Working tirelessly on another page in the manual-to-be. 🎯 The goal is to capture all the things I consider essential in dealing with endo, but with a grin through the pain.
#endomanual #bodyscript #pain #writing #medical
Working tirelessly on another page in the manual-to-be. 🎯 The goal is to capture all the things I consider essential in dealing with endo, but with a grin through the pain.
#endomanual #bodyscript #pain #writing #medical
August 27, 2025 at 8:27 AM
"Yesterday’s pain didn’t look like today’s. Our body edits its own script."
Working tirelessly on another page in the manual-to-be. 🎯 The goal is to capture all the things I consider essential in dealing with endo, but with a grin through the pain.
#endomanual #bodyscript #pain #writing #medical
Working tirelessly on another page in the manual-to-be. 🎯 The goal is to capture all the things I consider essential in dealing with endo, but with a grin through the pain.
#endomanual #bodyscript #pain #writing #medical
New evidence: For patients with a single rectal endo site, non-invasive HIFU offers similar symptom & quality of life outcomes to surgery, with far fewer complications.
tinyurl.com/HIFU825
(DOI: 10.1002/ijgo.70478) 🌸
#Endometriosis #HIFU #WomensHealth #rectalendometriosis
tinyurl.com/HIFU825
(DOI: 10.1002/ijgo.70478) 🌸
#Endometriosis #HIFU #WomensHealth #rectalendometriosis
August 24, 2025 at 7:06 AM
New evidence: For patients with a single rectal endo site, non-invasive HIFU offers similar symptom & quality of life outcomes to surgery, with far fewer complications.
tinyurl.com/HIFU825
(DOI: 10.1002/ijgo.70478) 🌸
#Endometriosis #HIFU #WomensHealth #rectalendometriosis
tinyurl.com/HIFU825
(DOI: 10.1002/ijgo.70478) 🌸
#Endometriosis #HIFU #WomensHealth #rectalendometriosis
#Endometriosis patients need allies in healthcare, not gatekeepers.
A recent study is looking into "What People Living with Endometriosis Want You to Truly Understand" and highlights the need of patients to be heard and seen.
🔗 Link: buff.ly/T0F77B7
Sign up for more here: buff.ly/aXHAEVQ
A recent study is looking into "What People Living with Endometriosis Want You to Truly Understand" and highlights the need of patients to be heard and seen.
🔗 Link: buff.ly/T0F77B7
Sign up for more here: buff.ly/aXHAEVQ
August 19, 2025 at 2:34 PM
#Endometriosis patients need allies in healthcare, not gatekeepers.
A recent study is looking into "What People Living with Endometriosis Want You to Truly Understand" and highlights the need of patients to be heard and seen.
🔗 Link: buff.ly/T0F77B7
Sign up for more here: buff.ly/aXHAEVQ
A recent study is looking into "What People Living with Endometriosis Want You to Truly Understand" and highlights the need of patients to be heard and seen.
🔗 Link: buff.ly/T0F77B7
Sign up for more here: buff.ly/aXHAEVQ
This is the first of many fragments from my desk as I work on a tiny survival manual for living with endo. You’re welcome to follow along as it takes shape.
#endodiagnosis #survivalguide #tinymanual #endopaedia #endometriosisawareness #endo
#endodiagnosis #survivalguide #tinymanual #endopaedia #endometriosisawareness #endo
August 13, 2025 at 1:42 PM
This is the first of many fragments from my desk as I work on a tiny survival manual for living with endo. You’re welcome to follow along as it takes shape.
#endodiagnosis #survivalguide #tinymanual #endopaedia #endometriosisawareness #endo
#endodiagnosis #survivalguide #tinymanual #endopaedia #endometriosisawareness #endo
#Endometriosis diagnosis often takes years. My flowchart shows how expert insight + AI-driven biomarkers & imaging (see #Diamens and #ScanvioMedical) can speed this up. How can tech & clinical skills unite to cut delays? Let’s connect!
🔗 endopaedia.com/diagnose.html - English page underway.
🔗 endopaedia.com/diagnose.html - English page underway.
July 16, 2025 at 6:01 PM
#Endometriosis diagnosis often takes years. My flowchart shows how expert insight + AI-driven biomarkers & imaging (see #Diamens and #ScanvioMedical) can speed this up. How can tech & clinical skills unite to cut delays? Let’s connect!
🔗 endopaedia.com/diagnose.html - English page underway.
🔗 endopaedia.com/diagnose.html - English page underway.
you cannot win when it comes to #endo.
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📣 we #endowarriors demand new non-hormonal solutions to stop the growth of lesions everywhere in the body and to tackle the pain. 🤝
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#endopaedia
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📣 we #endowarriors demand new non-hormonal solutions to stop the growth of lesions everywhere in the body and to tackle the pain. 🤝
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#endopaedia
March 17, 2025 at 3:16 PM
you cannot win when it comes to #endo.
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📣 we #endowarriors demand new non-hormonal solutions to stop the growth of lesions everywhere in the body and to tackle the pain. 🤝
.
.
#endopaedia
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📣 we #endowarriors demand new non-hormonal solutions to stop the growth of lesions everywhere in the body and to tackle the pain. 🤝
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#endopaedia
no #pain no gain.
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fighting for new #treatments in #endometriosis. go to www.endopaedia.com for updates.
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fighting for new #treatments in #endometriosis. go to www.endopaedia.com for updates.
March 14, 2025 at 3:58 PM
no #pain no gain.
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fighting for new #treatments in #endometriosis. go to www.endopaedia.com for updates.
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fighting for new #treatments in #endometriosis. go to www.endopaedia.com for updates.
We are nearing mid March, the #endo awareness month. Sometimes there is only 1 thing to do - survive.
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#femalehealth #healthadvocacy #endowarrior #survive
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#femalehealth #healthadvocacy #endowarrior #survive
March 12, 2025 at 5:31 PM
We are nearing mid March, the #endo awareness month. Sometimes there is only 1 thing to do - survive.
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#femalehealth #healthadvocacy #endowarrior #survive
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#femalehealth #healthadvocacy #endowarrior #survive
#Pain can ruin your day. In the case of endo even the majority of your life. With current fast developments in biotech and AI, there is hope on the horizon that the complex mechanisms of #neuro-immunological diseases like #endometriosis, #ME/CFS etc. will be decoded and relief brought to us 🤝
March 5, 2025 at 3:57 PM
#Pain can ruin your day. In the case of endo even the majority of your life. With current fast developments in biotech and AI, there is hope on the horizon that the complex mechanisms of #neuro-immunological diseases like #endometriosis, #ME/CFS etc. will be decoded and relief brought to us 🤝
March 2, 2025 at 7:12 PM
March is #Endo Awareness Month! Although the constant #symptoms are a regular reminder for sufferers of this devious illness. Running through dozens of "experts" who barely have answers or resolutions can be disheartening and tiring. A big hug to all of you endo- #warriors out there!
#findacure
#findacure
March 1, 2025 at 5:51 PM
March is #Endo Awareness Month! Although the constant #symptoms are a regular reminder for sufferers of this devious illness. Running through dozens of "experts" who barely have answers or resolutions can be disheartening and tiring. A big hug to all of you endo- #warriors out there!
#findacure
#findacure
Sometimes #sarcasm is all there is. We need a #cure for #endo. Sooner than later. #Surgeries and #hormones cannot be the eternal answer. 🫥
February 25, 2025 at 4:27 PM
Sometimes #sarcasm is all there is. We need a #cure for #endo. Sooner than later. #Surgeries and #hormones cannot be the eternal answer. 🫥
February 19, 2025 at 6:56 PM
#Endo patients are often overwhelmed with daily tasks whilst managing their own health #advocacy. 🤯 Especially when it comes to finding the right medical path to get better, solutions often seem far and few. Hang in there, #endowarriors! 🙋♀️
February 13, 2025 at 4:49 PM
#Endo patients are often overwhelmed with daily tasks whilst managing their own health #advocacy. 🤯 Especially when it comes to finding the right medical path to get better, solutions often seem far and few. Hang in there, #endowarriors! 🙋♀️
No, pregnancy is not a #cure for #endometriosis. Some obgyns still seem to think or at least communicate that. @thingsdoctorssay.bsky.social
February 9, 2025 at 12:30 PM
No, pregnancy is not a #cure for #endometriosis. Some obgyns still seem to think or at least communicate that. @thingsdoctorssay.bsky.social
Medical gaslighting: "it's just your #period cramps", "you have #IBS", these and a lot more are suggested when an #endo patient first seeks help. When women perceive #pain it is still not taken seriously enough. With time things slowly get better, but the whole iceberg is not quite visible yet.
February 8, 2025 at 9:24 AM