Help bring attention to this injustice for her and the other Sod1 patients in Norway by sharing her story and emailing their minister for health Jan Christian Vestre at postmottak@hod.dep.no asking for their help in ensuring her neurons can be saved before it is too late.

We appreciate this note of common, intuitive, and proven sense shared by Dr Miller that debuted in the review article titled "Clinical trials of riluzole in patients with ALS" published in the Journal Neurology in 1995. See our movement continue at https://www.endthelegacy.org/2025appeal

The Neurology Live podcast interviewed NEALS co-chairs Drs Jinsy Andrews and James Berry the full episode can be heard here neurologylive.com/view/episode-154-neals-2025-takeaways-that-matter-for-als-care , Dr Andrews championed prevention and Dr Berry shared kind words about End the Legacy.

The holiday season can remind us all of those we have lost, and when the same terrible disease has taken many it's presence in their absence is palpable. Our monthly peer support hour is this Wednesday and our community team meets twice a month. #endthelegacy #atrisk #als #ftd

For people faced with the risk of inherited terminal conditions it's compelling to think of the promise of gene therapies. Sadly we cannot promise they are coming until they are here. To live with risk and in our current reality visit endthelegacy.org/care

We so appreciate Drs Amador, Gao and Thompson for giving their time for these talks and all their work to better understand the diseases that haunt out community. See them at https://www.endthelegacy.org/webinars