It’s a bit of a fire hose initially. But, already gaining some insights. You can see how dramatically my flow plummets moving from lying down to sitting up.

One man eliminated another man who was also a cold blooded murderer, but a mass murderer.
Those who die by decisions made at a desk are still dead due to another’s actions. There’s nothing to cheer here.

For sure. Looking forward to receiving my Lumia shortly and combining the two biometric data sets for additional nerdiness.

Great lists, thanks!

I’ve been using Visible since it first came out. I now use the paid version. It has fundamentally changed my life. Prior, I thought I was pacing properly, but continued to decline. With Visible, I learned quickly how poorly I was actually pacing.

A case study for diagnosing long Covid based on diagnostic criteria and markers of myalgic encephalomyelitis.

encephalogirl.substack.com/p/demystifyi...

A) rest, hydrate with electrolytes, dextromethorphine 3x day, sensory diet, reduce Visible pace points
B) depends on state of baseline; if already unstable then buckle down with measures more or for longer
C) honestly not sure
#PEM
#pwME

Hanson’s lab has an incredibly impressive track record in ME research. This isn’t “new” but they always do a beautiful job running things to ground. The science on ME is robust, those listening and the medical education is not. Thank you for posting this!

I’ve been using Visible since it first came out and I now use the paid version. I have found it to be a game changer for pacing. It doesn’t cover everything but once you figure out what it can do and tell you, it’s pretty great.

Does the majority of the patient community want to see myalgic encephalomyelitis as the recognized name?
ME is what I use. I often will not include “CFS” unless there’s reason or context to do so.

Amazing 🤣

Hey there! Moderate, housebound and sometimes bedbound ME here. Wouldn’t mind being added, as I’m new here and trying to re-create my previous account. For anyone interested, I have a blog I hope helps others with ME. Thanks!

encephalogirl.substack.com