Emily Johnson
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emilyrj.bsky.social
Emily Johnson
@emilyrj.bsky.social
5K followers 2.2K following 1.4K posts
Design, news/book edits, social media, PR, linguistics. Medical/academic research & data. Disability/accessibility in media. Patient advocate. #FBLC #EDS #pwME Same pic, slightly different handles on X, Substack, Mastadon. #Iowa ♿️🏳️‍🌈📚
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emilyrj.bsky.social
I’m so sorry, MCAS did this to me and nearly killed me before I finally was prescribed multiple mast cell stabilizers (I had it before long Covid, but it has worsened following every infection and many other immune events)
November 12, 2025 at 3:34 AM
Reposted by Emily Johnson
broadwaybabyto.bsky.social
The family has a go fund me if anyone wants to help with medical expenses:

www.gofundme.com/f/help-adria...
Donate to Help Adriana's Family During This Heartbreaking Journey, organized by April Newkirk
This journey has been deeply saddening and heartbreaking since F… April Newkirk needs your support for Help Adriana's Family During This Heartbreaking Journey
www.gofundme.com
November 9, 2025 at 4:18 AM
Reposted by Emily Johnson
brianvastag.mas.to.ap.brid.gy
Lots more details on Kaufman's use of GLP-1 drugs in his practice in this video/podcast: https://www.youtube.com/watch?v=e_i3d6_I8Y8
October 17, 2025 at 7:07 PM
Reposted by Emily Johnson
brianvastag.mas.to.ap.brid.gy
Dempsey's case series on 47 patients with mast cell activation syndrome: https://pubmed.ncbi.nlm.nih.gov/40675372/
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
October 17, 2025 at 6:52 PM