Eliza James
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elizajames.bsky.social
Eliza James
@elizajames.bsky.social
n95’s + HEPA’s | Long COVID | MECFS

Our leadership & medical providers have failed us on c19

ANTI-profit-over-people
November 25, 2025 at 8:28 PM
As a regular connoisseur and recipient of lovingly made mix tapes decades ago, this fills my heart with delight.

It also reminded me of this…which made my husband & I laugh heartily:
November 25, 2025 at 8:28 PM
I agree. The creativity and art here bring such a bright light to my day. I appreciate it a lot too.
November 24, 2025 at 11:37 PM
To be clear, I’m not seeking a US based company. Rather, I‘m US based and not sure what might be available here.
November 24, 2025 at 11:30 PM
it feels overwhelming to consider a change FROM Google & Microsoft in two businesses, but I’m seeking higher ethical standards & company values that may align better with my own.

If nothing else, privacy & no support of AI.
November 24, 2025 at 11:28 PM
This is very helpful for planning, Bibi. Thank you. And, I’m sorry it didn’t help you. The data looks promising but the only two people I’ve found who have done it report no benefit. Not a large sample size, but…doesn’t leave me feeling confident. I’ll keep seeking stories.
November 24, 2025 at 10:52 PM
I feel this & deeply empathize with you in your current situation.💜
November 24, 2025 at 6:15 PM
There are multiple things that can be going on here, but…

if the “gate” in the nervous system is open wide, allowing more sensory info in than is typical, this can not only lead to feeling a sense of overwhelm from what we experience as overstimulating, but also open us up to more depth of beauty.
November 24, 2025 at 6:12 PM
Wow. What a photo.
November 24, 2025 at 12:58 AM
I appreciate you taking the time to respond. I’m never not in PEM & a little nervous this could make me even worse. That seems to happen so often that things that help others, so many oral treatments for MECFS or MCAS, I tend to have a negative response to. The SGB is next on our list to consider.
November 24, 2025 at 12:41 AM
Did you ultimately find this helpful after the side effects wore off? I'm looking into it now. And would be going in w MECFS, LC, MCAS so appreciate your informational post. TY for sharing.
November 23, 2025 at 8:39 PM
Do you mean the SGB caused you to crash more? or caused harm in some way? (I'm researching these now myself and came across your old post.)
November 23, 2025 at 8:31 PM