Eleanor Frisch
@eleanorfrisch.bsky.social
Lawyer, writer, parent, disability advocate (MCAS and likely relapsing polychondritis)
They don't have groups. They have something called "starter packs" that I haven't figured out how to use yet. We could also start using a #relapsingpolychondritis hashtag!
February 26, 2025 at 9:59 PM
They don't have groups. They have something called "starter packs" that I haven't figured out how to use yet. We could also start using a #relapsingpolychondritis hashtag!
Hello Karyn! So glad to start finding an RP network here.
February 26, 2025 at 3:04 PM
Hello Karyn! So glad to start finding an RP network here.
I'm in Minnesota.
February 22, 2025 at 2:03 PM
I'm in Minnesota.
I heard she moved to University of MD. Hope you still have access to an amazing doc!
February 22, 2025 at 2:02 PM
I heard she moved to University of MD. Hope you still have access to an amazing doc!
Yes I am sure we are in the same Facebook groups! I'm glad there are at least some of us on Blue Sky.
February 22, 2025 at 1:45 PM
Yes I am sure we are in the same Facebook groups! I'm glad there are at least some of us on Blue Sky.
What could possibly go wrong?
February 15, 2025 at 2:51 PM
What could possibly go wrong?
In your view, is this something journalists have always been doing, or is there an increasing trend of sensationalizing headlines in this misleading manner?
January 8, 2025 at 3:05 PM
In your view, is this something journalists have always been doing, or is there an increasing trend of sensationalizing headlines in this misleading manner?