A great day yesterday here in Brussels where EFNA's members came from across Europe to join our 2025 General Assembly. We took a look back at our 2024 activities and took some time to develop exciting plans for the years to come.
#StrongerConnected #neurology #healthliteracy #BrainHealth

EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.

35% of people with neurological conditions are made to feel that having that condition is their own fault. This shows a very poor level of understanding among the public which must be addressed through awareness campaigns and improved education.
www.efna.net/invisible-is...
#BrainAwarenessWeek

The top 3 areas where people affected by neurological conditions experience #stigma are:
1️⃣ interaction with medical professionals (46%) 👩‍⚕️
2️⃣ in employment (19%) 🏢
3️⃣ interaction with the public (11%) 🧑‍🤝‍🧑
Read the results of our survey at www.efna.net/invisible-is...
#BrainAwarenessWeek

According to our recent survey of people with neurological conditions, 84% of people indicate they experience #stigma as a direct result of their condition.
Read the complete survey results now at www.efna.net/invisible-is...
#BrainAwarenessWeek #BAW2025 #invisibleillness #neurology

Yesterday's edition of The Guardian featured an article on #HealthLiteracy by EFNA's Executive Director, Orla Galvin which explains how good health literacy empowers patients and clinicians.
Read it now at: www.healthawareness.co.uk/neurology/he...

#NeurologicalConditions2025 #BrainAwarenessWeek

We conducted a comprehensive survey to uncover the invisible issues faced by the #neurology patient community- issues that remain largely unrecognised by the general public, policymakers, and health system leaders.
Read the results now: www.efna.net/invisible-is...

#RareDiseaseDay

Tomorrow is #RareDiseaseDay & we'll be marking the day by sharing some facts about the impact of rare neurological conditions. You can get involved by sharing your story with the #rarediseaseday and #rareneurology hashtags. You'll find lots of resources at www.rarediseaseday.org/downloads/

Join us on 19 February for a meeting of the MEP Interest Group on Brain Health & Neurological Conditions, 'Shaping the Future: Policy Responses to Rare Neurological Challenges' at the EU Parliament and online.
Register now: www.efna.net/mep-february...

#neurology #RareNeurology #RareDiseaseDay