Dystonia Medical Research Foundation
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Dystonia Medical Research Foundation
@dystoniafoundation.bsky.social
36 followers 15 following 67 posts
Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The Dystonia Medical Research Foundation (DMRF) is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.
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dystoniafoundation.bsky.social
Effective 12/24/25, USPS now considers the postmark date as the date that mail was processed at a USPS processing facility. Please consider an online donation or go to the counter of a USPS location to ensure your mail is postmarked for 2025. dystonia-foundation.org/donate-other... #dmrf #dystonia
December 26, 2025 at 9:03 PM
dystoniafoundation.bsky.social
If you’re age 70½ or older, you can give directly from your IRA to the DMRF. It's a simple, tax-smart way to help the DMRF and meet your required minimum distribution. Check with a financial advisor to make your impact count this year.

https://bit.ly/49IZwc4
#dystonia #dmrf #dystoniafoundation
December 26, 2025 at 4:28 PM
dystoniafoundation.bsky.social
We wish everyone in the dystonia community a peaceful and joyful holiday season. Next year the DMRF will recognize 50 years of making a difference in the lives of people impacted by dystonia.
https://dystonia-foundation.org/
#dystonia #dmrf #dystoniafoundation
December 25, 2025 at 3:03 PM
dystoniafoundation.bsky.social
It’s not too late to send a holiday e-card to friends and family showing your commitment to dystonia research. Simply pick a card and select “Dedicate this Donation”. Include the recipient's email and they'll be notified of your gift.

https://bit.ly/3ZRySIS
#dystonia #dmrf #dystoniafoundation
December 24, 2025 at 10:14 PM
dystoniafoundation.bsky.social
What branded DMRF merchandise would you like to see on online store? Your choices and ideas will help us promote dystonia awareness. Fill out this 2-question survey so we can offer products that will spark conversations about dystonia.

https://bit.ly/4pD1GP1
#dystonia #dmrf #dystoniafoundation
December 23, 2025 at 8:04 PM
dystoniafoundation.bsky.social
Be self-care aware: Having a condition like dystonia adds extra complexity to an already hectic time of year. The DMRF has mental health resources you can access that are specific to the holiday season:
https://bit.ly/3P1rxQF
#dystonia #dmrf #dystoniafoundation
December 23, 2025 at 8:02 PM
dystoniafoundation.bsky.social
In the mood to stay indoors and binge watch? The DMRF has several webinars available on its YouTube channel, with topics covering various aspects of patient education, mental health/self-care, dystonia treatment and research.

https://bit.ly/48xJjEy
#dystonia #dmrf #dystoniafoundation
December 22, 2025 at 2:26 PM
dystoniafoundation.bsky.social
People impacted by dystonia can become an ambassador for the greater community —and the DMRF is here to help! Fill out this 2-question survey and let us know what types of branded merchandise you would like to see on our online store.
https://bit.ly/4pD1GP1

#dystonia #dmrf #dystoniafoundation
December 17, 2025 at 10:40 PM
dystoniafoundation.bsky.social
On behalf of the leadership and staff of the Dystonia Medical Research Foundation, DMRF President Mark Rudolph and Executive Director Janet Hieshetter wish all of you a peaceful holiday season and best wishes for the coming year.
https://youtu.be/D2Ul2Td3LAY
#dystonia #dmrf #dystoniafoundation
Dystonia Medical Research Foundation (DMRF) 2025 Holiday Greeting
YouTube video by Dystonia Medical Research Foundation
youtu.be
December 17, 2025 at 7:16 PM
dystoniafoundation.bsky.social
Send a holiday greeting while supporting the DMRF. Click on the card of your choice and select “Dedicate this Donation” and include the email address of your recipient. They’ll receive the card and notification that a gift was made in their honor.
https://bit.ly/3ZRySIS
#dystonia #dmrf
December 16, 2025 at 7:57 PM
dystoniafoundation.bsky.social
Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter.

The December e-news is now available:
https://conta.cc/3XgtD39
#dystonia #dmrf #dystoniafoundation
December 11, 2025 at 5:57 PM
dystoniafoundation.bsky.social
Just chill with one of these cozy beanie hats, available now at the DMRF Store for just $25. Support the dystonia community with outerwear to show you care. Available with and without pom-pom.
http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 11, 2025 at 3:07 PM
dystoniafoundation.bsky.social
DMRF-branded merchandise promotes dystonia awareness. Help us identify the merch you want to use for your awareness efforts. answer a 2-question survey to help us know what types of merchandise you would like to see in our online store.

https://bit.ly/4pD1GP1

#dystonia #dmrf #dystoniafoundation
December 10, 2025 at 6:54 PM
dystoniafoundation.bsky.social
These DMRF Sunglasses are the perfect eyewear to show you care! Shop at the DMRF Store this holiday season to demonstrate your support for the dystonia community.

SHOP NOW: http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 8, 2025 at 2:15 PM
dystoniafoundation.bsky.social
THANK YOU to everyone who contributed to the Giving Tuesday $5 for a Cure fundraiser this year. This year you helped us raise nearly $2000 towards a dystonia cure. Because when thousands of us give a little, we create something BIG. https://bit.ly/3Ra8YeZ
#dystonia #dmrf #dystoniafoundation
December 5, 2025 at 4:43 PM
dystoniafoundation.bsky.social
Words of wisdom that everyone can use: Take the time to do the little things that bring you joy.
#dystonia #dmrf #dystoniafoundation
December 4, 2025 at 9:34 PM
dystoniafoundation.bsky.social
DMRF-branded merchandise promotes dystonia awareness. Help us identify the merch you want to use for your awareness efforts. answer a 2-question survey to help us know what types of merchandise you would like to see in our online store.

https://bit.ly/4pD1GP1

#dystonia #dmrf #dystoniafoundation
December 2, 2025 at 7:58 PM
dystoniafoundation.bsky.social
#GivingTuesday is today. Join our $5 for a Cure movement: When thousands give a little, we create something BIG.

🔬 Fund critical research
🤝 Support families
📣 Raise awareness in communities

Give $5 now: https://bit.ly/3Ra8YeZ
Then tag 5 friends to keep it going!
#dystonia #dmrf
December 2, 2025 at 5:08 PM
dystoniafoundation.bsky.social
The holidays are here! This comfy DMRF Neck Pillow is the perfect gift for people with cervical dystonia. Order during Cyber Monday to receive it in time for holiday gifting. On sale now for $15.

SHOP NOW: http://bit.ly/4fAdf59
#dystonia #dmrf #dystoniafoundation
December 1, 2025 at 2:14 PM
dystoniafoundation.bsky.social
Today, Saturday, November 29, is Movement Disorder Day. It's important to remember that there are myriad disorders and treatment can be complicated. More importantly, the prevalence of movement disorders is outpacing growth projections.

#dystonia #dmrf #dystoniafoundation
November 29, 2025 at 11:38 AM
dystoniafoundation.bsky.social
The DMRF wishes everyone a safe and Happy Thanksgiving. During this season of gratitude, we are grateful for the support of the dystonia community: DMRF donors, support leaders, volunteers, advocates, and organizational leaders throughout the year.
#dystonia #dmrf #dystoniafoundation
November 27, 2025 at 9:20 PM
dystoniafoundation.bsky.social
During this season of thanksgiving, Utah Dystonia Support Group Leader Haley Brock shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 25, 2025 at 5:11 PM
dystoniafoundation.bsky.social
This Thanksgiving, we're grateful for YOU. Your compassion, advocacy and support matter. There are many ways to offer hope to the dystonia community: matching gifts, tax-free IRA gifts or planned giving through the DMRF Legacy Society.
https://bit.ly/49IZwc4
#dystonia #dmrf #dystoniafoundation
November 24, 2025 at 5:11 PM
dystoniafoundation.bsky.social
Online in the Winter 2025 Dystonia Dialogue: See photos from the 2025 Dystonia Zoo Days and other community events held around the country to raise dystonia awareness.
https://bit.ly/4oBZZl2
#dystonia #dmrf #dystoniafoundation
November 22, 2025 at 7:46 PM
dystoniafoundation.bsky.social
During this season of thanksgiving and reflection, Atlanta Dystonia Support Group Leader Kathy Ray shares what she is thankful for.
#dystonia #dmrf #dystoniafoundation
November 21, 2025 at 8:06 PM