Duncan Noble-Nesbitt
@duncann-n.bsky.social
Specialist Nurse, tenor, travel loving, new experience, answer seeking type of guy. Lifelong PKU experience and on treatment #PKU #RareDisease Own views shared
Reposted by Duncan Noble-Nesbitt
📣 Last year's 'The Life of adults with PKU' campaign highlighted adult PKU life. Now, adults, share your REALITIES! Describe diet struggles, healthcare issues, social limits & ACHIEVEMENTS! 🧐 Use #adultpkuawareness to demand equal care! Your stories matter! 💪
April 14, 2025 at 7:29 AM
📣 Last year's 'The Life of adults with PKU' campaign highlighted adult PKU life. Now, adults, share your REALITIES! Describe diet struggles, healthcare issues, social limits & ACHIEVEMENTS! 🧐 Use #adultpkuawareness to demand equal care! Your stories matter! 💪
Reposted by Duncan Noble-Nesbitt
Do you know someone making a real difference for PKU patients? 🤔 Nominate them for the Sheila Jones Award! 🏆
Patients, families, doctors, dietitians & industry – anyone can nominate! 🙌 Birmingham Children's Hospital decides the winner. Nominate: espku.org/sheila-jones-a
Patients, families, doctors, dietitians & industry – anyone can nominate! 🙌 Birmingham Children's Hospital decides the winner. Nominate: espku.org/sheila-jones-a
April 18, 2025 at 7:44 AM
Do you know someone making a real difference for PKU patients? 🤔 Nominate them for the Sheila Jones Award! 🏆
Patients, families, doctors, dietitians & industry – anyone can nominate! 🙌 Birmingham Children's Hospital decides the winner. Nominate: espku.org/sheila-jones-a
Patients, families, doctors, dietitians & industry – anyone can nominate! 🙌 Birmingham Children's Hospital decides the winner. Nominate: espku.org/sheila-jones-a
Reposted by Duncan Noble-Nesbitt
This is the official Bluesky account for the International PKU Day. Follow this account not to miss anything related to International PKU Day and raising awareness of Phenylketonuria.
This is the official BlueSky account for International PKU Day. Established to celebrate the legacy of Horst Bickel and Robert Guthrie as well as raise awareness of Phenylketonuria.
February 2, 2025 at 3:09 PM
This is the official Bluesky account for the International PKU Day. Follow this account not to miss anything related to International PKU Day and raising awareness of Phenylketonuria.
Reposted by Duncan Noble-Nesbitt
The Scientific Advisory Committee of the E.S.PKU invites submission of abstracts (from health professionals only) on research and developments in PKU for oral presentation at the E.S.PKU professional meeting on 26th Sept. 2025. Submit the abstract here:
www.pku.at/x7w9gs
www.pku.at/x7w9gs
February 9, 2025 at 11:56 AM
The Scientific Advisory Committee of the E.S.PKU invites submission of abstracts (from health professionals only) on research and developments in PKU for oral presentation at the E.S.PKU professional meeting on 26th Sept. 2025. Submit the abstract here:
www.pku.at/x7w9gs
www.pku.at/x7w9gs