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dropthedisorder.bsky.social
DROP THE DISORDER
@dropthedisorder.bsky.social
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Reposted by DROP THE DISORDER
mecfssd.bsky.social
To make it simpler GET = consistently increasing (even gently) activity regardless of how the patient feels and is not a ME/CFS treatment and can be harmful. Pacing = managing activity based on patient condition and is considered ME/CFS best practice. #mecfsSanDiego
A Venn diagram with two circles that don't overlap. The one on the left is labeled GET and has Non-responsive, Increasing, and Bad for ME/CFS in it. The one on the right is labeled Pacing and has Responsive, and Current Best Option for ME/CFS in it.
November 21, 2024 at 7:29 AM
Reposted by DROP THE DISORDER
ben-no.bsky.social
Mittwochs 21 Uhr #MEawarenessHour:

620.000 Menschen hatten 2023 in Deutschland offiziell die Diagnose ME/CFS und es gibt keine zwei Hände voll Ärzte und Anlaufstellen.
Prof. Gerner ist einer von Ihnen, der Chefarzt einer Kinderklinik behandelt betroffene Kinder in seiner Freizeit ehrenamtlich.
Todesanzeige für Leila vom Mai diesen Jahres, aufgegeben von Prof. Gerner, der verzweifelt die Politik im Hilfe bittet. Leila 6.Oktober 2002- 5.Mai 2024
November 20, 2024 at 8:50 PM
Reposted by DROP THE DISORDER
getsky.app
Sky․app 0.4.0: bug fixes!
• Add (⌘-,) to go to the Settings page
• Fix color scheme sync
• Notification badges now include unread chat messages
• Fix notification badges
• Fix keybindings and menu items github.com/jcsalterego/...
GitHub - jcsalterego/Sky.app: Sky.app is a great way to use Bluesky Social on MacOS, featuring keyboard shortcuts, Dark Mode Sync, and notification badges.
Sky.app is a great way to use Bluesky Social on MacOS, featuring keyboard shortcuts, Dark Mode Sync, and notification badges. - jcsalterego/Sky.app
github.com
September 14, 2024 at 1:59 PM