Denise
dquesnel.bsky.social
Denise
@dquesnel.bsky.social
Researching compassion science with digital therapeutics/health for youth well-being with chronic illness at #SFU | Patient Engagement Specialist, research navigator at BC SUPPORT Unit Fraser Centre #POR #PPIE | Advocate | Mom to 2 with rare disease.
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Hello 👋 I do collaborative research to amplify advocacy for health equity, especilaly children and young people. I am a #PatientEngagement Specialist at BC SUPPORT Unit Fraser Centre with #FraserHealth, & #SFU. Completing my PhD involving #POR & #DigitalHealth to support youth with chronic illness.
Reposted by Denise
🌟 blog and paper. I can relate to the issues as a public contributor and also occasional PPI lead. Involvement isn’t a method, it’s about relationships not toolkits and frameworks. PPIE leads and public contributors are powerless within existing research culture that doesn’t see the need for change
November 1, 2024 at 9:52 AM
Hello 👋 I do collaborative research to amplify advocacy for health equity, especilaly children and young people. I am a #PatientEngagement Specialist at BC SUPPORT Unit Fraser Centre with #FraserHealth, & #SFU. Completing my PhD involving #POR & #DigitalHealth to support youth with chronic illness.
November 18, 2024 at 10:30 PM