DecodeME
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decodemestudy.bsky.social
DecodeME
@decodemestudy.bsky.social
830 followers 6 following 37 posts
🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
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decodemestudy.bsky.social
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Screenshot of BBC Radio 5. Beneath this it says BBC Radio 5 Live, 7th August. Screenshot of The Guardian article by Ian Sample, 6th of August with headline 'Scientists find link between genes and ME/chronic fatigue syndrome'. Screenshot of The Times article by David Leask, 7th of August with the headline 'Lack of ME research because of 'medical misogyny', says top scientist', please note that this article is behind a paywall. Screenshot of Science article by Catherine Offord, 6th of August with headline 'Possible genetic clues to ME/ chronic fatigue syndrome identified in massive study'. Screenshot of New Scientist article by Michael Marshall 6th of August with headline 'Key genetic differences found in people with chronic fatigue syndrome'. Please note that this article is behind a paywall.
August 18, 2025 at 3:36 PM
decodemestudy.bsky.social
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Graphic 1 of 4. DecodeME: The Results graphic. The slide says: ‘The signals discovered are involved in the immune and nervous systems, indicating immunological and neurological causes to this poorly understood disease’. Graphic 2 of 4. DecodeME: The Results graphic. The slide says: ‘At least two of the signals relate to the body’s response to infection’. Beneath this is an image of green germs. Graphic 3 of 4. DecodeME: The Results graphic. The slide says: ‘Other signals point to the nervous system, one of which researchers previously found in people experiencing chronic pain, reinforcing neurological contributions to ME/CFS’. Beneath this is an image of a person curled up in bed feeling ill. Graphic 4 of 4. DecodeME: The Results graphic. The slide says ‘All of these signals align with how people with ME/CFS describe their illness’.
August 6, 2025 at 7:06 PM