Deb
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debwald.bsky.social
Deb
@debwald.bsky.social
Is there any info on oral ketotifen and paxlovid interactions please?
March 10, 2025 at 3:15 PM
Reposted by Deb
Alopecia areata, Behçet disease, Crohn disease, ulcerative colitis, rheumatoid arthritis , systemic lupus erythematosus, Sjögren syndrome, ankylosing spondylitis, and bullous pemphigoid were associated with higher risk in the COVID-19 group.
November 26, 2024 at 12:46 PM
Reposted by Deb
Any advice for managing slow digestion and constipation? I was lucky enough to be diagnosed seronegative and started salagen and plaquenil. I've been researching and it seems my diagnosis of fibromyalgia in 2013 was probably Sjögren's. Also have Hashimotos, migraines, fibroids, Interstial Cystitis.
November 21, 2024 at 9:21 PM
Reposted by Deb
15/ Find self-advocacy tools and learn more on my extensively researched and cited website:
www.sjogrensadvocate.com
November 21, 2024 at 5:33 PM
Reposted by Deb
14/ For more about what must be done to raise clinican awareness and improve Sjogren's care:
www.healio.com/news/rheumat...
‘My own diagnosis was delayed’: Sjögren’s myths overshadow multi-system manifestations
Despite being one of the most prevalent autoimmune diseases in the United States, Sjögren’s disease remains shrouded behind significant misconceptions and knowledge gaps that can delay diag...
www.healio.com
November 21, 2024 at 5:31 PM
Reposted by Deb
It is time to put the “nuisance sicca disease paradigm” to rest. The ACR can start by posting the Sjogren’s Foundation clinical practice guidelines. 13/
sjogrens.org/researchers-...
Clinical Practice Guidelines
In 2009, the Sjögren's Foundation launched an initiative to develop clinical practice guidelines for Sjögren's, which aim to: Improve the quality of care for Sjögren's patients by developing guideline...
sjogrens.org
November 21, 2024 at 5:29 PM
Reposted by Deb
Medical educators & the ACR must debunk long-held misconceptions.
Rheumatologists must unlearn traditional views and update their practice to provide comprehensive monitoring and management, because Sjogren’s is a serious systemic disease, never “just sicca”. 12/
November 21, 2024 at 5:27 PM
Reposted by Deb
It is unacceptable that a disease as prevalent as RA and with a QOL as low as SSc remains so misunderstood and neglected.

Sjogren’s is associated with early mortality from lung disease, lymphoma & comorbidities, esp. cardiovascular disease. 11/
November 21, 2024 at 5:26 PM
Reposted by Deb
SSA-neg patients are underdiagnosed and undertreated. We must educate clinicians that SSA-neg Sjogren’s IS a systemic disease, just as likely to get ILD and MORE likely to get joint, SFN, and dysautonomia including GI and bladder dysfunction. 10/
November 21, 2024 at 5:25 PM
Reposted by Deb
Every Sjogren's patient, regardless of symptoms or serostatus, should be monitored for a wide range of systemic manifestations and comorbidities.
Early detection improves outcomes. 9/
November 21, 2024 at 5:23 PM
Reposted by Deb
CME presenters and the ACR website perpetuate the sicca/glandular disease paradigm every time they state that Sjogren’s is often (or ever) a sicca-limited dz. This widespread mischaracterization of Sjogren’s -> inadequate care. 8/
November 21, 2024 at 5:22 PM
Reposted by Deb
The classification criteria overweight sicca features & do not reflect the spectrum of systemic disease. z

This obsession with sicca reinforces the “mild sicca disease” myth. The classification criteria must be updated to reflect systemic manifestations, especially neuro. 7/
November 21, 2024 at 5:20 PM
Reposted by Deb
sjogrens.org
November 21, 2024 at 5:18 PM
Reposted by Deb
Sjogren’s is underdiagnosed, especially in SSA-negative and non-sicca presentations. Classification criteria are often misused as diagnostic criteria.
SSA-neg Sjogren’s is also systemic & especially prone to SFN, dysautonomia, GI & joint involvement. 5/
November 21, 2024 at 5:17 PM