Deborah Robins
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debrobins.bsky.social
Deborah Robins
@debrobins.bsky.social
15 followers 16 following 18 posts
Advocate for Duchenne muscular dystrophy healthcare and research. I champion patient partnership and co-design, direct democracy and ukulele.
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debrobins.bsky.social
On World Duchenne Awareness Day 2025, I ask researchers to stop pasting DMD prognosis with colonised fatalistic & outdated statistical
lifespans in publications. Update to modern biology and thus unpredictable prognoses! #DMD #WDAD2025 #Duchenne
#WDAD 2025 7th Sept red balloon logo with interabled couple as family
September 6, 2025 at 9:00 AM
debrobins.bsky.social
The Australian Consumer Partnerships in Research Aug 12, 2025 finalists showcase-Register to tune in wherever you are in the medical world.
ccrew.accesscr.com.au/cpir-2025/li...

#CPIR2025Awards #patientengagement #patientpartners #consumerpartnership #clinicalresearch
August 7, 2025 at 12:55 PM