DCAction
@dcaction.bsky.social
UK Charity number 1167150 Supporting people living with Telomere Biology Disorders
The RareCare survey is also open to Healthcare Professionals working in Rare Diseases
October 30, 2025 at 3:49 PM
The RareCare survey is also open to Healthcare Professionals working in Rare Diseases
At the Manchester Rare Conditions Centre, in partnership with the NIHR Manchester Biomedical Research Centre, we believe that people with lived experience of rare conditions are essential partners in everything we do
August 21, 2025 at 2:34 PM
At the Manchester Rare Conditions Centre, in partnership with the NIHR Manchester Biomedical Research Centre, we believe that people with lived experience of rare conditions are essential partners in everything we do
She made it!!!
www.justgiving.com/page/jane-pa...
www.justgiving.com/page/jane-pa...
March 23, 2025 at 4:13 PM
She made it!!!
www.justgiving.com/page/jane-pa...
www.justgiving.com/page/jane-pa...
December 1, 2024 at 4:35 PM