Cure MFM13
@curemfm13.bsky.social
A patent-driven charitable project, united by a common cause: to address the challenges of MFM13
🚨 Big news: Cure HSPB8 has received new 2025 funding from @volofoundation.bsky.social!
This support helps us expand research, grow our patient registry, and drive awareness for #HSPB8Myopathy. Grateful for partners who believe in science & impact! 💙
#CureHSPB8 #RareDiseasen #PatientAdvocacy
This support helps us expand research, grow our patient registry, and drive awareness for #HSPB8Myopathy. Grateful for partners who believe in science & impact! 💙
#CureHSPB8 #RareDiseasen #PatientAdvocacy
April 26, 2025 at 1:02 AM
🚨 Big news: Cure HSPB8 has received new 2025 funding from @volofoundation.bsky.social!
This support helps us expand research, grow our patient registry, and drive awareness for #HSPB8Myopathy. Grateful for partners who believe in science & impact! 💙
#CureHSPB8 #RareDiseasen #PatientAdvocacy
This support helps us expand research, grow our patient registry, and drive awareness for #HSPB8Myopathy. Grateful for partners who believe in science & impact! 💙
#CureHSPB8 #RareDiseasen #PatientAdvocacy