CURE ID
cureid.bsky.social
CURE ID
@cureid.bsky.social
Friends of CURE ID - the drug repurposing treatment registry. Special focus on infectious diseases, infection/associated conditions, rare cancers, and rare genetic diseases. Https://cure.ncats.io. Not an official account, views our own.
Join the webinar and share your treatment experience on CURE ID today by going to: cure.ncats.io/pilot-overvi...

Cases that are submitted by Jan. 31st will be included in the first interim analysis!
January 22, 2025 at 2:26 AM
Did your existing health issues get worse after a COVID infection, or did you develop Long COVID? Tune in to our free webinar on January 23rd to learn how you can get involved in a study DI is working on with the FDA and other pt orgs to identify what treatments are helping or not helping people.
January 22, 2025 at 2:26 AM
Improvement is a continuous process and we know there is more work to be done. However, we hope we have been able to incorporate insights from a number of users to bring our visitors an improved experience and to have CURE ID bring value to the patient and medical community! /5
January 3, 2025 at 5:36 PM
Those interested in reporting their treatment experiences for #LongCovid, #Sarcoma, #RASopathies, and #InfectiousDiseases, or who wish to update their previously entered cases, are continued to be encouraged to do so. The more experiences shared, the more valuable the data. /4
January 3, 2025 at 5:36 PM
You can now share treatments with off-label drugs for any disease on CURE ID using the Other Diseases form or our new generic cancer & genetic disease forms. A generic form for Infection-Associated Conditions besides Long COVID is in development (e.g., ME, Dysautonomia, etc.) /3
January 3, 2025 at 5:36 PM
We have striven to make the site easier to navigate and to provide users more info about the value the data in CURE ID has to help find treatments. See why it is so important for patients, caregivers/partners, and healthcare providers to share their treatment experiences. /2
January 3, 2025 at 5:36 PM
Excited to share that a new version of the CURE ID platform (4.5.3) has been released on web and mobile! As we celebrate the start of 2025, come check out the new features and enhanced look and feel of the treatment registry. Go to cure.ncats.io or download “CURE ID” /1
January 3, 2025 at 5:36 PM