Choroideremia Research Foundation
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Choroideremia Research Foundation
@curechm.bsky.social
22 followers 22 following 88 posts
Funding research, raising awareness, and advocating for those affected by choroideremia—a rare inherited retinal disease that causes blindness.

www.curechm.org
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curechm.bsky.social
NEW! Parents Chat:
Our first session will be A Science and Research Update from Dr. Jess Thompson. He will share the latest updates in CHM research and answer your questions about what’s ahead for the community.
Monday, Nov 10th | 8PM EST - Register to join!
curechm.salsalabs.org/parentchat11...
Parents Chat: Join other parents in the CHM community for discussions about life, care, and hope for the future.
November 5, 2025 at 7:55 PM
curechm.bsky.social
Team CHM crushed the 2025 Marine Corps & NYC Marathons! Every mile raised awareness & support for CHM research—your dedication inspires us all. #TeamCHM #CureCHM
Picture collage of Team CHM runners at the 50th Marine Corps Marathon and TCS NYC Marathon.
November 4, 2025 at 9:34 PM
curechm.bsky.social
A huge thank you to Tara Andrus Nordgren & her family for organizing the Nordgren Family 5K in Weiser, ID! Your dedication & hard work, along with the amazing support of your community, helped raise over $10,000 for the Choroideremia Research Foundation (CRF).
Over 100 community members of Weiser, Idaho come together to support the CRF at the Nordgren Family 5K.
October 21, 2025 at 9:02 PM
curechm.bsky.social
CRF proudly presents the 6th Annual Randy Wheelock Research Award to Dr. Alice Y. Zhang of UNC–Chapel Hill for advancing research in choroideremia (CHM).
Neal Bench, CRF President, awarding Alice Zhang, MD the 2025 Randy Wheelock Award. They are posing with three men from the UNC Ophthalmology team.
October 17, 2025 at 3:39 PM
curechm.bsky.social
Course to a Cure Cole Schroeder golf outing was a huge success! ⛳ 12 volunteers & 84 golfers at Westchester GC raised $6,200+ for CHM research! #Choroideremia #GolfForACause
Group of 84 golfers who attended Course to a Cure fundraiser. Group of four guys raising their drinks and giving cheers on the golf course. Cole Schroeder Golf Outing Est. 2025 Course to a Cure Saving Sight - Building Hope Banner
October 16, 2025 at 8:14 PM
curechm.bsky.social
October 15th marks White Cane Safety Day—celebrating independence, mobility, and confidence for people with vision loss.

#WhiteCaneSafetyDay #Accessibility #CureCHM #VisionLossAwareness #Choroideremia
An image of a crosswalk with Cory MacDonald posing with his white cane. Text that says October 15, 2025 White Cane Safety Day. Celebrating independence, awareness, and mobility for people who are blind or visually impaired.
October 15, 2025 at 3:15 PM
curechm.bsky.social
Huge thanks to Michelle Holbrook & family for their CHM FUNdraiser #6! Amazing turnout, energy, & generosity supporting the CHM community. #CureCHM
Group of 30 people who attended the fundraiser to work out at Good Movement Studio in Park City, Utah. The group is standing outside with mountains in the background. Michelle, Damon, and Brixton Holbrook posing together by the juice and coffee station.
October 14, 2025 at 6:38 PM
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Save the date! The CRF International Conference is coming June 23–26, 2027 at the Drury Plaza Hotel, Orlando Disney Springs!
Text: Save the date! CRF International Conference at the Drury Plaza Hotel, Orlando Disney Springs. June 23–26, 2027. Pictured: Kathi Wagner, CRF Executive Director, and Drury Hotel Team Members, including CHMer, Patrick Heafner.
October 10, 2025 at 3:35 PM
curechm.bsky.social
🌍 World Sight Day 2025! CHM research needs your support to fund labs, trials & breakthroughs. No cure yet—but hope drives progress. 💙 Donate: curechm.salsalabs.org/donate/index...
Image: Dark blue background with graphic of continents, the CRF logo, and an eye icon. Text: 2025 World Sight Day: Raising Awareness for Vision Loss & Global Eye Health
October 9, 2025 at 5:22 PM
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October is World Blindness Awareness Month! At the CRF, we are committed to helping those affected by choroideremia (CHM) through research, patient support, and community initiatives.

Support our mission: curechm.salsalabs.org/donate

#WorldBlindnessAwarenessMonth #CureCHM
Choroideremia Research Foundation Logo. Text: October is World Blindness Awareness Month Icons: Guide Dog, Eye, Blindness Awareness White Ribbon, White Cane
October 6, 2025 at 6:09 PM
curechm.bsky.social
Huge thanks to Jess Thompson and his cardiac practice for sponsoring the Mesa Sprint Tri and sharing these great shots! Grateful for your support and for helping spread CHM awareness.

#TeamCHM #MesaSprintTri #CureCHM
Group photo of participants in Team CHM gear at the Mesa Sprint Tri Group of people holding curechm.org towels by the pool at the Mesa Sprint Tri
September 29, 2025 at 4:50 PM
curechm.bsky.social
The Thompson family showed up strong for Team CHM this past weekend at the Bear Lake Brawl Half Triathlon in St. Charles, ID!

Pictured: their oldest son, Jackson, proudly on the podium with his medal, and a special moment with his brother, Isaac. #TeamCHM
Jackson Thompson proudly on the podium with his medal A special post-triathlon moment with Jackson and his brother, Isaac.
September 15, 2025 at 9:13 PM
curechm.bsky.social
Did you know? Many employers match donations—doubling or tripling your gift to CRF!

How it works:
1️⃣ Ask HR if your company has a program
2️⃣ Submit your donation + request
3️⃣ CRF gets extra support at no cost to you

An easy way to maximize impact!
www.curechm.org/donate/#matc...
DID YOU KNOW? Many employers offer matching gift programs that can double — or even triple — your donation to CRF. You Give $50, Employer Matches $50 = $100 for CRF
September 11, 2025 at 7:48 PM
curechm.bsky.social
Celebrating 25 years of CRF progress—your support funds research, accelerates treatments, and empowers families. Join us in the next chapter toward a cure.

curechm.salsalabs.org/crf25
Your Gift Fuels the Fight Against CHM
September 3, 2025 at 4:31 PM
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Doctors & researchers show up daily to fight CHM—a rare eye disease causing vision loss. Help fuel the progress: curechm.salsalabs.org/crf25
August 27, 2025 at 3:25 PM
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25 years of progress, community & hope. Support CRF’s mission to cure CHM—donate or start your own fundraiser today! curechm.salsalabs.org/crf25
Image of three conference attendees Image of three conference attendees Image of two conference attendees Image of two conference attendees
August 20, 2025 at 8:32 PM
curechm.bsky.social
Yes, 25% off CRF gear is real — and it’s just one perk for Standard & Lifetime Members.

Join today, rep your gear, and help raise awareness for choroideremia.

✅ Free, Standard, or Lifetime — pick what fits.
🎁 Lifetime Members get a swag pack!

www.curechm.org/for-patients...
25% OFF CRF GEAR? THAT'S JUST ONE MEMBER PERK. CRF MEMBERS GET ACCESS TO EXCLUSIVE DISCOUNTS, EVENTS & MORE Graphic of CRF shirts, hats, water bottle, coffee mug, and wristbands.
July 29, 2025 at 8:01 PM
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Since 2000, CRF has grown worldwide: 25 years of support, $6M+ in research, 60 countries connected, 4,375+ CHM families, and being the #1 CHM org.

Join us and help fuel research and community growth!

Become a member today: curechm.org/for-patients...

#CureCHM #25Years #Choroideremia
A graphic of text that says 'SINCE 2000: CRF'S MILESTONES AT A GLANCE with a chart that states: $6M In Research Funding 100+ Research Grants 140 Research Network Members 25 Years of Community & Support 4,375+ CHM Family Members 7,375+ Social Media Followers 60 Countries Connected #1 CHM Organization Worldwide'
July 25, 2025 at 8:13 PM
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The Team CHM Gear Store is OPEN through Aug 17! Grab high-performance Spaero Tri gear in bold lime green—perfect for your next race, ride, or run. Look sharp, feel great, and raise CHM awareness with every step. Shop now: 409-team-chm-re-order-2025-sch0522-1.itemorder.com/shop/home/
Team CHM Gear Store – Now Open for a Limited Time! Tri Suit, Basic Tee, Run Tank, Cycling Jersey, Tri Tank and More.
July 23, 2025 at 4:41 PM
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The CRF Membership Drive is ON!
Becoming a member helps fund research, strengthen the CHM community & keep you connected with the latest in science and support.

Join today and make an impact:
www.curechm.org/for-patients-families/#membership
JOIN THE CRF COMMUNITY - Membership Makes a Difference: Membership voting privileges, Weekly e-newsletters, Annual report. All membership levels include these benefits! FREE MEMBERSHIP Stay Connected — No Cost to Join: Membership voting privileges, Weekly e-newsletters, Annual report (mail or email option). Be part of the CRF community and stay in the loop on research, events, and more — all at no cost. STANDARD MEMBERSHIP $60/year — Renew Annually: Membership voting privileges, One-on-one contact call, Weekly e-newsletters + annual report, 25% off CRF merch & conference registration. Stay connected, informed, and involved — while supporting CRF’s mission to cure CHM. RECURRING STANDARD MEMBERSHIP $5/month — Auto-Renews Monthly: Prefer a flexible, monthly option? Get the same great benefits with auto-renewal for just $5/month. LIFETIME MEMBERSHIP - $600 one-time — Join for life: Membership voting privileges, Annual contact call, Weekly e-newsletters + annual report, 25% off CRF merchandise & conference, Recognition in CRF’s annual report, Invitations to exclusive networking events, exclusive welcome swag pack. A lasting commitment to finding a cure for CHM — and to the CRF community.
July 16, 2025 at 9:30 PM
curechm.bsky.social
🎉 Got a birthday coming up? Celebrate with purpose! Start a virtual fundraiser for the Choroideremia Research Foundation to support sight-saving research.

Facebook: www.facebook.com/fundraisers
CRF Page: curechm.salsalabs.org/p2p

#BirthdayFundraiser #CureCHM
Celebrate Your Birthday & Support Sight-Saving Research!
July 8, 2025 at 8:32 PM
curechm.bsky.social
Welcome Mike McConnell, PhD, CRF’s new Chief Scientific Officer! Mike is a neuroscientist with expertise in stem cells, genomics & rare disease. He’ll help accelerate CHM research & keep our community informed.

#chiefscientificofficer #curechm
Welcome Mike McConnell, PhD, CRF’s New Chief Scientific Officer!
July 3, 2025 at 3:20 PM
curechm.bsky.social
Days 3 & 4 of the 2025 CRF International Conference were packed with connection, learning, and CHM updates — from gene therapy to tech, hobbies, and health.

Thank you to all who joined us in Bloomington, MN. We hope you’ll be part of the next CRF International Conference in 2027!

#CureCHM #CRF2025
Ask the Dr. Q&A panel and attendees Gene Therapy Advancements Session attendees CRF Board of Directors and Kathi Wagner, CRF Executive Director Mike McConnell, PhD, CRF Chief Scientific Officer, speaking at closing session
June 29, 2025 at 2:58 AM
curechm.bsky.social
The 2025 CRF International Conference is off to a great start! 🙌

We kicked off with registration, the Youth Meet & Greet, happy hour & our Welcome Reception. Day 2 was filled with learning & connection — CHM 101, optogenetics, health, genetic counseling & more!💡🧬

#CureCHM #CRFConference2025
Group of CHMers and family members CRF Director of Advocacy with Researchers/Presenters Mall Walk and Team CHM Fun Run Group in front off the CRF Large Group Conference Session
June 27, 2025 at 3:10 PM
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One week ‘til the 2025 CRF Conference! 🎉
June 25–28 | Radisson Blu, Mall of America

Science, support, youth events & more—don’t miss it!

📄 Schedule: www.curechm.org/wp-content/u...

#CRFConference2025 #CureCHM #CHMStrong
June 18, 2025 at 3:57 PM