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cplifecentre.bsky.social
CP-Life Research Centre
@cplifecentre.bsky.social
38 followers 20 following 41 posts
A research centre @RCSI_Physio @RCSI_Irl dedicated to generating evidence that improves services and supports for people with cerebral palsy throughout life.
https://cpresearchireland.eu/

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cplifecentre.bsky.social
The BRAIN-RESTORE Childhood and Youth study is now Recruiting! Were you (or your child) diagnosed with a brain tumour during childhood or adolescence?
Scan QR code to learn more/express interest
#ChildhoodBrainTumour #Rehabilitation #PPI #Research #YoungSurvivors #RCSI #BrainHealth #PatientVoice
Poster titled “Brain-Restore Childhood and Youth: Enhancing Survivorship Through Rehabilitation for Children, Adolescents and Young Adults After Childhood Brain Tumours.” Includes sections: About childhood brain tumours: Lists facts about prevalence, long-term effects, rehabilitation needs, and challenges. Why are we doing this study? Explains goals: understanding rehabilitation needs, conducting interviews, measuring cognitive function, and co-designing solutions. Features QR code for more information and logos for Brain Restore Childhood and Youth, RCSI, and HRB.
October 29, 2025 at 3:59 PM
cplifecentre.bsky.social
We’re pleased to share the September 2025 edition of our CP-Life Research Centre newsletter, including updates on new projects, research findings and events: tinyurl.com/2kpckwn3
@rcsi-physio.bsky.social @rcsi.bsky.social
#cerebralpalsy #mentalhealth #healthcaretransition
Text reads: Latest news. Below is the green and teal CP Life logo. Below that text reads: News 14 October 2025. September 2025 - read our latest Newsletter.
October 14, 2025 at 3:15 PM
cplifecentre.bsky.social
💚 Today is World Cerebral Palsy Day 💚
This year’s theme, #UniqueandUnited, reminds us that every voice and story adds strength to our community.
Let’s celebrate the resilience and achievements of the CP community.
#WorldCerebralPalsyDay #CPLife #InclusionMatters #CerebralPalsyAwareness #PPI #RCSI
Promotional graphic for the CP-Life Research Centre, focused on Cerebral Palsy Lifespan Health & Well-being Research. The background is orange with the CP-Life logo at the top. Text on the left reads: “United in Change. My viewpoints and experiences are being listened to. It's important that lived experience and research are used in tandem.” A hashtag "#UNIQUEANDUNITED" appears in bold on a yellow background. On the right, there is a photo of an individual sitting in a chair with sunglasses on their head. Promotional graphic for the CP-Life Research Centre, focused on Cerebral Palsy Lifespan Health & Well-being Research. The background is orange with the CP-Life logo at the top. Below, text reads "Unique Voice," and a quote: “It was nice to voice my opinion, and see how some people had the same opinions and some people were different.” A hashtag "#UNIQUE AND UNITED" appears at the bottom. On the right, there is a photo of an individual wearing a pink sweatshirt. Promotional graphic for the CP-Life Research Centre, focused on Cerebral Palsy Lifespan Health & Well-being Research. The background is orange with the CP-Life logo at the top. Text on the left reads “Shared Experience” and “It was a great brainstorming session from everybody involved.” A hashtag "#UNIQUE AND UNITED" appears at the bottom. On the right, there is a photo of an individual with long hair wearing a light cardigan over a dark top.
October 6, 2025 at 2:32 PM
cplifecentre.bsky.social
Dr Jennifer Fortune presented at the recent “Le Chéile: Supporting young people and families during transition from paediatric to adult services” conference, and spoke about the Ignition Study and our work on co-designing better transition supports for young people with cerebral palsy.
Photograph of 7 people from the Le Chéile conference: Supporting Young People and Families during Transition from Paediatric to Adult Services. Includes Dr Jennifer Fortune who was a speaker at the conference.
September 15, 2025 at 1:52 PM
cplifecentre.bsky.social
INVITATION
Connect2Participate —research study focused on collaborative practices to support physical activity for young people with physical disability.
Expression of interest form: forms.office.com/e/MW7CKXjCpa
Email karenbrady23@rcsi.com
#Connect2Participate #FitSkills #PhysicalActivity
CP-Life flyer for Focus Group Recruitment. Are you interested in shaping collaborative practices to support physical activity for young people with disability? One online 60-75min Group Discussion. CALLING PROFESSIONALS IN DISABILITY AND PHYSICAL ACTIVITY SECTORS. Clinicians and Therapy Assistants; Managers and Team Leads; Exercise Professionals. www.cp-lifecentre.ie karenbrady23@rcsi.com cplifecentre@rcsi.com Also displays a QR code for registration. Flyer includes logos of CP-Life Research Centre, Connect2Participate, RCSI, Cerebral Palsy Foundation and SPHeRE Phd Programme.
September 5, 2025 at 10:10 AM
cplifecentre.bsky.social
Sign up now for our free online exercise class designed for adults with cerebral palsy. Participants are enjoying the sessions and sharing positive feedback. Take this opportunity to get active in a supportive and welcoming community. #cerebralpalsy #exercise #CPEXCEL @rcsi-physio.bsky.social
A recruitment poster divided into two panels. On the left, bold text at the top says, “We are looking for adults with cerebral palsy to take part in an ONLINE EXERCISE PROGRAMME.” Below, smaller text invites adults aged 18 and over with cerebral palsy, living on the island of Ireland, to join a free 8-week exercise and education programme delivered via Zoom. A website link (https://bit.ly/cpexcelonline) and email (manikandanmanjula@rcsi.com) are provided for more information. Along the bottom are logos for the CP-Life Research Centre, RCSI University of Medicine and Health Sciences, the Cerebral Palsy Foundation, and Research Ireland. On the right, a smiling red-haired woman exercises with a red resistance band in a home setting. Above her are white icons representing walking, a wheelchair, a walker, and a cane. In the lower right corner is the “CP EXCEL Online Exercise Class” logo. Graphic showing CP EXCEL logo and participant feedback as follows: "The class was a very enjoyable and beneficial experience. It was great to get our muscles moving in a safe and effective way. It was also great to share our experiences with our peers, and the expertise, guidance and support was greatly appreciated." Anonymous. Logo and name of CP-Life Research Centre at the bottom of the graphic. Graphic showing CP EXCEL logo and participant feedback as follows: "The interaction between tailored made strengthening exercises, relevant research in relation to exercise and CP, nutrition, and our combined lived experiences of living with CP encapsulates this online CP-EXCEL Research Study. We need to take part in order to shift systems and structures that are not working with us..." Fiona Weldon. Logo and name of CP-Life Research Centre displayed at bottom of graphic. Graphic showing CP EXCEL logo and participant feedback as follows: Taking part in the CP Life exercise programme has been supportive, fun and challenging in the right way. Manjula who runs the classes is lovely. I really enjoy working out in a group where my I/my body feels understood. The evidence-based exercises are chosen specifically for us, so we don't have to figure it all out on our own. The class is helping me maintain strength and feel more confident and in control of my health. The online videos make it easy to keep up between sessions and I've learned what level of exercise is right for adults with CP which helps me stay motivated and consistent. I am looking forward to next week already. Mary-Elaine McCavert. Logo and name of CP-Life Research Centre is displayed at the bottom of the graphic.
August 27, 2025 at 1:21 PM
cplifecentre.bsky.social
💫We’re hiring a Research Assistant to support the development and implementation of Ireland’s National Cerebral Palsy Registry.💫

Information and job spec here 👇
tinyurl.com/7n95u597
Closing Date: 5th September 2025

#researchassistant #jobopportunity
@rcsi.bsky.social @rcsi-physio.bsky.social
Graphic from CP-Life Research Centre with the words "WE ARE HIRING" and "RESEARCH ASSISTANT"
August 20, 2025 at 12:42 PM
cplifecentre.bsky.social
Today, on World Brain Day, and every day, we support 'Brain Health for All Ages' #cerebralpalsy #mentalhealth #WorldBrainDay2025
@rcsi-physio.bsky.social @rcsi.bsky.social
CP-Life Research Centre at RCSI, Relate-CP. Infographic showing the prevalence of mental health difficulties and mental disorders among children with cerebral palsy.
July 22, 2025 at 10:47 AM
cplifecentre.bsky.social
Congratulations Dr Manjula Manikandan and Dr Jennifer Ryan and Relate-CP team on receiving the Clinical Research Award at EACD/IAACD Heidelberg 2025 for their work exploring the prevalence of mental health difficulties and mental disorders among children with cerebral palsy. #cerebralplasy #research
Photo of EACD & IAACD Certificate of Award. Nestlé HealthScience. Clinical Research Award - 1st place. "The prevalence of mental health difficulties and mental disorders among children with cerebral palsy" was awarded the Nestlé Health Science Research Award at the EACD/IAACD Heidelberg 2025 congress.
June 30, 2025 at 12:11 PM
cplifecentre.bsky.social
Welcome to our 2025 @rcsi.bsky.social Research Summer School students Aodhan Kelly (physiotherapy) and Feby Saji (medicine). Working with us for 8 weeks we will support them to develop research skills in scientific writing, presentations, data collections and analysis. #mentor #student #research
Photos of Aodhan Kelly and Feby Saji, research summer school students at RCSI CP-Life Research Centre.
June 18, 2025 at 10:33 AM
cplifecentre.bsky.social
Delighted to welcome Dr Georgia McKenzie , Centre of Research Excellence: CP-Achieve to @rcsi.bsky.social Georgia is visiting Dublin ahead of attending the EACD/ IAACD Heidelberg. We look forward to future collaboration and learning.
#research #cerebralpalsy #disability #collaborate
Photo taken on steps at the old main entrance to RCSI Dublin. Group from CP-Life Research Centre with visitor Dr Georgia McKenzie.
June 18, 2025 at 10:17 AM
cplifecentre.bsky.social
We're delighted to share the wonderful infographic
created by Robyn Deasy vimeo.com/1084205747 at our Move-Connect-Thrive World Café event on 14 April 2025 @rcsi-physio.bsky.social @rcsi.bsky.social @futureneuro.bsky.social #cerebralpalsy #sportforall #physicalactivity #community #participation
Colourful infographic created by Robyn Deasy showing the work carried out at CP-Life Research Centre 'Move-Connect-Thrive' World Café on 14th April 2025
May 14, 2025 at 3:32 PM
cplifecentre.bsky.social
Join us ONLINE for our next research seminar, Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity, at 3pm on Wednesday 4th June. To register, click tinyurl.com/5pmfk29k or scan below.
Flyer for CP-Life Research Seminar Series showing photos and names of the speakers(Dr Ailish Malone, Dr Manjula Manikandan Dr Karen McConnell and Karen Brady), the date and time of the event (3pm on 4th June), and the title of the event, Evidence to Practice: Benefits, Partnerships and Strategies for Physical Activity for People with Disabilities
May 6, 2025 at 11:18 AM
cplifecentre.bsky.social
Check out our Move-Connect-Thrive: World Café on Physical Activity Participation by Young People with Physical Disability cpresearchireland.eu?page_id=2137 @rcsi-physio.bsky.social @researchireland.bsky.social #cerebralpalsy #SportForAll #PPI #MoveConnectThrive #DisabilityInclusion
Group photo of participants at the CP-Life Move-Connect-Thrive event held on 14 April 2025.
April 30, 2025 at 1:10 PM
cplifecentre.bsky.social
Today we share with you our cross-sectional study related to the use of health services and unmet needs among adults with cerebral palsy in Ireland
You can read the full paper here:
tinyurl.com/3834urwd
#cerebralpalsy #cerebralpalsyawareness #research #disability
Infographic title: Use of health services and unmet needs among adults with cerebral palsy in Ireland. AIM: To describe use of health services, unmet needs relating to health services, and identify factors associated with service use among adults with cerebral palsy (CP) in Ireland. Infographic lists the Method, Results and Interpretation of data.
March 27, 2025 at 3:04 PM
cplifecentre.bsky.social
In our 2024 Delphi study, we identified the top 10 physical activity priorities for young people with physical disability including young people with cerebral palsy.
Full paper at tinyurl.com/bdfwzssr
Watch World Café tinyurl.com/mvj4hjwa
#cerebralpalsyawareness #disability #research #cerebralpalsy
Booklet cover. Text reads, YOUTH EXPERIENCE MATTERS Top 10 Physical Activity Priorities of Teenagers with physical disability. Empowering teenagers with physical disabilities to create their future physical activity participation. Graphic shows various young people representing different activities, on and beside the word EQUAL. Logos of sponsors at the bottom of the page.
March 26, 2025 at 12:04 PM
cplifecentre.bsky.social
On Cerebral Palsy Awareness Day we share with you our systematic review and meta-analysis which focused on the prevalence and incidence of chronic conditions among adults with cerebral palsy.
Read the full paper here tinyurl.com/mwrdj6pt
#cerebralpalsy #cerebralpalsyawareness #research #disability
PREVALENCE AND INCIDENCE OF CHRONIC CONDITIONS AMONG ADULTS WITH CEREBRAL PALSY. A systematic review and meta-analysis. PURPOSE OF STUDY: To assess the prevalence and incidence of chronic conditions among adults with cerebral palsy (CP) and compare them to the prevalence and incidence among adults without CP. METHOD We searched MEDLINE and Embase For Studies Reporting The Prevalence Or Incidence Of One Or More Chronic Conditions Among Adults With Cp Two Independent Reviewers Screened Titles, Abstracts, And Full-Text Articles Two Independent Reviewers Extracted Data Relating To Prevalence And Incidence And Appraised Study Quality We Performed Random-effects Meta-analyses To Pool Prevalence And Incidence RESULTS: We identified 69 studies 65 reported the prevalence of 53 conditions 13 reported the incidence of 21 conditions 20% OF ADULTS HAD THE FOLLOWING CONDITIONS: (21%) Depression (23%) Mood Affective Disorders (26%) Hypertension (32%) Urinary Incontinence (46%) Scoliosis (21%) Anxiety (24%) Asthma (28%) Epilepsy (38%) Malnutrition CONCLUSION Adults with CP were more likely to have type 2 diabetes, anxiety, bipolar disorder, depression, schizophrenia, hypertension, ischaemic heart disease, stroke, cerebrovascular disease, asthma, liver disease, osteoarthritis, osteoporosis, under- weight, and chronic kidney disease than adults without CP. These data from 18 countries, which provide an international perspective, may be used to promote awareness, identify targets for intervention, and inform the development of appropriate supports for adults with CP.
March 25, 2025 at 11:48 AM
cplifecentre.bsky.social
To celebrate Cerebral Palsy Awareness Day on March 25th, we present a cross-sectional study on the transition to adult services experienced by young people with cerebral palsy.
Full paper at tinyurl.com/38r44k4p
#cerebralpalsy #cerebralpalsyawareness #research #disability
Colourful infographic with title "Transition to adult services experienced by young people with Cerebral Palsy". AIM To assess if young people with cerebral palsy (CP) experienced and health professionals provided practices that may improve transition from child to adult health services. METHODS Seventy-five young people and 108 health professionals completed a questionnaire describing the experience or provision of key transition practices. INTERPRETATION - Many young people with CP do not receive supports that may improve the experience of transition. - Supports to improve transition may be inconsistently provided within and between organisations. - This study highlights areas for improvement when providing transition care to young people with CP. Infographic shows boxes with statistics as follows: A named worker to help with the transition process: Young person 36%, Health professionals 35%. Appropriate parental involvement: Young person 90%, Health professionals 66%. Information about transition: Young person 24%, Health professionals 69%. Promotion of health self-efficacy: Young person 37%, Health professionals 73%. Self-management support: Young person 36%, Health professionals 73%. Meet the adult team: Young person 16%, Health professionals 30%. Senior manager with responsibility for transition: Health professionals 20%. Formal life skills training: Young person 16%, Health professionals 36%.
March 24, 2025 at 3:42 PM
cplifecentre.bsky.social
We’re excited to attend #mymovingbrain event this Saturday. Visit our engagement stand, find out what we're doing to support physical activity for people with disabilities and how to get involved. #futureNeuro #cerebralpalsy #community #neurologicalconditions #physicalactivity #research #engagement
Flyer for My Moving Brain event on 22nd March 2025. "Join us to hear from inspiring speakers, try inclusive sports & get hands-on with fun science activities at our Community Connect event in Cork! Flyer lists the speakers and details the programme for the day. QR code included for registration. Event to be held in the Mayfield Sports Complex, Cork. Logos of sponsors are displayed.
March 19, 2025 at 12:29 PM
cplifecentre.bsky.social
Calling on adults with cerebral palsy or parents of adults with cerebral palsy to join our PPI Panel - we welcome your ideas cpresearchireland.eu/public-invol... #cerebralpalsy #PPI #CPLifePPI @rcsi.bsky.social @rcsi-physio.bsky.social @rcsipophealth.bsky.social
Poster for CP-Life Research Centre showing CP-Life logo and inviting adults to join our Public Involvement Panel. Text reads: "Make an impact with us! Join our Public Involvement Panel. Why? Help shape our research, to ensure it addresses what matters most to people with cerebral palsy. Who? Adults with cerebral palsy or parents of adults with cerebral palsy who want to help make an impact with us. How? Join our Public Involvement Panel and advise us on how to make our research better. No prior experience necessary. Your valuable insights will help shape our research to make sure it achieves what you want it to achieve. Scan the QR code to learn more about joining the Public Involvement Panel at CP-Life Research Centre. You can also email us at: cplifecentre@rcsi.ie or visit our website www.cp-lifecentre.ie Poster displays a QR code and in the top right, displays a graphic of people sitting around a table.
March 4, 2025 at 12:43 PM
cplifecentre.bsky.social
Calling on young people to help guide our research - join our Public Involvement Panel - we welcome your ideas. cpresearchireland.eu/public-invol...
#cerebralpalsy #RCSI #PPI @rcsi-physio.bsky.social @rcsi.bsky.social @rcsipophealth.bsky.social
Poster for CP-Life Research Centre inviting young people to join our Public Involvement Panel to help make a difference in research for children and young people with cerebral palsy. Text reads: "Young people improving research. Do you want to make a difference in research for children and young people with cerebral palsy? Why? Tell us your ideas and offer advice to help make our research better. Who? Young people with cerebral palsy aged 6-17 years and their brothers and sisters who want to help guide our research. How? Join our Public Involvement Panel and let us know how we can improve research for young people like you. No experience needed, just your ideas. Just scan the QR code or visit www.cp-lifecentre.ie to get started!" Poster shows graphic of light bulb and speech bubbles coming from graphics of young people.
March 4, 2025 at 12:07 PM
cplifecentre.bsky.social
CP-Life Research Centre Public Involvement Spotlight on Conor Dillon @rcsi.bsky.social @cplifecentre.bsky.social
Text by Conor Dillon reads as follows: Public Involvement Spotlight "It's important that lived experience and research are used in tandem and CP-Life do this very well. At the moment I'm involved in the Access Information Map (AIM) project. As well as my viewpoints and experiences being listened to, it also gives me a chance to meet new people who are in similar circumstances to me." Photograph of Conor Dillon. Image includes the logo of CP-Life Research Centre, Cerebral Palsy Lifespan Health & Wellbeing Research Centre
January 29, 2025 at 5:11 PM
cplifecentre.bsky.social
CP-Life Research Centre group photo of members. Title 'Happy Holidays'
December 18, 2024 at 10:48 AM