Going to be cutting my own hair next weekend. What’s the worst that could happen?! Not like I ever leave my house if I screw it up that badly, haha.

I forgot I requested today off work and I’m so grateful. I went to my doctor appt today and seriously my chronic conditions have been so bad lately- just doing that set me into a 5 hour nap today lmfao. Fuck, it’s hard not to feel lazy! BUT THEY WANT ME TO TRY ACUPUNCTURE. NEEDLES. IN MY FACE. AHH!

Well I’m attempting it and my opening introduction is a bunch of statistics about covid and then I delve into originally being able bodied and no longer being that way and what that’s like.

If I get far enough or can commit to finishing, I of course will talk about ME/CFS as well!

If you’re still masking & taking Covid precautions - thank you.

If you stopped - it’s not too late to start again. There are people who will help you.

If you’re covid cautious & dealing with an infection - it’s not your fault. The system is failing us.

By making the effort you protected others.

What do #pwme #pwlc think of the idea of publishing a book telling our story?

I ask because I’m thinking about writing a book about my journey from being perfectly healthy to covid wrecking me and giving me my slew of chronic conditions and what that’s been like + how I’ve been mentally overcoming

I figure if I ever have to go on disability- I’m just gonna try and be a full time streamer at that point lmao. I can’t imagine what I’d do without work even if my work is just… existing.

My 3 purifiers arrived today so now I have a total of 4 in the house and hopefully that will help me ME/CFS and MCAS a little bit!

According to my physical therapist, MCAS CAN make you allergic to exercising.

I might be experiencing it- too soon to know for sure just yet but she told me it’s possible.

Do any of you guys with POTS ever get used to drinking your salt tablets? Makes me about gag every time!

I recently found out through allergenic tests that I have MCAS but also, I am allergic to all grass, weeds, and my pets!

Wont get rid of my pets, but planning to get additional air purifiers and I guess this is incentive to try and keep up on the vacuuming.

Where are my #pwlc and #pwme folks? I am looking for the community here.

Tags for below:
#disability disability community, disabled, long covid, covid long hauler, myalgic encephalomyelitis, pots, MCAS, fibro, fibromyalgia.

Hello, this is my new account talking about my post covid recovery and life with it. I have been diagnosed with ME/CFS, Fibromyalgia, MCAS, and POTS.

Looking for other #pwcovid #pwme #covid #disability to commune with.