Sickle Cell Disease Coalition
conquerscd.bsky.social
Sickle Cell Disease Coalition
@conquerscd.bsky.social
Have an event? Let’s amplify it!

Submit your workshops, summits, trainings, or other opportunities to the SCDC calendar and reach more of our community. We’ll help spread the word!
📧 Send details: coordinator@scdcoalition.org

#SickleCellDisease #HealthAwareness #Collaboration #AmplifySCDC
January 27, 2026 at 2:01 PM
Today is Maternal Health Awareness Day! ACOG's theme "Holding Ground on Maternal Health" highlights our commitment to preventing maternal deaths. Check out WHO's first global guideline for SCD pregnancy care: https://ow.ly/7zl850XYhfe #MaternalHealth #SCD
January 23, 2026 at 2:01 PM
January is National Blood Donor Month! Check out this PSA by our former Co-Chairs, Mapillar and Jeff.
January 21, 2026 at 3:01 PM
Task force alumni — this one’s for you.

Have you submitted your selections for one of our three new subcommittees? If not, email us at coordinator@scdcoalitionorg to confirm your SCD membership and get connected.
January 19, 2026 at 3:01 PM
🎄✨ Happy Holidays from the SCDC team! ✨🎄
Thank you to our community, partners, and supporters for your courage and dedication this year. We’ll see you in 2026! ❤️
#SickleCell #SCDCPartner #ConquerSCD #SCDC
December 24, 2025 at 3:01 PM
Last SCDC-Wide Meeting of the Year!
Join us to hear updates and upcoming changes.
Make sure your organization is represented.
Questions: coordinator@scdcoalition.org
December 15, 2025 at 2:05 PM
Have you seen "Sacred Spaces: Healing Through Art" at The Sanctuary yet? 🎨
Explore visual storytelling that inspires reflection and connection. Created on behalf of our #SCDCPartner, Cayenne Wellness Center. 📅 Weekends | 10 AM – 6 PM | Glendale, CA
Get tickets: https://ow.ly/g1rf50XGTjS
December 12, 2025 at 2:01 PM
🎵 The BEAT SCD project is exploring how music can help reduce stigma and support mental health for people living with sickle cell disease.

Take the survey and share your views on SCD and music 🎶
👉 https://ow.ly/WyJQ50XG0mz

December 9, 2025 at 1:15 PM
The 67th ASH Annual Meeting is Dec 6-9! 🎉 Are you attending? 👇 ✅ Yes, can’t wait! ❌ Not this year 🤔 Still deciding? Connect with SCD advocates, meet hematologists, and share insights. #SCDCoalition #AnnualMeeting #SickleCellDisease #Networking #CommunityEngagement
December 1, 2025 at 2:30 PM
🦃 Happy Thanksgiving from the SCD Coalition! Celebrate while keeping your sickle cell health in mind: 🥗 Balance your plate, 💤 Rest & pace yourself, 🩺 Know your resources. Wishing you a joyful and safe holiday! #SCDCoalition #SickleCellDisease #HealthTips #Thanksgiving #Wellness
November 27, 2025 at 1:01 PM
The SCD Coalition works to amplify the voice of the SCD community and we have the opportunity to share insights with trainees at #ASH25.

We want to hear from YOU. Let us know your thoughts below or send us a DM. Responses will be anonymized and shared with this year’s trainees at ASH-a-Palooza.
November 21, 2025 at 7:01 PM
⏰ Reminder! Join us for the SCD Coalition Peer Learning Exchange on Nov 24, 2025, at 9:00 a.m. ET. Discover how data-driven insights and financing are expanding access. Hear from Melynda Watkins & Melissa Leavitt! 📲Scan the QR Code or Register here: https://ow.ly/FRp950XtRlh
November 21, 2025 at 1:00 PM
🌍 Don’t miss our final SCD Coalition Global Perspectives Meeting of 2025!
🗓 November 19th
If you’re an SCDC member, make sure to attend — and if you’re not yet a member, click here to learn how to join: https://ow.ly/AuLX50Xn8fP

November 17, 2025 at 2:00 PM
Join us for the SCD Coalition Peer Learning Exchange (Session 2) on Nov 24, 2025 | 9:00 a.m. ET.

Discover how data-driven insights are unlocking access to HIV treatment & SCD therapies at scale.

📲 Register via the QR code

#SCDCoalition #PeerLearning #GlobalHealth #HealthAccess
November 5, 2025 at 3:02 PM
We’re excited to join Bluesky! 💙
The SCD Coalition is all about connection — and now we have a new space to share what we’re working on, highlight your events and resources, and keep pushing forward together to conquer SCD.

Come say hello and be part of the community! https://ow.ly/NwcT50XmBBY
November 4, 2025 at 5:55 PM