Thank you for the suggestion 🫂 I do have bar stools I use.

Usually, I just feel pressure in my head as I get lightheaded.
Putting my hands on my knees and bending forward until my head is below my heart helps.

Luckily, it doesn't go this far too often, but when it does I have to fully lay down.

Thank you to anyone who read this all the way through. You are loved and you are worthy as the human being you are, strengths and weaknesses included.

They continue to expect me to "pull through" and "get better" because they can't fathom that their "smart child" is struggling.

I have goals, dreams, and aspirations. But, those wants cannot be met if I'm constantly pushing myself to the point of breaking.

I'm low contact with my biological family now, planning on going no contact as soon as I'm financially stable. They refuse to realize I likely will never be able to hold an average job down due to my every day pain, brain fog, and exhaustion.

I had a mutual friend who also has hEDS. They pointed out our similar issues. I was able to talk to my doctor about it, and got tested.

You never know what's going on internally or even externally with someone, so I encourage anyone reading this to not assume.

It took me 6 years from when I first started having symptoms to get a diagnosis, only after I broke down in my doctor's office crying because no one would believe that I was struggling.

What's sadder is that I got lucky, because some folks don't get a diagnosis for over a decade.

It doesn't matter if I'm recovering from surgery or dealing with horrific pain every day.

You begin to hide your suffering because no one around you believes you, which just makes it worse. I tell my friends now that if I'm showing pain, that means something is really wrong.

The hardest part about EDS is that people can't SEE you're disabled and assume you're just lazy or unmotivated. Even after learning of my diagnosis, my biological family has only ever focused on when I'm going to get another job.

I have hEDS. I've had jaw surgery due to condylar resorption and two hip surgeries because both of my hips had dysplasia.
That's just so far, and I'm only 23, turning 24 this year.
I also have POTS.

I'm currently looking into my left shoulder and/or upper back to see if I need another surgery.

"Skinhead, deadhead
Everybody's gone bad
Situation, SEGREGATION
Everybody; allegation
In the suite, on the news
Everybody; dog food
Kick me, KIKE ME
Don't you wrong or right me

All I wanna say is that THEY DON'T REALLY CARE ABOUT US"

-Michael Jackson

They blame "the other" for all these issues, while they run out the back door with all the resources and money.

NONE OF THESE ACTIONS ARE "DISTRACTIONS".
They are planned; a chaotic strategy to take as many resources from everyday people so these robber barons can line their own pockets.

So, tell me, how is it "going after waste, fraud, and abuse" when you stop the agency that fights against waste, fraud, and abuse?

Their entire plan hinges on blaming immigrants and other minorities. They use them as a scapegoat; racism and hate is a tool for them to divide the people.