Meanwhile the average out-of-pocket healthcare cost was $13,450.

On a personal note, I've been hibernating lately to take care of my mental/physical health but want to get back into a routine for Connective Issues over the coming weeks/months.

Please let me know if there are specific concerns you'd like me to write about.

For now, protect your peace as much as possible, and get as much healthcare support as you can, as soon as you can.

And be sure to find community and make joy. We will survive together by existing loud and proud.

❗️Reduced research funding could impact progress on understanding EDS and developing treatments.

❗️Limiting the power of the Americans with Disabilities Act (ADA) would leave us vulnerable to discrimination on many fronts.

More on these later.

❗️Repeal of the Affordable Care Act could affect us due to discrimination of pre-existing conditions and our access to healthcare.

❗️Medicaid and social security cuts could remove critical safety nets for many of us.

This gives me so much hope.

Love this oddly specific aspect of our existence.

Congrats on the diagnosis! I hope they will refer you for genetic testing to confirm the type.

Solidarity. Times are scary, and the Trump administration will absolutely come for disability rights. We will have to stick together and fight as much as we can.

Thank you for this representation!

Nice! I've heard a lot of folks do best with plain ole sneakers like chucks. I tried some arch support insoles one time, and they MURDERED my feet. Our bodies are wild.

Welcome to this extra stretchy club! We also tend to be neurodiverse.

Incredible artwork!

Omg WELCOME!