Gerry Nesbitt @ CLIRINX Clinical Research IT
@clirinx.bsky.social
Clinical Research IT for Epilepsy & Rare Diseases
Natural Hx Studies, Patient Registries, Electronic Data Collection
Creator of The CRID and The RDDR
Web: https://clirinx.com
Natural Hx Studies, Patient Registries, Electronic Data Collection
Creator of The CRID and The RDDR
Web: https://clirinx.com
The University of Melbourne has recently launched what may become the largest genetic epilepsy natural history study ever conducted, powered by the CLIRINX system! #RareDiseases #NaturalHistoryStudy #Genetics #Epilepsy
June 4, 2025 at 7:06 PM
The University of Melbourne has recently launched what may become the largest genetic epilepsy natural history study ever conducted, powered by the CLIRINX system! #RareDiseases #NaturalHistoryStudy #Genetics #Epilepsy
After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR
June 4, 2025 at 7:43 AM
After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR
CLIRINX is committed to keeping CRID operational because it plays a critical role in advancing rare disease research. The platform remains highly active and continues to provide invaluable support to researchers, patients, and non-profit organizations in the rare disease community.
February 9, 2025 at 1:51 PM
CLIRINX is committed to keeping CRID operational because it plays a critical role in advancing rare disease research. The platform remains highly active and continues to provide invaluable support to researchers, patients, and non-profit organizations in the rare disease community.
Reposted by Gerry Nesbitt @ CLIRINX Clinical Research IT
CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid
November 19, 2024 at 5:47 PM
CRID - Clinical Research ID. A unique patient identifier for rare disease folks. #raredisease #uniquepatientid
Reposted by Gerry Nesbitt @ CLIRINX Clinical Research IT
CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
November 19, 2024 at 5:58 PM
CRID can now supply a bulk list of anonymous CRID IDs for rare disease research. These CRIDs are not associated with an email address or a person's name/sex/DoB.
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
These could be used by tag a useful dataset or specimen that's unknown/anonymous.
Contact: crid@clirinx.com thecrid.org clirinx.com
Nugget of info: The CLIRINX platform uses Zulip RESTful API for app messaging. We also use Zulip for team messaging. A not so well known alternative to Slack. 💡
November 16, 2024 at 5:11 PM
Nugget of info: The CLIRINX platform uses Zulip RESTful API for app messaging. We also use Zulip for team messaging. A not so well known alternative to Slack. 💡
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
November 12, 2024 at 10:20 PM
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
November 12, 2024 at 10:19 PM
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
November 12, 2024 at 10:19 PM
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
November 12, 2024 at 10:19 PM
Is your rare disease group thinking of starting a new Natural History Study or Clinical Trial Readiness Study? If so, talk to CLIRINX! clirinx.com #raredisease #epilepsy #clirinx #crid #innovation
