The Cleft Lip and Palate Association (CLAPA)
@clapacommunity.bsky.social
The Cleft Lip and Palate Association (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.
www.clapa.com
https://linktr.ee/clapacommunity
www.clapa.com
https://linktr.ee/clapacommunity
📣 Will you help us shape the future of CLAPA’s services?
Join us for a Co-development workshop this December!
We need your thoughts, insights and leadership to make our services truly representative of community.
📆 Tues 2nd or Wed 10th December
ℹ️ Full details - www.clapa.com/news-item/co...
Join us for a Co-development workshop this December!
We need your thoughts, insights and leadership to make our services truly representative of community.
📆 Tues 2nd or Wed 10th December
ℹ️ Full details - www.clapa.com/news-item/co...
November 21, 2025 at 2:32 PM
📣 Will you help us shape the future of CLAPA’s services?
Join us for a Co-development workshop this December!
We need your thoughts, insights and leadership to make our services truly representative of community.
📆 Tues 2nd or Wed 10th December
ℹ️ Full details - www.clapa.com/news-item/co...
Join us for a Co-development workshop this December!
We need your thoughts, insights and leadership to make our services truly representative of community.
📆 Tues 2nd or Wed 10th December
ℹ️ Full details - www.clapa.com/news-item/co...
The Great North Run, the UK's biggest half marathon, is back on 13th September 2026! 🏃
Whether you're an avid runner or looking to get started, why not go the extra mile for CLAPA like Ryan and Jenny?
To register your interest 👉 buff.ly/6UH8fgC
Whether you're an avid runner or looking to get started, why not go the extra mile for CLAPA like Ryan and Jenny?
To register your interest 👉 buff.ly/6UH8fgC
November 21, 2025 at 10:48 AM
The Great North Run, the UK's biggest half marathon, is back on 13th September 2026! 🏃
Whether you're an avid runner or looking to get started, why not go the extra mile for CLAPA like Ryan and Jenny?
To register your interest 👉 buff.ly/6UH8fgC
Whether you're an avid runner or looking to get started, why not go the extra mile for CLAPA like Ryan and Jenny?
To register your interest 👉 buff.ly/6UH8fgC
“It's incredible really. It's not an aesthetic issue - we need dentists for our health because we need to eat with our teeth, and speak with our teeth. And even more so with a cleft.”
📰 Read Sarah’s story – buff.ly/PRGsqgF
#CleftDentalCrisis
📰 Read Sarah’s story – buff.ly/PRGsqgF
#CleftDentalCrisis
November 17, 2025 at 2:06 PM
“It's incredible really. It's not an aesthetic issue - we need dentists for our health because we need to eat with our teeth, and speak with our teeth. And even more so with a cleft.”
📰 Read Sarah’s story – buff.ly/PRGsqgF
#CleftDentalCrisis
📰 Read Sarah’s story – buff.ly/PRGsqgF
#CleftDentalCrisis
Well done to Jack who cycled from London to Brighton, raising over £2,100 for CLAPA 🚴♂️
To read more about Jack's story, visit buff.ly/OCtpiQQ
#FundraisingFriday
To read more about Jack's story, visit buff.ly/OCtpiQQ
#FundraisingFriday
November 14, 2025 at 12:22 PM
Well done to Jack who cycled from London to Brighton, raising over £2,100 for CLAPA 🚴♂️
To read more about Jack's story, visit buff.ly/OCtpiQQ
#FundraisingFriday
To read more about Jack's story, visit buff.ly/OCtpiQQ
#FundraisingFriday
We're delighted that CLAPA CYPC member, Thomas, and his mum, Tamsin, were interviewed by BBC Radio 2 as part of this year's Children in Need 📻
Tune in at 3.20pm to hear them talk about Thomas' cleft journey and the support they've received from CLAPA.
Tune in at 3.20pm to hear them talk about Thomas' cleft journey and the support they've received from CLAPA.
November 13, 2025 at 12:11 PM
We're delighted that CLAPA CYPC member, Thomas, and his mum, Tamsin, were interviewed by BBC Radio 2 as part of this year's Children in Need 📻
Tune in at 3.20pm to hear them talk about Thomas' cleft journey and the support they've received from CLAPA.
Tune in at 3.20pm to hear them talk about Thomas' cleft journey and the support they've received from CLAPA.
Join us for the final CLAPA Lounge of 2025!
Whether you've got a question to ask, an experience to share or simply want to listen to others, we'd love to have you involved.
📆 Tues 16th Dec, 7:30 pm (Zoom)
💙 For adults born with a cleft
🎟️ Book: buff.ly/Aqc0UI6
Whether you've got a question to ask, an experience to share or simply want to listen to others, we'd love to have you involved.
📆 Tues 16th Dec, 7:30 pm (Zoom)
💙 For adults born with a cleft
🎟️ Book: buff.ly/Aqc0UI6
November 12, 2025 at 12:00 PM
Join us for the final CLAPA Lounge of 2025!
Whether you've got a question to ask, an experience to share or simply want to listen to others, we'd love to have you involved.
📆 Tues 16th Dec, 7:30 pm (Zoom)
💙 For adults born with a cleft
🎟️ Book: buff.ly/Aqc0UI6
Whether you've got a question to ask, an experience to share or simply want to listen to others, we'd love to have you involved.
📆 Tues 16th Dec, 7:30 pm (Zoom)
💙 For adults born with a cleft
🎟️ Book: buff.ly/Aqc0UI6
Have your say! 📣
The RCSLT are looking for those with a lived experience of cleft to share their views on their Cleft Lip & Palate Guidance.
To read the guidance and complete the survey (15-20 minutes), please visit buff.ly/MnxsD2W
The RCSLT are looking for those with a lived experience of cleft to share their views on their Cleft Lip & Palate Guidance.
To read the guidance and complete the survey (15-20 minutes), please visit buff.ly/MnxsD2W
November 10, 2025 at 2:34 PM
Have your say! 📣
The RCSLT are looking for those with a lived experience of cleft to share their views on their Cleft Lip & Palate Guidance.
To read the guidance and complete the survey (15-20 minutes), please visit buff.ly/MnxsD2W
The RCSLT are looking for those with a lived experience of cleft to share their views on their Cleft Lip & Palate Guidance.
To read the guidance and complete the survey (15-20 minutes), please visit buff.ly/MnxsD2W
📣 Could you be CLAPA's new Digital Fundraising Trustee?
📅 Applications close: 9am, Monday 24th November
To find out more or apply, visit buff.ly/FFXxoxc
📅 Applications close: 9am, Monday 24th November
To find out more or apply, visit buff.ly/FFXxoxc
November 10, 2025 at 10:21 AM
📣 Could you be CLAPA's new Digital Fundraising Trustee?
📅 Applications close: 9am, Monday 24th November
To find out more or apply, visit buff.ly/FFXxoxc
📅 Applications close: 9am, Monday 24th November
To find out more or apply, visit buff.ly/FFXxoxc
The Kiltwalk is Scotland's favourite mass participation walking event and it’s back for 2026!
📍 Take part in Glasgow, Aberdeen, Dundee or Edinburgh
👟 Choose your distance - options range from 3-23 miles
Find out more: buff.ly/3IJSXay
#FundraisingFriday
📍 Take part in Glasgow, Aberdeen, Dundee or Edinburgh
👟 Choose your distance - options range from 3-23 miles
Find out more: buff.ly/3IJSXay
#FundraisingFriday
November 7, 2025 at 3:33 PM
The Kiltwalk is Scotland's favourite mass participation walking event and it’s back for 2026!
📍 Take part in Glasgow, Aberdeen, Dundee or Edinburgh
👟 Choose your distance - options range from 3-23 miles
Find out more: buff.ly/3IJSXay
#FundraisingFriday
📍 Take part in Glasgow, Aberdeen, Dundee or Edinburgh
👟 Choose your distance - options range from 3-23 miles
Find out more: buff.ly/3IJSXay
#FundraisingFriday
Fiona has been desperately seeking an NHS dentist for more than two years.
“A private dentist is just unaffordable. There are monthly dental plans but my Pierre Robin Syndrome complications put me in a highly expensive band."
📰 Read Fiona’s story – www.clapa.com/cleftdentalc...
#CleftDentalCrisis
“A private dentist is just unaffordable. There are monthly dental plans but my Pierre Robin Syndrome complications put me in a highly expensive band."
📰 Read Fiona’s story – www.clapa.com/cleftdentalc...
#CleftDentalCrisis
November 7, 2025 at 10:45 AM
Fiona has been desperately seeking an NHS dentist for more than two years.
“A private dentist is just unaffordable. There are monthly dental plans but my Pierre Robin Syndrome complications put me in a highly expensive band."
📰 Read Fiona’s story – www.clapa.com/cleftdentalc...
#CleftDentalCrisis
“A private dentist is just unaffordable. There are monthly dental plans but my Pierre Robin Syndrome complications put me in a highly expensive band."
📰 Read Fiona’s story – www.clapa.com/cleftdentalc...
#CleftDentalCrisis
Come along and explore sound and babble play techniques, to help your little one gain speech and language skills💬
📆 Tuesday 2nd December at 10am
🔵 For parents/carers and grandparents of a child born with a cleft lip and/or palate
🎟️ Book your free place now: clapa.formstack.com/forms/babble...
📆 Tuesday 2nd December at 10am
🔵 For parents/carers and grandparents of a child born with a cleft lip and/or palate
🎟️ Book your free place now: clapa.formstack.com/forms/babble...
November 6, 2025 at 9:43 AM
Come along and explore sound and babble play techniques, to help your little one gain speech and language skills💬
📆 Tuesday 2nd December at 10am
🔵 For parents/carers and grandparents of a child born with a cleft lip and/or palate
🎟️ Book your free place now: clapa.formstack.com/forms/babble...
📆 Tuesday 2nd December at 10am
🔵 For parents/carers and grandparents of a child born with a cleft lip and/or palate
🎟️ Book your free place now: clapa.formstack.com/forms/babble...
Do you want to help shape the future of CLAPA and support for the cleft community? 📣
We're running Adult and Family Co-development workshops in December and we want you to join!
📆 Tuesday 2nd OR Wednesday 10th December
ℹ️ Full details: buff.ly/kBffxAu
We're running Adult and Family Co-development workshops in December and we want you to join!
📆 Tuesday 2nd OR Wednesday 10th December
ℹ️ Full details: buff.ly/kBffxAu
November 5, 2025 at 11:53 AM
Do you want to help shape the future of CLAPA and support for the cleft community? 📣
We're running Adult and Family Co-development workshops in December and we want you to join!
📆 Tuesday 2nd OR Wednesday 10th December
ℹ️ Full details: buff.ly/kBffxAu
We're running Adult and Family Co-development workshops in December and we want you to join!
📆 Tuesday 2nd OR Wednesday 10th December
ℹ️ Full details: buff.ly/kBffxAu
Join CLAPA at our next Antenatal Support Group for new and expectant parents/carers with a cleft diagnosis.
📆 Monday 24th November @ 7:30pm via Zoom
🎟️ Book your place: clapa.formstack.com/forms/antena...
Kindly funded by Smile Train.
📆 Monday 24th November @ 7:30pm via Zoom
🎟️ Book your place: clapa.formstack.com/forms/antena...
Kindly funded by Smile Train.
November 4, 2025 at 12:12 PM
Join CLAPA at our next Antenatal Support Group for new and expectant parents/carers with a cleft diagnosis.
📆 Monday 24th November @ 7:30pm via Zoom
🎟️ Book your place: clapa.formstack.com/forms/antena...
Kindly funded by Smile Train.
📆 Monday 24th November @ 7:30pm via Zoom
🎟️ Book your place: clapa.formstack.com/forms/antena...
Kindly funded by Smile Train.
After decades of poor dental treatment, Anne needed hospital treatment for gum disease – treatment that could’ve been avoided if her dentists had been more knowledgeable about cleft.
📰 Read Anne’s story – buff.ly/n0I70Hp
📰 Read Anne’s story – buff.ly/n0I70Hp
November 3, 2025 at 12:04 PM
After decades of poor dental treatment, Anne needed hospital treatment for gum disease – treatment that could’ve been avoided if her dentists had been more knowledgeable about cleft.
📰 Read Anne’s story – buff.ly/n0I70Hp
📰 Read Anne’s story – buff.ly/n0I70Hp
A huge thank you to CLAPA trustee and cleft nurse, Izzy, and her friend Ricardo, who completed Swim Serpentine last month 🏊♂️
The duo swam in the annual event at London's Hyde Park, raising an incredible £2,400 for CLAPA 👏
#FundraisingFriday
The duo swam in the annual event at London's Hyde Park, raising an incredible £2,400 for CLAPA 👏
#FundraisingFriday
October 31, 2025 at 2:16 PM
A huge thank you to CLAPA trustee and cleft nurse, Izzy, and her friend Ricardo, who completed Swim Serpentine last month 🏊♂️
The duo swam in the annual event at London's Hyde Park, raising an incredible £2,400 for CLAPA 👏
#FundraisingFriday
The duo swam in the annual event at London's Hyde Park, raising an incredible £2,400 for CLAPA 👏
#FundraisingFriday
☑️ 2500 Signatures
Thank you to everyone who has signed our petition to end the cleft dental crisis.
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
📝 Sign our petition buff.ly/eMDd4qB
Thank you to everyone who has signed our petition to end the cleft dental crisis.
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
📝 Sign our petition buff.ly/eMDd4qB
October 31, 2025 at 10:21 AM
☑️ 2500 Signatures
Thank you to everyone who has signed our petition to end the cleft dental crisis.
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
📝 Sign our petition buff.ly/eMDd4qB
Thank you to everyone who has signed our petition to end the cleft dental crisis.
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
📝 Sign our petition buff.ly/eMDd4qB
🚨 We're hiring 🚨
We're looking for a Major Donors and Partnerships Coordinator to join our Fundraising team!
📆 Applications close: 9am, Monday 17th November
To find out more or apply, visit buff.ly/YXX3IiK
We're looking for a Major Donors and Partnerships Coordinator to join our Fundraising team!
📆 Applications close: 9am, Monday 17th November
To find out more or apply, visit buff.ly/YXX3IiK
October 30, 2025 at 4:00 PM
🚨 We're hiring 🚨
We're looking for a Major Donors and Partnerships Coordinator to join our Fundraising team!
📆 Applications close: 9am, Monday 17th November
To find out more or apply, visit buff.ly/YXX3IiK
We're looking for a Major Donors and Partnerships Coordinator to join our Fundraising team!
📆 Applications close: 9am, Monday 17th November
To find out more or apply, visit buff.ly/YXX3IiK
After years of painful and preventable treatment, Claudia had to sign up with a private dentist because of the lack of understanding and care in NHS dentistry.
📰 Read Claudia's story buff.ly/JwIZ5GX
📰 Read Claudia's story buff.ly/JwIZ5GX
October 28, 2025 at 4:11 PM
After years of painful and preventable treatment, Claudia had to sign up with a private dentist because of the lack of understanding and care in NHS dentistry.
📰 Read Claudia's story buff.ly/JwIZ5GX
📰 Read Claudia's story buff.ly/JwIZ5GX
Win BIG and support CLAPA in the All Weathers Lottery!🎉 Sign up in October, and CLAPA will receive £10 for each new player!
🔗 Play now for your chance to win £25,000 and raise donations for CLAPA - sign up at buff.ly/kgGwGpW
🔗 Play now for your chance to win £25,000 and raise donations for CLAPA - sign up at buff.ly/kgGwGpW
October 28, 2025 at 1:05 PM
Win BIG and support CLAPA in the All Weathers Lottery!🎉 Sign up in October, and CLAPA will receive £10 for each new player!
🔗 Play now for your chance to win £25,000 and raise donations for CLAPA - sign up at buff.ly/kgGwGpW
🔗 Play now for your chance to win £25,000 and raise donations for CLAPA - sign up at buff.ly/kgGwGpW
Join us for our Parent Cleft Journeys event this November!
🟡 Open to all parents/carers of a child born with a cleft
ℹ️ Seek advice/info from others
🗣️ Share your own experience
📆 Wednesday 12th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/qtRHtMF
🟡 Open to all parents/carers of a child born with a cleft
ℹ️ Seek advice/info from others
🗣️ Share your own experience
📆 Wednesday 12th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/qtRHtMF
October 26, 2025 at 12:32 PM
Join us for our Parent Cleft Journeys event this November!
🟡 Open to all parents/carers of a child born with a cleft
ℹ️ Seek advice/info from others
🗣️ Share your own experience
📆 Wednesday 12th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/qtRHtMF
🟡 Open to all parents/carers of a child born with a cleft
ℹ️ Seek advice/info from others
🗣️ Share your own experience
📆 Wednesday 12th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/qtRHtMF
CLAPA was delighted to receive a cheque for £1,500 at the Wings Club cheque presentation on Friday 10th October.
Thank you to Wings Club for your generosity and continued support of CLAPA and other vital causes in our community 💙 #FundraisingFriday
Thank you to Wings Club for your generosity and continued support of CLAPA and other vital causes in our community 💙 #FundraisingFriday
October 24, 2025 at 12:06 PM
CLAPA was delighted to receive a cheque for £1,500 at the Wings Club cheque presentation on Friday 10th October.
Thank you to Wings Club for your generosity and continued support of CLAPA and other vital causes in our community 💙 #FundraisingFriday
Thank you to Wings Club for your generosity and continued support of CLAPA and other vital causes in our community 💙 #FundraisingFriday
Join us for an informal evening on the topic of 'Genetics and Related Conditions' for adults born with a cleft lip and/or palate.
📆 Tuesday 11th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/tMoBW6C
📆 Tuesday 11th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/tMoBW6C
October 23, 2025 at 11:04 AM
Join us for an informal evening on the topic of 'Genetics and Related Conditions' for adults born with a cleft lip and/or palate.
📆 Tuesday 11th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/tMoBW6C
📆 Tuesday 11th November, 7.30pm (Zoom)
🎫 Book your place: buff.ly/tMoBW6C
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
You can help in three simple steps:
✊ Sign our petition
💬 Email your local politician
📣 Share this post
Join the campaign: buff.ly/AiNGl9Z
You can help in three simple steps:
✊ Sign our petition
💬 Email your local politician
📣 Share this post
Join the campaign: buff.ly/AiNGl9Z
October 22, 2025 at 12:04 PM
CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone.
You can help in three simple steps:
✊ Sign our petition
💬 Email your local politician
📣 Share this post
Join the campaign: buff.ly/AiNGl9Z
You can help in three simple steps:
✊ Sign our petition
💬 Email your local politician
📣 Share this post
Join the campaign: buff.ly/AiNGl9Z
Join us this Wednesday 22nd for a Dentistry and Dental Hygiene Infomation Evening on Zoom 🦷
The event will be hosted by a Dental Therapist/Hygienist and a Consultant in Paediatric Dentistry, both of whom specialise in cleft.
Sign up ➡️ clapa.formstack.com/forms/dentis...
The event will be hosted by a Dental Therapist/Hygienist and a Consultant in Paediatric Dentistry, both of whom specialise in cleft.
Sign up ➡️ clapa.formstack.com/forms/dentis...
October 21, 2025 at 11:03 AM
Join us this Wednesday 22nd for a Dentistry and Dental Hygiene Infomation Evening on Zoom 🦷
The event will be hosted by a Dental Therapist/Hygienist and a Consultant in Paediatric Dentistry, both of whom specialise in cleft.
Sign up ➡️ clapa.formstack.com/forms/dentis...
The event will be hosted by a Dental Therapist/Hygienist and a Consultant in Paediatric Dentistry, both of whom specialise in cleft.
Sign up ➡️ clapa.formstack.com/forms/dentis...
Join us at our Discussion Evening for parents/carers on Tuesday 28th October, where we will share experiences and answer questions on the topic of 'Mental Health & Wellbeing' 🧠
📆 Tues 28th October, 7.30pm (Zoom)
🎫 Book your free place: clapa.formstack.com/forms/mental...
📆 Tues 28th October, 7.30pm (Zoom)
🎫 Book your free place: clapa.formstack.com/forms/mental...
October 20, 2025 at 11:17 AM
Join us at our Discussion Evening for parents/carers on Tuesday 28th October, where we will share experiences and answer questions on the topic of 'Mental Health & Wellbeing' 🧠
📆 Tues 28th October, 7.30pm (Zoom)
🎫 Book your free place: clapa.formstack.com/forms/mental...
📆 Tues 28th October, 7.30pm (Zoom)
🎫 Book your free place: clapa.formstack.com/forms/mental...