Claire
@clairabelle.bsky.social
Mostly a lurker as I have pretty severe cognitive dysfunction these days, please be nice if I do post. ME/CFS, disability and chronic illness. Used to be a bioscientist. PhD. She/They
Reposted by Claire
TL;DR
The genes found to be associated with #MECFS in the DecodeME study are associated with:
✨autoimmune conditions
✨innate immune response
✨response to viral infection
✨mitochondrial disorders
✨neurological disease
✨inborn errors of metabolism
✨pain/nocioception
✨cellular integrity/autophagy✨
The genes found to be associated with #MECFS in the DecodeME study are associated with:
✨autoimmune conditions
✨innate immune response
✨response to viral infection
✨mitochondrial disorders
✨neurological disease
✨inborn errors of metabolism
✨pain/nocioception
✨cellular integrity/autophagy✨
August 7, 2025 at 3:49 PM
TL;DR
The genes found to be associated with #MECFS in the DecodeME study are associated with:
✨autoimmune conditions
✨innate immune response
✨response to viral infection
✨mitochondrial disorders
✨neurological disease
✨inborn errors of metabolism
✨pain/nocioception
✨cellular integrity/autophagy✨
The genes found to be associated with #MECFS in the DecodeME study are associated with:
✨autoimmune conditions
✨innate immune response
✨response to viral infection
✨mitochondrial disorders
✨neurological disease
✨inborn errors of metabolism
✨pain/nocioception
✨cellular integrity/autophagy✨
Actually it has been recommended by disability organisations to ask for your assessment to be recorded/record it yourself for a while now. They are less likely to invent stuff/write down the opposite of what you actually told them if they know they are being recorded. So this is maybe a good thing?
March 18, 2025 at 1:50 PM
Actually it has been recommended by disability organisations to ask for your assessment to be recorded/record it yourself for a while now. They are less likely to invent stuff/write down the opposite of what you actually told them if they know they are being recorded. So this is maybe a good thing?
Yes, absolutely the same for me. I always wake up from a dream with a dull headache/hot brain feeling. I learned how to lucid dream years ago and had to stop because it was giving me PEM and making all my symptoms worse. Even sleeping is exhausting with this stupid illness.
February 1, 2025 at 12:03 PM
Yes, absolutely the same for me. I always wake up from a dream with a dull headache/hot brain feeling. I learned how to lucid dream years ago and had to stop because it was giving me PEM and making all my symptoms worse. Even sleeping is exhausting with this stupid illness.