Chronic Spicy Disaster
@chronicallyspicy.bsky.social
I live with chronic illness/pain due to a genetic disease called Elhers Danlos & its co-morbidities MCAS & POTS. I also have CPRS, one of the most painful conditions known.
Pinned
Introducing myself. #chronicillness #chronicpain #chronicillnessawareness #chronicillnesswarrior #chronicpainawareness #chronicpainwarrior #ehlersdanlos #ehlersdanlosawareness #potssyndrome #potsaware...
TikTok video by Chronic Spicy Disaster
www.tiktok.com
This is my introduction video from TikTok. I’ll only post a few pertinent ones from TikTok here and then after that I will be posting new content.
www.tiktok.com/t/ZT2rnP2uq/
www.tiktok.com/t/ZT2rnP2uq/
It’s hard to believe that so many things can be going on at the same time. Lol
I may be physically exhausted daily but it’s the emotional exhaustion that hits me the hardest.
But everyday I fight.
#chronicillness #chronicpain #hEDS #MCAS #POTS #spoonielife
I may be physically exhausted daily but it’s the emotional exhaustion that hits me the hardest.
But everyday I fight.
#chronicillness #chronicpain #hEDS #MCAS #POTS #spoonielife
October 26, 2025 at 2:09 PM
It’s hard to believe that so many things can be going on at the same time. Lol
I may be physically exhausted daily but it’s the emotional exhaustion that hits me the hardest.
But everyday I fight.
#chronicillness #chronicpain #hEDS #MCAS #POTS #spoonielife
I may be physically exhausted daily but it’s the emotional exhaustion that hits me the hardest.
But everyday I fight.
#chronicillness #chronicpain #hEDS #MCAS #POTS #spoonielife
Omg! I didn’t realize it’s been a month since I last posted! I’ve been so busy with Dr. appts, my daughter got married in June, & my son & his girlfriend had their baby in July! I’ve also been flaring badly because of the heat. Bleh! Hope you are all well!
August 5, 2025 at 2:48 AM
Omg! I didn’t realize it’s been a month since I last posted! I’ve been so busy with Dr. appts, my daughter got married in June, & my son & his girlfriend had their baby in July! I’ve also been flaring badly because of the heat. Bleh! Hope you are all well!
Hahahaha some days it feels this way.
I had knee surgery on Monday and held class on my conditions in pre-op and recovery. Lol
I appreciated how much they wanted to learn in order to make my stay more comfortable.
#ehlersdanlos #mcas #crps #chronicpain #chronicallyill
I had knee surgery on Monday and held class on my conditions in pre-op and recovery. Lol
I appreciated how much they wanted to learn in order to make my stay more comfortable.
#ehlersdanlos #mcas #crps #chronicpain #chronicallyill
June 12, 2025 at 12:52 PM
Hahahaha some days it feels this way.
I had knee surgery on Monday and held class on my conditions in pre-op and recovery. Lol
I appreciated how much they wanted to learn in order to make my stay more comfortable.
#ehlersdanlos #mcas #crps #chronicpain #chronicallyill
I had knee surgery on Monday and held class on my conditions in pre-op and recovery. Lol
I appreciated how much they wanted to learn in order to make my stay more comfortable.
#ehlersdanlos #mcas #crps #chronicpain #chronicallyill
Connective tissues have five functions
Protection, Support, Binding, Transport, Immunity
Connective Tissue Proper
Tendons, ligaments, dermis, arteries & cardiac tissues, muscles, nerves, lymphatic organs, fat tissues, cells including the brain & spinal cord, lining of GI tract & other hollow organs
Protection, Support, Binding, Transport, Immunity
Connective Tissue Proper
Tendons, ligaments, dermis, arteries & cardiac tissues, muscles, nerves, lymphatic organs, fat tissues, cells including the brain & spinal cord, lining of GI tract & other hollow organs
May 1, 2025 at 11:47 PM
Connective tissues have five functions
Protection, Support, Binding, Transport, Immunity
Connective Tissue Proper
Tendons, ligaments, dermis, arteries & cardiac tissues, muscles, nerves, lymphatic organs, fat tissues, cells including the brain & spinal cord, lining of GI tract & other hollow organs
Protection, Support, Binding, Transport, Immunity
Connective Tissue Proper
Tendons, ligaments, dermis, arteries & cardiac tissues, muscles, nerves, lymphatic organs, fat tissues, cells including the brain & spinal cord, lining of GI tract & other hollow organs
Supportive Connective Tissue
Bones, cartilages covering articulating joints and bone ends, elastic cartilage of ears and epiglottis, fibrocartilage of the vertebrae, knee meniscus, and other compressing cartilage
Fluid Connective Tissue
Blood
Bones, cartilages covering articulating joints and bone ends, elastic cartilage of ears and epiglottis, fibrocartilage of the vertebrae, knee meniscus, and other compressing cartilage
Fluid Connective Tissue
Blood
May 1, 2025 at 11:46 PM
Supportive Connective Tissue
Bones, cartilages covering articulating joints and bone ends, elastic cartilage of ears and epiglottis, fibrocartilage of the vertebrae, knee meniscus, and other compressing cartilage
Fluid Connective Tissue
Blood
Bones, cartilages covering articulating joints and bone ends, elastic cartilage of ears and epiglottis, fibrocartilage of the vertebrae, knee meniscus, and other compressing cartilage
Fluid Connective Tissue
Blood
Ehlers Danlos Syndrome
is Complex it affects the body’s connective tissues. 80% of the human body is composed of connective tissues. This means that a person with EDS may have issues with as much as 80% of their body.
is Complex it affects the body’s connective tissues. 80% of the human body is composed of connective tissues. This means that a person with EDS may have issues with as much as 80% of their body.
May 1, 2025 at 11:35 PM
Ehlers Danlos Syndrome
is Complex it affects the body’s connective tissues. 80% of the human body is composed of connective tissues. This means that a person with EDS may have issues with as much as 80% of their body.
is Complex it affects the body’s connective tissues. 80% of the human body is composed of connective tissues. This means that a person with EDS may have issues with as much as 80% of their body.
How I feel on any given day can change by the hour. I’m tired of not being able to make plans in advance. Good thing my granddaughter likes spontaneity!
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #cranialcervicalinstability #spoonie #spoonielife #alloutofspoons #nrspain
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #cranialcervicalinstability #spoonie #spoonielife #alloutofspoons #nrspain
April 7, 2025 at 3:32 AM
How I feel on any given day can change by the hour. I’m tired of not being able to make plans in advance. Good thing my granddaughter likes spontaneity!
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #cranialcervicalinstability #spoonie #spoonielife #alloutofspoons #nrspain
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #cranialcervicalinstability #spoonie #spoonielife #alloutofspoons #nrspain
I’m currently trying to recover because I pushed myself too hard this weekend. I hate admitting that I can’t do things like I used to. To be cont…
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #chronicfatigue #pem #spoonie #spoonielife #alloutofspoons
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #chronicfatigue #pem #spoonie #spoonielife #alloutofspoons
April 7, 2025 at 3:22 AM
I’m currently trying to recover because I pushed myself too hard this weekend. I hate admitting that I can’t do things like I used to. To be cont…
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #chronicfatigue #pem #spoonie #spoonielife #alloutofspoons
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #chronicfatigue #pem #spoonie #spoonielife #alloutofspoons
This! All of this! I have learned to mask too well and it’s been to my detriment. To be cont…
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #spoonie #spoonielife #alloutofspoons
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #spoonie #spoonielife #alloutofspoons
April 7, 2025 at 3:14 AM
This! All of this! I have learned to mask too well and it’s been to my detriment. To be cont…
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #spoonie #spoonielife #alloutofspoons
#chronicillness #chronicpain #ehlersdanlos #mcas #pots #crps #spoonie #spoonielife #alloutofspoons
Some days it just all gets to be too much. I am generally a very positive person and try to not let things get to me. But sometimes when things just pile up too fast and too high I have a good cry. But then I get myself up, dust myself off, and start all over again.
#chronicpain #eds #crps #nrspain
#chronicpain #eds #crps #nrspain
March 14, 2025 at 10:55 PM
Some days it just all gets to be too much. I am generally a very positive person and try to not let things get to me. But sometimes when things just pile up too fast and too high I have a good cry. But then I get myself up, dust myself off, and start all over again.
#chronicpain #eds #crps #nrspain
#chronicpain #eds #crps #nrspain
And it sometimes ends up being detrimental to us because we aren’t given the proper pain control we need. I function at a 7-8 daily which would mostly likely be a much higher number for someone that doesn’t live in constant pain.
March 12, 2025 at 12:47 AM
And it sometimes ends up being detrimental to us because we aren’t given the proper pain control we need. I function at a 7-8 daily which would mostly likely be a much higher number for someone that doesn’t live in constant pain.
I have been having thee absolute WORST brain fog of late. My attention span is that of a gnat!
More than one of my conditions cause brain fog unfortunately and it feels like they have all teamed up on me. Lol
#chronicillness #chronicpain #nrspain #spoonie
More than one of my conditions cause brain fog unfortunately and it feels like they have all teamed up on me. Lol
#chronicillness #chronicpain #nrspain #spoonie
March 9, 2025 at 8:19 PM
I have been having thee absolute WORST brain fog of late. My attention span is that of a gnat!
More than one of my conditions cause brain fog unfortunately and it feels like they have all teamed up on me. Lol
#chronicillness #chronicpain #nrspain #spoonie
More than one of my conditions cause brain fog unfortunately and it feels like they have all teamed up on me. Lol
#chronicillness #chronicpain #nrspain #spoonie
Living with chronic pain can be hard. Especially when you suddenly get side tackled by something you never saw coming. It took me a long time to learn the new me & how to work with my pain & find a balance.The key is to try and pace yourself. Set a timer. Do things in little increments.
February 21, 2025 at 5:25 PM
Living with chronic pain can be hard. Especially when you suddenly get side tackled by something you never saw coming. It took me a long time to learn the new me & how to work with my pain & find a balance.The key is to try and pace yourself. Set a timer. Do things in little increments.
A bit on MCAS. It’s a pretty complex illness so we’ll definitely be coming back to it.
www.tiktok.com/@spicy_disas...
www.tiktok.com/@spicy_disas...
A day in the life of Misty. #mcas #mcasawareness #chronicillness #chronicillnessawareness #chronicpain #chronicpainawareness #ehlersdanlos #ehlersdanlosawareness #potssyndrome #potsawareness #spoonie ...
TikTok video by Chronic Spicy Disaster
www.tiktok.com
February 7, 2025 at 9:28 PM
A bit on MCAS. It’s a pretty complex illness so we’ll definitely be coming back to it.
www.tiktok.com/@spicy_disas...
www.tiktok.com/@spicy_disas...
I was invited to join Kimberly on her Podcast, The Chronic Truth, to discuss living with chronic illness/pain. I do not have a date or time as of yet for when it will air but will let you know as soon as possible.
February 6, 2025 at 8:32 PM
I was invited to join Kimberly on her Podcast, The Chronic Truth, to discuss living with chronic illness/pain. I do not have a date or time as of yet for when it will air but will let you know as soon as possible.
This is my introduction video from TikTok. I’ll only post a few pertinent ones from TikTok here and then after that I will be posting new content.
www.tiktok.com/t/ZT2rnP2uq/
www.tiktok.com/t/ZT2rnP2uq/
Introducing myself. #chronicillness #chronicpain #chronicillnessawareness #chronicillnesswarrior #chronicpainawareness #chronicpainwarrior #ehlersdanlos #ehlersdanlosawareness #potssyndrome #potsaware...
TikTok video by Chronic Spicy Disaster
www.tiktok.com
February 5, 2025 at 10:41 PM
This is my introduction video from TikTok. I’ll only post a few pertinent ones from TikTok here and then after that I will be posting new content.
www.tiktok.com/t/ZT2rnP2uq/
www.tiktok.com/t/ZT2rnP2uq/