Christin Ulrich
@christinulrich.bsky.social
Reposted by Christin Ulrich
My daughter Veda has Sanfilippo syndrome. It's a rare, terminal illness that currently has no FDA approved treatment. We are busy raising awareness and fundraising for a cure. 💜
November 17, 2024 at 10:21 PM
My daughter Veda has Sanfilippo syndrome. It's a rare, terminal illness that currently has no FDA approved treatment. We are busy raising awareness and fundraising for a cure. 💜