Clare McGrath
@chmacg.bsky.social
Exhausted full-time Carer of adult son. Angry about how shit Adult Social Care is for most and trying to influence positive change locally one small step at a time. Currently trying to learn the legislation because someone has to.
Did you see that the much lauded school census data on DS is also a damp squib? The 'DS data collection' consisted of schools being asked to identify the primary and secondary impactful educational needs for each pupil - with a new DS code being one of the options and therefore not mandatory. 😂
September 5, 2025 at 7:02 PM
Did you see that the much lauded school census data on DS is also a damp squib? The 'DS data collection' consisted of schools being asked to identify the primary and secondary impactful educational needs for each pupil - with a new DS code being one of the options and therefore not mandatory. 😂
Such elitism is already having a negative impact and I agree, it is hugely irritating.
May 16, 2025 at 6:43 PM
Such elitism is already having a negative impact and I agree, it is hugely irritating.
Whilst I appreciate that organisations like @dsa-uk.bsky.social have people w DS at their heart, I was sad at two of their recent posts - mainstream EHCPs and social care charging - both of which could have referenced 'people with LD including those with DS'. Neither issue was DS exclusive. 😔
May 16, 2025 at 4:50 PM
Whilst I appreciate that organisations like @dsa-uk.bsky.social have people w DS at their heart, I was sad at two of their recent posts - mainstream EHCPs and social care charging - both of which could have referenced 'people with LD including those with DS'. Neither issue was DS exclusive. 😔
Happy birthday! Have a lovely day 🎂🕺🌞
April 11, 2025 at 7:41 AM
Happy birthday! Have a lovely day 🎂🕺🌞
He then nailed his colours to the mast by proposing amendments to our abortion laws making it harder to have an abortion if the fetus has DS.
Many people think the Act is exclusive and divisive and that all people with LD (ID) should have equal access to the measures that ensure they flourish.
Many people think the Act is exclusive and divisive and that all people with LD (ID) should have equal access to the measures that ensure they flourish.
March 29, 2025 at 6:40 PM
He then nailed his colours to the mast by proposing amendments to our abortion laws making it harder to have an abortion if the fetus has DS.
Many people think the Act is exclusive and divisive and that all people with LD (ID) should have equal access to the measures that ensure they flourish.
Many people think the Act is exclusive and divisive and that all people with LD (ID) should have equal access to the measures that ensure they flourish.
Here in the UK, the 'Down Syndrome Act Guidance' is due to be published in the summer. It was instigated by a Conservative Member of Parliament aided by a number of anti-abortionists from the DS community.
March 29, 2025 at 6:40 PM
Here in the UK, the 'Down Syndrome Act Guidance' is due to be published in the summer. It was instigated by a Conservative Member of Parliament aided by a number of anti-abortionists from the DS community.