CharCharBinx
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charcharbinxxx.bsky.social
CharCharBinx
@charcharbinxxx.bsky.social
31/she/her
Bi 🩷💜💙
Equestrian 🐴, cat mom of 2 🐱🐱
hEDS and Co. 🦓🌻🧬🩻
AuDHD and Mental Illnesses ♾️💊
Lover of memes and multimedia art and such :3
I sang it to the "Making my way downtown..." tune lol
November 19, 2025 at 5:30 PM
"We're like brothers; only closer."
May 18, 2025 at 2:12 AM
The sweetest "Dream Land" lol :3
April 25, 2025 at 12:15 AM
Saw this gem recently lmao
April 13, 2025 at 10:10 AM
Ah ok. Ya my anxiety does that too! Gatta remind myself that the worst thing a person can do over the phone is yell and I can always leave the convo since it's not in person. Lol
March 4, 2025 at 2:05 PM
Aww thanks! His name is Bosley; a school horse at Rock Creek Park Horse Canter in D.C. off Military Rd. during a lesson. Pic was taken in 2015. My condolences for your furbaby <3
March 4, 2025 at 2:04 PM
ZocDoc could help figure out appt dates/times and phone numbers
March 4, 2025 at 12:24 AM
Yes! See the person, not the illness(es). 🫡🩷
February 26, 2025 at 10:00 PM
The Ehlers Danlos society webpage has a list of doctors and you can narrow it down to the city. HEDS is the only one that can't be genetically found (dna), but you can still get clinically diagnosed. Good luck! <3
February 25, 2025 at 7:36 PM
I found out about mine last year along with hEDS 🥲🙄 *snap crackle pop while feeding the cats* lol
February 19, 2025 at 7:54 PM
Mine is fine too lmao
February 11, 2025 at 2:58 AM
Accompanied by all the stims you could want :3 *bliss*
February 10, 2025 at 8:43 PM
Oh wow, my condolences! Ya women seem to be affected more than men and I believe a higher genetic risk of passing it (still reading up on it). I'm not bedridden yet but I have semi-retired so I can just preserve my body a bit better. 24 years of horses can really mess you up lmao!
February 9, 2025 at 10:48 PM
And ligament/tendon tears can be common. And [small fiber] neuropathy can cause nerve damage that leads to numbness/tingling/pain.
February 9, 2025 at 3:49 PM
*prehensile eyes* lmfao
February 4, 2025 at 1:28 PM
Not everyone needs the same care but I'll list a few things to start with; bracing joints, rollator for mobility, IV infusions and compression socks for POTS, Zofran for nausea, PT, Cardiologist for heart, Gastroenterologist for gut, and Rheumatologist. For guidance only (and to anyone reading this)
February 2, 2025 at 3:17 PM
Caring for yourself (since diagnosed) will be a learning curve but a thing you can do is research it first, find out what bothers you most, and find a doc or two to help you with those. As for fam education, find websites about EDS (Wiki/Mayo Clinic and Ehlers Danlos Society) and how it impacts you.
February 2, 2025 at 3:10 PM
Ya that's weird af. We need to weed out the bots/fakers cuz our eds community suffers enough already. I got diagnosed 10 months ago so if you need any advice lmk. And don't let a doctor's one hour lecture from 15 years ago dictate your while life experiencing it first-hand. Welcome to the Dazzle! <3
January 30, 2025 at 5:06 PM
He said it too...
January 30, 2025 at 4:01 PM
Strange... she said the same thing....
January 30, 2025 at 4:01 PM
Multivitamins for overall health, Zofran (10mg) and MJ as needed for Gastroparesis nausea/vomiting, compression socks for blood pooling, extra salt for POTS, some bracing for tendonitis/neck brace for Craniocervical Instability, walker, and Ketamine infusions (every 8 weeks) for pain management.
January 29, 2025 at 12:16 AM