Cystic Fibrosis Research Institute
@cfricurecf.bsky.social
CFRI funds research, provides educational and personal support, and spreads awareness to #curecf. For more, visit cfri.org
Tolka AI Therapeutics is building a biobank to push forward personalized phage therapy for MABC.
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
November 23, 2025 at 3:49 AM
Tolka AI Therapeutics is building a biobank to push forward personalized phage therapy for MABC.
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
MABC in your respiratory cultures? Live in the US, Australia, UK, or Canada?
You may qualify to contribute—2 simple sputum samples from home.
Learn More: tolka.ai/work/biobank...
#GivingTuesday is coming up on Dec 2! 💜
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
November 21, 2025 at 6:02 AM
#GivingTuesday is coming up on Dec 2! 💜
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Your gift to CFRI will be matched dollar for dollar up to $20,000—fueling critical CF research nationwide.
Why wait? You can donate today and make double the impact.
🔗 Donate now: cfri.app.neoncrm.com/forms/38
Our friends @ #NORD are hosting a must-attend webinar for rare disease families! Learn how to navigate open enrollment and choose the plan that keeps you covered. Replay will be shared to those who register!
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
November 19, 2025 at 12:01 AM
Our friends @ #NORD are hosting a must-attend webinar for rare disease families! Learn how to navigate open enrollment and choose the plan that keeps you covered. Replay will be shared to those who register!
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
📅 WED Nov. 19, 2025 - 2PM ET
rarediseases.zoom.us/webinar/regi...
CF + CFRD = a lot to manage.
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
November 15, 2025 at 2:54 AM
CF + CFRD = a lot to manage.
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
On #WorldDiabetesDay, we honor those with CF who are balancing treatments, meals & blood sugars every day.
You’re not alone 💙
Workshop: Mindfulness to Find Peace and Joy Tues, Dec 9th @ 5pm PT. CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with #cysticfibrosis. Led by Julie Desch, MD. curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
November 12, 2025 at 3:29 AM
Workshop: Mindfulness to Find Peace and Joy Tues, Dec 9th @ 5pm PT. CFRI is hosting quarterly workshops focused on aspects of mindfulness for those living with #cysticfibrosis. Led by Julie Desch, MD. curecf.cfri.org/PeaceJoy
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
Sponsored by Viatris, Vertex Pharmaceuticals, Genentech & private donors.
💜 Living with #CysticFibrosis but can’t use CFTR modulators? You’re not alone. Join our monthly online Support Group — 4th Thursdays, 5PM PT / 8PM ET. Facilitated by Sonya Haggett, LCSW, a social worker living with CF.
Register: curecf.cfri.org/SupGrpMod
Register: curecf.cfri.org/SupGrpMod
November 6, 2025 at 11:31 PM
💜 Living with #CysticFibrosis but can’t use CFTR modulators? You’re not alone. Join our monthly online Support Group — 4th Thursdays, 5PM PT / 8PM ET. Facilitated by Sonya Haggett, LCSW, a social worker living with CF.
Register: curecf.cfri.org/SupGrpMod
Register: curecf.cfri.org/SupGrpMod
Ready to recharge before the holidays?Join CFRI’s free virtual #wellnessclasses designed for the CF community & their loved ones. No experience needed—just show up & move! www.cfri.org/wellness-cla...
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
November 6, 2025 at 12:35 AM
Ready to recharge before the holidays?Join CFRI’s free virtual #wellnessclasses designed for the CF community & their loved ones. No experience needed—just show up & move! www.cfri.org/wellness-cla...
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
Made possible with support from Viatris, Vertex Pharmaceuticals, and private donors.
We want to hear your story! CFRI is creating a video about diversity in the #cysticfibrosis community & we’re looking for people w/CF of non-European descent and/or not modulator eligible due to mutation to share their experiences by Nov 10th!
Email hdolhai@cfri.org if interested
Email hdolhai@cfri.org if interested
November 4, 2025 at 9:39 PM
We want to hear your story! CFRI is creating a video about diversity in the #cysticfibrosis community & we’re looking for people w/CF of non-European descent and/or not modulator eligible due to mutation to share their experiences by Nov 10th!
Email hdolhai@cfri.org if interested
Email hdolhai@cfri.org if interested
📣 Calling #CysticFibrosis social workers, physicians, nurses, respiratory therapists & dietitians. Share your wisdom about providing care to people with CF to help us expand our offerings of services for CF patients of diverse backgrounds. Take the short survey by Nov 12th cfri.tiny.us/2xa7y2m8
November 4, 2025 at 9:39 PM
📣 Calling #CysticFibrosis social workers, physicians, nurses, respiratory therapists & dietitians. Share your wisdom about providing care to people with CF to help us expand our offerings of services for CF patients of diverse backgrounds. Take the short survey by Nov 12th cfri.tiny.us/2xa7y2m8
🍁This season of thanks is also a season for self-care 🍂This month, give yourself the space to share, reflect, and recharge in CFRI’s Monthly Support Groups. Register: www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
November 3, 2025 at 8:21 PM
🍁This season of thanks is also a season for self-care 🍂This month, give yourself the space to share, reflect, and recharge in CFRI’s Monthly Support Groups. Register: www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
Thank you to Viatris & private donors for sponsoring our 2025 support groups! #cysticfibrosis
No tricks here — just treats that make a difference! 🎃
✨ This Halloween, we’re celebrating progress, resilience, and the sweet strength of our CF community 👻
✨ This Halloween, we’re celebrating progress, resilience, and the sweet strength of our CF community 👻
October 31, 2025 at 10:14 PM
No tricks here — just treats that make a difference! 🎃
✨ This Halloween, we’re celebrating progress, resilience, and the sweet strength of our CF community 👻
✨ This Halloween, we’re celebrating progress, resilience, and the sweet strength of our CF community 👻
Now Enrolling: Observational Study of Health Outcomes of LGBTQ+ People w/CF (PRIDE-CF) 🏳️🌈 Through this study, researchers hope to learn more about the health-related experiences of people living with #cysticfibrosis who identify as LGBTQIA+.
Learn More: www.pridestudy.org
Learn More: www.pridestudy.org
October 31, 2025 at 3:15 AM
Now Enrolling: Observational Study of Health Outcomes of LGBTQ+ People w/CF (PRIDE-CF) 🏳️🌈 Through this study, researchers hope to learn more about the health-related experiences of people living with #cysticfibrosis who identify as LGBTQIA+.
Learn More: www.pridestudy.org
Learn More: www.pridestudy.org
📣 We want to hear from YOU! Your input helps us guide how CFRI develops programs, resources & advocacy efforts that best serve those impacted by #cysticfibrosis.
This survey takes only 15 minutes, but the insights you share are invaluable to us 💬 www.surveymonkey.com/r/H9NTKX5
This survey takes only 15 minutes, but the insights you share are invaluable to us 💬 www.surveymonkey.com/r/H9NTKX5
October 28, 2025 at 8:03 PM
📣 We want to hear from YOU! Your input helps us guide how CFRI develops programs, resources & advocacy efforts that best serve those impacted by #cysticfibrosis.
This survey takes only 15 minutes, but the insights you share are invaluable to us 💬 www.surveymonkey.com/r/H9NTKX5
This survey takes only 15 minutes, but the insights you share are invaluable to us 💬 www.surveymonkey.com/r/H9NTKX5
Check Out a New Podcast for #IPVawarenessMonth: Intimate Partner Violence & CF. In a 2023 study 33% of women w/CF reported experiencing IPV in their lifetime. Learn about the impact of chronic illness on romantic relationships & how to access support. youtube.com/watch?v=e5N0gmsGywQ&feature=youtu.be
October 27, 2025 at 9:42 PM
Check Out a New Podcast for #IPVawarenessMonth: Intimate Partner Violence & CF. In a 2023 study 33% of women w/CF reported experiencing IPV in their lifetime. Learn about the impact of chronic illness on romantic relationships & how to access support. youtube.com/watch?v=e5N0gmsGywQ&feature=youtu.be
Our friends @ University of Rochester School of Medicine is conducting a survey. Eligibility: Primary Caregiver for a child 2-17yrs & has received a positive genetic test. Lives in US & Speaks English. Info: katherine_stevens@urmc.rochester.edu
universityrochester.co1.qualtrics.com/jfe/form/SV_...
universityrochester.co1.qualtrics.com/jfe/form/SV_...
October 26, 2025 at 8:13 PM
Our friends @ University of Rochester School of Medicine is conducting a survey. Eligibility: Primary Caregiver for a child 2-17yrs & has received a positive genetic test. Lives in US & Speaks English. Info: katherine_stevens@urmc.rochester.edu
universityrochester.co1.qualtrics.com/jfe/form/SV_...
universityrochester.co1.qualtrics.com/jfe/form/SV_...
4D-710 Advancing to Phase 2 Trials. 4DMT has received a new investment from the CFF to support the development of the company’s inhaled gene therapy for #cysticfibrosis. Phase 2 of the trial is currently recruiting participants at sites across the U.S.
www.globenewswire.com/news-release...
www.globenewswire.com/news-release...
October 25, 2025 at 5:05 AM
4D-710 Advancing to Phase 2 Trials. 4DMT has received a new investment from the CFF to support the development of the company’s inhaled gene therapy for #cysticfibrosis. Phase 2 of the trial is currently recruiting participants at sites across the U.S.
www.globenewswire.com/news-release...
www.globenewswire.com/news-release...
👀 Check out these new CFRI podcast recordings from the CF Adult Summer Retreat! Each session dives into critical topics impacting the #cysticfibrosis community.
curecf.cfri.org/ResistantInf...
curecf.cfri.org/GutMicrobiome
curecf.cfri.org/Bacteriophages
curecf.cfri.org/Vaccines
curecf.cfri.org/ResistantInf...
curecf.cfri.org/GutMicrobiome
curecf.cfri.org/Bacteriophages
curecf.cfri.org/Vaccines
October 24, 2025 at 1:52 AM
👀 Check out these new CFRI podcast recordings from the CF Adult Summer Retreat! Each session dives into critical topics impacting the #cysticfibrosis community.
curecf.cfri.org/ResistantInf...
curecf.cfri.org/GutMicrobiome
curecf.cfri.org/Bacteriophages
curecf.cfri.org/Vaccines
curecf.cfri.org/ResistantInf...
curecf.cfri.org/GutMicrobiome
curecf.cfri.org/Bacteriophages
curecf.cfri.org/Vaccines
New Blog Post: Inside the walls of a 2-week "Vacation". In 2024, people with #CysticFibrosis were hospitalized over 10K times. Daelyn James, reflects on her hospitalizations & how she learned to turn them into opportunities for personal growth. www.cfri.org/inside-the-w...
Inside the Walls of a Two-Week “Vacation”
CFRI's mission is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support. Our vision is to find a cure for cystic fibrosis w...
www.cfri.org
October 23, 2025 at 1:08 AM
New Blog Post: Inside the walls of a 2-week "Vacation". In 2024, people with #CysticFibrosis were hospitalized over 10K times. Daelyn James, reflects on her hospitalizations & how she learned to turn them into opportunities for personal growth. www.cfri.org/inside-the-w...
CFRI Workshop: Enhancing Research Recruitment Among Diverse Populations. This session will explore strategies that #cysticfibrosis centers can use to build trust within communities and address barriers to recruitment and retention in clinical trials.
Nov 12th @ 12pm PT
curecf.cfri.org/Workshop
Nov 12th @ 12pm PT
curecf.cfri.org/Workshop
October 22, 2025 at 2:58 AM
CFRI Workshop: Enhancing Research Recruitment Among Diverse Populations. This session will explore strategies that #cysticfibrosis centers can use to build trust within communities and address barriers to recruitment and retention in clinical trials.
Nov 12th @ 12pm PT
curecf.cfri.org/Workshop
Nov 12th @ 12pm PT
curecf.cfri.org/Workshop
Our friends @ Seattle Children’s Hospital are inviting CF community members to join the Health Equity Advisory Team (HEAT) for a CFF supported study called DataEQ.
Inquire by FRI 10/17/25! Learn more: www.surveymonkey.com/r/8TBY8HN?Co...
Inquire by FRI 10/17/25! Learn more: www.surveymonkey.com/r/8TBY8HN?Co...
October 15, 2025 at 10:39 PM
Our friends @ Seattle Children’s Hospital are inviting CF community members to join the Health Equity Advisory Team (HEAT) for a CFF supported study called DataEQ.
Inquire by FRI 10/17/25! Learn more: www.surveymonkey.com/r/8TBY8HN?Co...
Inquire by FRI 10/17/25! Learn more: www.surveymonkey.com/r/8TBY8HN?Co...
💜 Our Hearts Are Overflowing with Gratitude! Because of your generosity, we surpassed our fundraising goal to support CFRI’s vital research & support programs for those living with #cysticfibrosis. We are deeply grateful to our sponsors & to every donor, guest & volunteer ✨️
October 15, 2025 at 9:51 PM
💜 Our Hearts Are Overflowing with Gratitude! Because of your generosity, we surpassed our fundraising goal to support CFRI’s vital research & support programs for those living with #cysticfibrosis. We are deeply grateful to our sponsors & to every donor, guest & volunteer ✨️
Big win for California! 🎉
@governor.ca.gov Newsom has signed #SB41 — bringing transparency, fairness & accountability to prescription drug pricing. 💊 This landmark law will help lower costs & protect patients.
💜 Thank you Governor Newsom, Scott Wiener & all advocates!
@governor.ca.gov Newsom has signed #SB41 — bringing transparency, fairness & accountability to prescription drug pricing. 💊 This landmark law will help lower costs & protect patients.
💜 Thank you Governor Newsom, Scott Wiener & all advocates!
October 14, 2025 at 4:35 AM
Big win for California! 🎉
@governor.ca.gov Newsom has signed #SB41 — bringing transparency, fairness & accountability to prescription drug pricing. 💊 This landmark law will help lower costs & protect patients.
💜 Thank you Governor Newsom, Scott Wiener & all advocates!
@governor.ca.gov Newsom has signed #SB41 — bringing transparency, fairness & accountability to prescription drug pricing. 💊 This landmark law will help lower costs & protect patients.
💜 Thank you Governor Newsom, Scott Wiener & all advocates!
✨ Last Chance to Join Us! ✨
CFRI’s Breath of Fresh Air Gala is almost here — and this is your final opportunity to be part of this unforgettable celebration of hope, community, and 50 years of impact. 💜
Can’t attend? Explore our virtual auction from anywhere! curecf.cfri.org/Gala2025
CFRI’s Breath of Fresh Air Gala is almost here — and this is your final opportunity to be part of this unforgettable celebration of hope, community, and 50 years of impact. 💜
Can’t attend? Explore our virtual auction from anywhere! curecf.cfri.org/Gala2025
October 10, 2025 at 5:59 AM
✨ Last Chance to Join Us! ✨
CFRI’s Breath of Fresh Air Gala is almost here — and this is your final opportunity to be part of this unforgettable celebration of hope, community, and 50 years of impact. 💜
Can’t attend? Explore our virtual auction from anywhere! curecf.cfri.org/Gala2025
CFRI’s Breath of Fresh Air Gala is almost here — and this is your final opportunity to be part of this unforgettable celebration of hope, community, and 50 years of impact. 💜
Can’t attend? Explore our virtual auction from anywhere! curecf.cfri.org/Gala2025
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres / personas que cuidan. 8 de octubre @ 5pm PT . PARA REGISTRARSE, enviar un correo electrónico a Hannah (hdolhai@cfri.org).
October 4, 2025 at 11:36 PM
Visítanos en Conocimiento y Conexión, la comunidad virtual en español de FQ de CFRI! Para adultos con #fibrosisquística y padres / personas que cuidan. 8 de octubre @ 5pm PT . PARA REGISTRARSE, enviar un correo electrónico a Hannah (hdolhai@cfri.org).
You don’t have to carry it all. CFRI’s Support Groups meet every month to offer connection, validation, and community for those affected by CF. 🧡 Find your group & join the conversation → www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups!
Thank you to Viatris & private donors for sponsoring our 2025 support groups!
October 3, 2025 at 9:55 PM
You don’t have to carry it all. CFRI’s Support Groups meet every month to offer connection, validation, and community for those affected by CF. 🧡 Find your group & join the conversation → www.cfri.org/education-su...
Thank you to Viatris & private donors for sponsoring our 2025 support groups!
Thank you to Viatris & private donors for sponsoring our 2025 support groups!