Celiaka
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celiaka.bsky.social
Celiaka
@celiaka.bsky.social
Scotland based literacy charity worker. Likes textiles, repairing things, reading, TV. Longing for the outdoors but stuck inside a lot of the time. Queer, disabled (ME/CFS) and still Covid cautious. Dyslexic so excuse spelling mistakes.
I’ve not bought a new pair of outdoor shoes in about 5 years, but I go through a pair of slippers every 6 months. Such is chronic illness life. #mecfs
May 17, 2025 at 12:46 PM
If anyone’s been thinking about getting visible to help with pacing, I can offer your referral link join.makevisible.com/683f029ac3dc30 #visible #pacing #longcovid #mecfs
April 22, 2025 at 7:40 PM
Reposted by Celiaka
Millions with ME/CFS have been abandoned—again. Columbia’s research program is shutting down, not because the science failed, but because funding was gutted. Another devastating loss for a community that can’t afford to be ignored. #longcovid #chronicfatigue
ME/CFS research program shuts down at Columbia after Trump cuts
ME/CFS, which affects millions of Americans, has few dedicated research centers. Now the one at Columbia has been shut down over Trump funding cuts.
www.statnews.com
March 19, 2025 at 6:49 PM
The disability benefits cuts. Just absolutely unconscionable. PIP is there to deal with the extra costs of being disabled - and in some cases actually helps people stay in work! It is actually very hard to get now (I have heard horror stories) so making it even harder is cruelty.
March 19, 2025 at 9:20 AM
May I offer you a cat photo in this trying time.
February 23, 2025 at 9:03 PM
Currently reading Queen B by Juno Dawson. Tudor alternate history - just add witches and queer ladies.
February 2, 2025 at 12:43 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [20/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
February 2, 2025 at 12:37 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [19/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
January 24, 2025 at 7:53 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [18/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 22, 2024 at 8:20 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [17/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 21, 2024 at 2:04 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [16/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 20, 2024 at 10:37 PM
Reposted by Celiaka
DHSC published its response to the consultation on its interim Plan for ME this morning.
A lot has happened since that consultation ended (October 2023), especially the growing numbers of pw #LongCovid whose presentations meet UK ME/cfs diagnostic criteria.
www.gov.uk/government/c...
Improving the experiences of people with ME/CFS: consultation outcome
www.gov.uk
December 19, 2024 at 10:15 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [15/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 19, 2024 at 11:31 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [14/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 18, 2024 at 2:02 PM
After having recently watched the TV series The Terror (grim but brilliant), I’m entering my Victorian Polar expedition era with Erebus by Michael Palin. #currentlyreading #booksky #💙📚
December 17, 2024 at 9:59 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [13/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 16, 2024 at 10:09 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [12/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 15, 2024 at 3:11 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [11/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 14, 2024 at 9:05 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [10/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 13, 2024 at 10:59 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [9/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 12, 2024 at 8:37 AM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [8/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 11, 2024 at 8:52 AM
I wonder if I have Covid or if it’s post exertional malaise from having emotions and taking caring of my partner when she’s sick? *Checks energy monitor*. Hmmm. Probably PEM. #visible #mecfs #PEM #longcovid
December 11, 2024 at 8:47 AM
So after a week and a half of hiding out in the spare room, I am still testing negative for Covid, but I’m feeling pretty rough so I don’t think I’m entirely out the woods yet. #covidisnotover
December 10, 2024 at 1:27 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [7/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 10, 2024 at 1:25 PM
Choose 20 books that have stayed with you or influenced you.

One book per day for 20 days, in no particular order. No explanations, no reviews, just covers. [6/20]

[ #Books ]
[ #BookSky ]
[ 💙📚 ]
[ #BookChallenge]
December 9, 2024 at 11:47 AM