Chronic Disease Living
@cdiseaseliving.bsky.social
Sharing new Chronic Disease research, news and my life stories. If the CDC won't provide accurate medical news, then we need to look elsewhere. See my resources at Chronicdiseaseliving.com
It looks like there is a real possibility of the Affordable Care Act expiring. This could cause major financial crises for many Americans. The ACA supported me through numerous medical issues and helped pay for my prescriptions that would have normally cost thousands of dollars.
December 12, 2025 at 3:44 PM
It looks like there is a real possibility of the Affordable Care Act expiring. This could cause major financial crises for many Americans. The ACA supported me through numerous medical issues and helped pay for my prescriptions that would have normally cost thousands of dollars.
"One-quarter of Affordable Care Act marketplace enrollees are very likely to go uninsured next year if more generous financial assistance for the exchange plans expire" www.healthcaredive.com/news/quarter...
1 in 4 ACA enrollees could go uninsured if subsidies lapse: KFF
Nearly 60% of survey respondents said they wouldn’t be able to afford a $300 annual increase in healthcare costs without significantly disrupting their finances.
www.healthcaredive.com
December 8, 2025 at 9:33 PM
"One-quarter of Affordable Care Act marketplace enrollees are very likely to go uninsured next year if more generous financial assistance for the exchange plans expire" www.healthcaredive.com/news/quarter...
The #WHO released an article detailing funding issues for global tuberculosis response www.who.int/news/item/12...
Global gains in tuberculosis response endangered by funding challenges
Tuberculosis (TB) remains one of the world’s deadliest infectious killers, claiming over 1.2 million lives and affecting an estimated 10.7 million people last year, according to the WHO Global Tuberc...
www.who.int
November 17, 2025 at 8:37 PM
The #WHO released an article detailing funding issues for global tuberculosis response www.who.int/news/item/12...
This NEEDS to be pushed to everyone with any kind of chronic disease. The CDC cuts are literally KILLING PEOPLE www.cbsnews.com/news/cdc-sci...
CDC scientist let go during shutdown says "it's truly like an episode of 'Squid Games'"
"They went in and fired entire programs, even statutorily mandated by law programs they cut entirely," she told CBS News. "So there is no staff to do this work anymore."
www.cbsnews.com
October 16, 2025 at 5:11 PM
This NEEDS to be pushed to everyone with any kind of chronic disease. The CDC cuts are literally KILLING PEOPLE www.cbsnews.com/news/cdc-sci...
"the layoffs at the Centers for Disease Control and Prevention (CDC) carried out on Friday night were deep and wide-ranging, and included employees and leaders “in offices addressing respiratory diseases, chronic diseases, injury prevention, and global health.”
www.commondreams.org/news/cdc-mas...
www.commondreams.org/news/cdc-mas...
October 11, 2025 at 10:11 PM
"the layoffs at the Centers for Disease Control and Prevention (CDC) carried out on Friday night were deep and wide-ranging, and included employees and leaders “in offices addressing respiratory diseases, chronic diseases, injury prevention, and global health.”
www.commondreams.org/news/cdc-mas...
www.commondreams.org/news/cdc-mas...
As someone who suffers from the conditions that the head of our Health Department (HHS) is targeting, I find this very disturbing. I struggled with depression, anxiety and ADHD for most of my life and was not able to function normally without these medications www.npr.org/sections/sho...
Psychiatrists call for RFK Jr. to be replaced as health secretary
Two groups are calling for new leadership at HHS after Health Secretary Robert F. Kennedy Jr.'s actions on substance abuse treatment and mental health medications, among other issues.
www.npr.org
October 7, 2025 at 6:09 PM
As someone who suffers from the conditions that the head of our Health Department (HHS) is targeting, I find this very disturbing. I struggled with depression, anxiety and ADHD for most of my life and was not able to function normally without these medications www.npr.org/sections/sho...
These are just a few of many medical research grants terminated by the Trump Administration. There are pages and pages filled with grants like these with the grant description "Immunization and Vaccines for Children"
Spread the word.
Spread the word.
September 30, 2025 at 2:27 PM
These are just a few of many medical research grants terminated by the Trump Administration. There are pages and pages filled with grants like these with the grant description "Immunization and Vaccines for Children"
Spread the word.
Spread the word.
This is a great resource tracking all the funding cuts from the Trump Administration so far:
grant-witness.us
grant-witness.us
Grant Witness
grant-witness.us
September 30, 2025 at 2:22 PM
This is a great resource tracking all the funding cuts from the Trump Administration so far:
grant-witness.us
grant-witness.us
Thank you to WI RARE for hosting a productive day speaking with the legislators of Wisconsin about rare diseases bills. I had a great time!
September 13, 2025 at 4:40 PM
Thank you to WI RARE for hosting a productive day speaking with the legislators of Wisconsin about rare diseases bills. I had a great time!
"The result of these changes is that there is now no updated COVID-19 vaccine that is approved for children or adults under 65 who do not have a high-risk condition."
This article from IDF explains the changes to the COVID vaccine authorizations:
primaryimmune.org/resources/ne...
This article from IDF explains the changes to the COVID vaccine authorizations:
primaryimmune.org/resources/ne...
Update: Vaccine access threatened by federal actions | Immune Deficiency Foundation
Limited FDA approval for 2025-2026 updated COVID-19 vaccines threatens people who are immunocompromised and places their loved ones without PI at risk.
primaryimmune.org
September 5, 2025 at 6:15 PM
"The result of these changes is that there is now no updated COVID-19 vaccine that is approved for children or adults under 65 who do not have a high-risk condition."
This article from IDF explains the changes to the COVID vaccine authorizations:
primaryimmune.org/resources/ne...
This article from IDF explains the changes to the COVID vaccine authorizations:
primaryimmune.org/resources/ne...
“Mayo Clinic researchers have found that some older people maintain "immune youth" – a new term coined by Mayo researchers to explain a young immune system in someone over age 60.”
newsnetwork.mayoclinic.org/discussion/m...
newsnetwork.mayoclinic.org/discussion/m...
newsnetwork.mayoclinic.org
August 26, 2025 at 3:08 PM
“Mayo Clinic researchers have found that some older people maintain "immune youth" – a new term coined by Mayo researchers to explain a young immune system in someone over age 60.”
newsnetwork.mayoclinic.org/discussion/m...
newsnetwork.mayoclinic.org/discussion/m...
A new vaccine aimed at a common cancer gene mutation could help stop aggressive pancreatic cancers from coming back, a small clinical trial suggests.
www.drugs.com/news/new-vac...
www.drugs.com/news/new-vac...
New Vaccine May Help Stop Deadly Pancreatic Cancers From Coming Back - Drugs.com MedNews
TUESDAY, Aug. 12, 2025 A new vaccine aimed at a common cancer gene mutation could help stop aggressive pancreatic cancers from coming back, a small clinical tri
www.drugs.com
August 13, 2025 at 3:35 PM
A new vaccine aimed at a common cancer gene mutation could help stop aggressive pancreatic cancers from coming back, a small clinical trial suggests.
www.drugs.com/news/new-vac...
www.drugs.com/news/new-vac...
More medical research being stunted because of politics. It's despicable.
www.latimes.com/california/s...
www.latimes.com/california/s...
Trump freezes $200 million in UCLA science and medical research funding, citing antisemitism
The Trump administration has frozen roughly $200 million in National Science Foundation, National Institutes of Health and other federal agency-funded research at UCLA, citing allegations the school d...
www.latimes.com
August 1, 2025 at 12:55 PM
More medical research being stunted because of politics. It's despicable.
www.latimes.com/california/s...
www.latimes.com/california/s...
"This approach emphasizes individual responsibility to improve your own mental well-being through exercise, diet, and self-empowerment—and, when that fails, learning to embrace the misery."
slate.com/news-and-pol...
slate.com/news-and-pol...
Millions of Americans Need These Drugs. RFK Jr.’s Minions Have Them in Their Crosshairs.
The FDA is spreading lies about medications people need—and starting their attack by targeting pregnant women.
slate.com
July 25, 2025 at 1:52 PM
"This approach emphasizes individual responsibility to improve your own mental well-being through exercise, diet, and self-empowerment—and, when that fails, learning to embrace the misery."
slate.com/news-and-pol...
slate.com/news-and-pol...
This is the kind of stupidity you deal with when you have a society that is SEVERELY misinformed. This is the reason I ADVOCATE.
July 23, 2025 at 2:55 PM
This is the kind of stupidity you deal with when you have a society that is SEVERELY misinformed. This is the reason I ADVOCATE.
Hey Wisconsinites! Come join the RARE Wisconsin group on September 11th at the Capitol in Madison! We will be discussing important healthcare policies that impact Chronic Disease patients.
#rarediseaseawareness
#rarediseaseawareness
July 23, 2025 at 2:09 PM
Hey Wisconsinites! Come join the RARE Wisconsin group on September 11th at the Capitol in Madison! We will be discussing important healthcare policies that impact Chronic Disease patients.
#rarediseaseawareness
#rarediseaseawareness
Shameful
www.wired.com/story/how-tr...
www.wired.com/story/how-tr...
How Trump Killed Cancer Research
Attempting to eliminate funding for certain kinds of “woke” studies, the Trump administration erased hundreds of millions of dollars being used for cancer research.
www.wired.com
July 21, 2025 at 2:12 PM
Shameful
www.wired.com/story/how-tr...
www.wired.com/story/how-tr...
"Measles cases in the United States have reached their highest level in 25 years, with more than 1,270 confirmed cases this year."
www.drugs.com/news/u-s-mea...
www.drugs.com/news/u-s-mea...
U.S. Measles Cases Hit Highest Level Since Disease Was Eliminated in 2000 - Drugs.com MedNews
TUESDAY, July 8, 2025 Measles cases in the United States have reached their highest level in 25 years, with more than 1,270 confirmed cases this year. That numb
www.drugs.com
July 9, 2025 at 2:10 PM
"Measles cases in the United States have reached their highest level in 25 years, with more than 1,270 confirmed cases this year."
www.drugs.com/news/u-s-mea...
www.drugs.com/news/u-s-mea...
"The United States will stop sending money to Gavi, a global group that helps vaccinate children in low-income countries, U.S. Health and Human Services Secretary Robert F. Kennedy Jr. said Wednesday."
www.drugs.com/news/u-s-sto...
www.drugs.com/news/u-s-sto...
U.S. Stops Funding for Gavi Global Vaccine Program, Sparking Backlash - Drugs.com MedNews
FRIDAY, June 27, 2025 The United States will stop sending money to Gavi, a global group that helps vaccinate children in low-income countries, U.S. Health and H
www.drugs.com
June 29, 2025 at 2:19 PM
"The United States will stop sending money to Gavi, a global group that helps vaccinate children in low-income countries, U.S. Health and Human Services Secretary Robert F. Kennedy Jr. said Wednesday."
www.drugs.com/news/u-s-sto...
www.drugs.com/news/u-s-sto...
"A U.S. vaccine advisory panel voted Thursday to stop recommending flu shots that contain thimerosal, a move that experts say may reduce access to vaccines without making them any safer."
www.drugs.com/news/rfk-jr-...
www.drugs.com/news/rfk-jr-...
RFK Jr.-Appointed Vaccine Panel Removes Flu Shot Ingredient - Drugs.com MedNews
FRIDAY, June 27, 2025 A U.S. vaccine advisory panel voted Thursday to stop recommending flu shots that contain thimerosal, a move that experts say may reduce ac
www.drugs.com
June 29, 2025 at 2:11 PM
"A U.S. vaccine advisory panel voted Thursday to stop recommending flu shots that contain thimerosal, a move that experts say may reduce access to vaccines without making them any safer."
www.drugs.com/news/rfk-jr-...
www.drugs.com/news/rfk-jr-...
Do you want to know what is going on with the flu right now? Take a look at the WHO's summary: www.who.int/teams/global...
Current influenza update
www.who.int
June 27, 2025 at 2:54 PM
Do you want to know what is going on with the flu right now? Take a look at the WHO's summary: www.who.int/teams/global...
Living with a Chronic Disease? Stay Informed and Empowered!
Looking for trusted news, breakthrough research, and practical tips all in one place?
Explore the new Chronic Disease Living site- your go-to hub for the latest updates and support for managing chronic conditions.
👉 Chronicdiseaseliving.com
Looking for trusted news, breakthrough research, and practical tips all in one place?
Explore the new Chronic Disease Living site- your go-to hub for the latest updates and support for managing chronic conditions.
👉 Chronicdiseaseliving.com
Chronic Disease Living | Linktree
Chronic Disease News, Research and Innovations
Chronicdiseaseliving.com
June 24, 2025 at 3:55 PM
Living with a Chronic Disease? Stay Informed and Empowered!
Looking for trusted news, breakthrough research, and practical tips all in one place?
Explore the new Chronic Disease Living site- your go-to hub for the latest updates and support for managing chronic conditions.
👉 Chronicdiseaseliving.com
Looking for trusted news, breakthrough research, and practical tips all in one place?
Explore the new Chronic Disease Living site- your go-to hub for the latest updates and support for managing chronic conditions.
👉 Chronicdiseaseliving.com