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CAPA
@capa-aca.bsky.social
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The Canadian Arthritis Patient Alliance (CAPA) is a grass-roots, patient-driven, independent, national advocacy organization with members across Canada.
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CAPA @capa-aca.bsky.social · Aug 11
L'ACA est ravie d'annoncer que nous organiserons notre premier webinaire en français cet automne ! Afin de mieux servir la communauté de l'ACA, nous demandons à nos membres de remplir ce mini-sondage pour nous aider à choisir le sujet qui VOUS intéresse le plus. buff.ly/vvL8YD8
capa-aca.bsky.social
🌟 MEMBER SPOTLIGHT: Patient voices are shaping arthritis care worldwide — and CAPA Board Member Therese Lane is helping lead the way as part of the Global Patient Charter Task Force!

Read more ➡️ buff.ly/WnACV10
#CAPA #CanadianArthritisPatientAlliance #Newsletter #Community #Advocacy
CAPA Board Member Therese Lane Contributes to Global Patient Charter Task Force | Capa
CAPA is pleased to recognize its Board member Therese Lane for her role on the Task Force that developed the Global Patient Charter on Social Participation. Therese represented CAPA and was the only…
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December 12, 2025 at 6:04 PM
capa-aca.bsky.social
🔬 Research Spotlight: Frustrated with using the limited 1–10 pain scale?

Linda Wilhelm and Charmaine Jones introduce MPaCT (My Pain Assessment & Communication Tool) to help people living with chronic pain more accurately describe their experiences!

👉
Introducing MPaCT: A Better Way to Talk About Chronic Pain | Capa
Chronic pain is more than just a number on a scale. For people living with arthritis and other persistent conditions, the question “What’s your pain level from 1 to 10?” often fails to capture what…
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December 10, 2025 at 6:15 PM
capa-aca.bsky.social
PARTICIPANT CALL! Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers. Your experiences can help shape future supports and improve lupus care across the province.

👉 Take the survey:
2025-2026 Lupus Patient Experience Consultation
Take this survey powered by surveymonkey.com. Create your own surveys for free.
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December 8, 2025 at 6:02 PM
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🤝 Comment mieux soutenir les personnes atteintes d'arthrite? Dans un nouvel article de blog, l'ergothérapeute Bella Cairns explore les défis, les solutions et les principaux enseignements tirés de sa pratique!
What helps and hinders my work as an occupational therapist (OT) | Capa
Par : Bella Cairns
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December 6, 2025 at 11:16 PM
capa-aca.bsky.social
Moms & Dads,

What’s it like to raise young children when you have arthritis? Help us learn more so we can create support programs! Complete our online survey buff.ly/tiAKMZG. You’ll receive compensation for your time.
November 20, 2025 at 2:30 PM
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💬 Join us for our next Lived Experience Webinar: Navigating a Diagnosis of Arthritis
🗓 Date: November 19, 2025
🕕 Time: 6:00 – 7:30 p.m. EDT
📍 Online — Free Registration

🔗 Registration is now open — find out more and register on our website: buff.ly/BQE0RS2
Promotional poster for the CAPA Lived Experience Webinar. The event invites people to hear personal stories from individuals about being diagnosed with arthritis — how they recognized symptoms, navigated the healthcare system, and coped with the emotional and physical impacts. The session is scheduled for 19 November 2025, from 6:00 to 7:30 PM ET. Speakers include Dr. Rashid Kashani (Occupational Therapist), Lucy Kovalova-Woods (CAPA Board Member), Jennifer Lorca (CAPA Board Member), Nazret Russon (Full-time Caregiver), and Kim Tremblay (Financial Analyst, CAPA Francophone Advisory Committee Member). The poster has a purple background with yellow and white text, features headshots of the speakers, and includes a QR code for registration.
November 10, 2025 at 7:15 PM
capa-aca.bsky.social
🧠 Have a skin, hair, or nail condition—or care for someone who does? We want to hear from you!

🕒 5–10 min survey
🎁 Chance to win a $50 gift card

🔗 EN: buff.ly/XoBbr0A
🔗 FR: buff.ly/Aok4fFv

Your voice matters.
#MentalHealth #SkinHealth #CSPA #PatientAdvocacy
October 29, 2025 at 3:38 PM
capa-aca.bsky.social
Arthritis costs Canada $33 billion a year — yet only 4% know it’s our leading cause of disability. The Arthritis Action Plan is our united response to this silent crisis. Read Arthritis: The Silent Drain on Canada’s Economy:
October 24, 2025 at 3:38 PM
capa-aca.bsky.social
October = Occupational Therapy Month! Check out Kelly-Maude Amaral’s powerful blog about how OT helped her live better with arthritis — adapting routines, using ergonomic tools, and finding confidence.

👉 Read here: buff.ly/yilsnuA

#OTMonth #Arthritis
Promotional graphic from the Canadian Arthritis Patient Alliance. Title: How Occupational Therapy Helped Me Live Better with Arthritis by Kelly-Maude Amaral. The text describes how occupational therapy helped her manage pain, fatigue, and unpredictability by adapting daily routines, alternating activity and rest, and listening to her body. The lower section highlights: New Blog Post – How Occupational Therapy Helped Me Live Better with Arthritis by Kelly-Maude Amaral.
October 22, 2025 at 4:07 PM
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What helps — and hinders — work as an occupational therapist? In our latest blog, OT Bella Cairns shares the real barriers and enablers she faces when supporting people with arthritis.

👉 Read more: buff.ly/RHahQ08

#OccupationalTherapy #Arthritis #HealthCareInsights
Promotional graphic from the Canadian Arthritis Patient Alliance. Title: What helps and hinders my work as an occupational therapist (OT) by Bella Cairns. The text explains that Bella, an OT in Ontario, shares her experiences supporting people living with arthritis and highlights both facilitators and barriers in practice. The lower section features a green background with the heading New Blog Post followed by the blog title and author name.
October 20, 2025 at 4:19 PM
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Octobre = le mois de l'ergothérapie ! Consultez le blogue écrit par Kelly-Maude Amaral sur la façon dont l'ergothérapie l'a aidée à mieux vivre avec l'arthrite.

👉 Lisez ici : buff.ly/iAx7qZ5

#Mois de l'ergothérapie #Arthrite
isuel promotionnel de l’Alliance Canadienne des Arthritiques. Titre : Comment l’ergothérapie m’a aidé à mieux vivre avec l’arthrite par Kelly-Maude Amaral. Le texte décrit comment l’ergothérapie lui a permis de gérer la douleur, la fatigue et l’imprévisibilité du quotidien en écoutant son corps, en alternant activité et repos, et en adaptant ses gestes et son environnement. La section inférieure met en évidence : Nouveau billet de blog – Comment l’ergothérapie m’a aidé à mieux vivre avec l’arthrite, par Kelly-Maude Amaral.
October 16, 2025 at 4:08 PM
capa-aca.bsky.social
It’s #WorldArthritisDay 💜 People with arthritis know best what helps day to day. Check out our life hacks & assistive devices — practical tips from the community on living well: buff.ly/Ka7DCC2

#Arthritis #PatientVoice
Promotional graphic for World Arthritis Day on October 12. On the left, a blue background with white text reads: “Living with rheumatic and musculoskeletal diseases. What is your RMDream?” On the right, a smiling woman in a beige sweater holds a smartphone, looking at the screen. The World Arthritis Day logo appears above her.
October 12, 2025 at 4:03 PM
capa-aca.bsky.social
It’s #WorldMentalHealthDay 💚 Youth and young adults with rheumatic disease face unique mental health challenges. Check out our Rheum for Your Mind workshop recordings (a collaboration with Take a Pain Check Foundation) to learn more:
Rheum for your Mind Workshop Recordings now available | Capa
In October 2023, we co-hosted two workshops for youth and young adults with rheumatic diseases with Take a Pain Check Foundation.
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October 10, 2025 at 4:06 PM
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🎤 Living in Colour: Challenging Stereotypes in Pain Care
🗓️ Thursday, Oct 9 | ⏰ 6:30–7:30 PM ET📍 Free online panel

Hear powerful stories from BIPOC individuals living with chronic pain. Let’s break the stigma and push for better care.

🔗 Details: poweroverpain.ca

#LivingInColour #ChronicPain
October 8, 2025 at 9:46 PM
capa-aca.bsky.social
Only one more week until our lunchtime session with CAPA patient leaders Linda Wilhelm & Therese Lane! They’ll share their journeys, roles in research & policy, and lessons on EDI. Bring your questions & get key insights in a takeaway infographic!

buff.ly/h8jkJO1
Promotional poster for a CAPA webinar titled “The Patient Room: Chat & Learn for Patient Partners.” Photos of speakers Linda Wilhelm (on the left, speaking at a podium) and Therese Lane (on the right, smiling in front of a colorful mural). The webinar is on October 15, 2025, at 12:00 PM EDT and will last one hour. A QR code is shown for registration. CAPA logo at the bottom.
October 8, 2025 at 4:06 PM
capa-aca.bsky.social
Last chance to take our French survey! Your answers will help us determine the topic of an upcoming webinar and create resources for people living with arthritis.

Don't miss this opportunity to make your voice heard: buff.ly/IKc9iK7
Promotional graphic from CAPA (Canadian Arthritis Patient Alliance) with the title: “Mini-survey to help us choose the topic for a webinar in French.” Below the title are five emoji-style faces ranging from sad to very happy. Text reads: “We want your feedback! TAKE THE SURVEY.” An orange arrow points to a QR code for accessing the survey. The CAPA logo appears in the bottom left, and text in the bottom right says “link in bio.”
October 7, 2025 at 4:05 PM
capa-aca.bsky.social
Today is the last day to complete our survey about living with polymyalgia rheumatica (PMR)! This is your chance to share your experience and help shape access to treatment.

Learn more + add your voice: buff.ly/2LUuZry

#PMR #Kevzara #PatientInput #PatientVoice
October 6, 2025 at 1:03 PM
capa-aca.bsky.social
Dernière chance de répondre à notre sondage francophone ! Vos réponses nous aideront à déterminer le sujet d’un prochain webinaire et à créer des ressources pour les personnes vivant avec l’arthrite.

Ne manquez pas cette occasion de faire entendre votre voix : buff.ly/IKc9iK7

#Arthrite
Visuel promotionnel de l’ACA (Alliance Canadienne des Arthritiques) pour un mini-sondage. Le titre indique : « Mini-sondage pour nous aider à choisir le sujet d’un webinaire en Français ». Cinq visages colorés de type émoticônes illustrent différentes émotions (triste à heureux). Le texte précise : « Nous voulons votre rétroaction! RÉPONDEZ AU SONDAGE ». Une flèche orange pointe vers un code QR permettant d’accéder au sondage. Le logo de l’ACA est en bas à gauche et la mention « lien en bio » apparaît en bas à droite.
October 3, 2025 at 7:45 PM
capa-aca.bsky.social
On National Truth & Reconciliation Day, we’re honoured to feature Dr. Ashley Hayward’s blog on the role of Indigenous doulas in reproductive healthcare & how colonialist policies disconnect Indigenous families from communities & culture.

Read the blog: buff.ly/Tzp9ot5

#EveryChildMatters
Graphic for the National Day for Truth and Reconciliation. The text reads: “National Day for Truth and Reconciliation. Read Dr. Ashley Hayward’s blog: The Vital Role of Indigenous Doulas in Reproductive Justice.” The background is white with three illustrated orange shirts of different sizes (symbolizing Orange Shirt Day). At the bottom right is the logo of the Canadian Arthritis Patient Alliance (CAPA).
September 30, 2025 at 4:28 PM
capa-aca.bsky.social
🚨 Last chance! Today is the final day to buy your Coffee for CAPA and be entered into our raffle for a $20 gift card 🎉. Support people living with arthritis while enjoying great coffee!

Check it out here: buff.ly/wugWrIo

#CoffeeForCAPA #ArthritisAwareness #Fundraiser #LastDay #Raffle
September 30, 2025 at 1:03 PM
capa-aca.bsky.social
☕️ Coffee for CAPA – last chance! Support arthritis awareness by purchasing coffee by Sept 30 and you’ll be entered to win a $20 gift card 🎉 Don’t miss out – order today!

👉https://buff.ly/wugWrIo
September 26, 2025 at 5:15 PM
capa-aca.bsky.social
New infographic! ✨ Earlier this year, CAPA partnered with OT students from McMaster to capture the clever “life hacks” people with arthritis use to manage daily tasks + stay active.

These smart solutions highlight strength, creativity & lived experience 💜

👉 Check it out: buff.ly/ykTE0zB
Graphic with text ‘New Infographic: Living with Arthritis Life Hacks – 1 min read.’ Illustration of a checklist with a pencil. CAPA (Canadian Arthritis Patient Alliance) logo at the bottom.
September 25, 2025 at 4:06 PM
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Starting or managing with a chronic illness can be tough, but you don’t have to figure it out alone. CAPA's Youth Committee developed these resources to help you and your family navigate school accommodations. 

👉 Explore the resources here:  buff.ly/jVv77vE
Bright blue graphic with playful geometric shapes in orange, green, and black. Large bold text reads ‘Back to School.’ Smaller text below reads ‘resources.’ An orange outline of a globe appears in the lower right corner
September 22, 2025 at 4:03 PM
capa-aca.bsky.social
☕ Your morning pick-me-up can be more than caffeine—it can fuel advocacy too! Every sip of Sparkplug Coffee (or bite of those chocolate-drenched beans) sends 20% straight to CAPA.

Go ahead… make your brew do good. 💜

👉 Order here: buff.ly/zI7kToI
Poster for the Coffee for CAPA Fundraiser. A white coffee cup filled with espresso sits against a background with colorful abstract shapes. Text reads: ‘Choose from 7 exciting blends! Sept 1–30. Order Now.’ Logos of Sparkplug Coffee and the Canadian Arthritis Patient Alliance appear at the bottom
September 19, 2025 at 4:05 PM
capa-aca.bsky.social
Parenting is tough—add a chronic illness, and it’s a whole new challenge. 💜 Mariah Z. Leach shared tips for navigating the school year with confidence.

👉 Watch here: buff.ly/SzM7x1u
Promotional graphic for ‘Back to School Virtual Drop-In: Parenting with Chronic Illness.’ Features a photo of Mariah Leach, founder of Mamas Facing Forward, described as a writer, patient advocate, and mom of three living with rheumatoid arthritis since age 25. Event is on September 10, 2024, at 6:00 PM EDT, lasting 1 hour. Includes Canadian Arthritis Patient Alliance (CAPA) logo and a QR code with text ‘Register here!
September 17, 2025 at 4:04 PM