Carmen Camacho , MA, LSW
@camachoc2000.bsky.social
Mental health Clinician , Rare Disease Advocate , patient educator. Received a double lung transplant May 27 due to the pulmonary fibrosis of Hermansky Pudlak syndrome.
Celebrating my new life . Felling better everyday and continuing working on finding a cure for HPS pulmonary fibrosis. I had my double lung transplant May 27 2025, I'm feeling better.Transplant is not a cure is changing one condition for another !! So we still committed to finding a cure for HPS!!!
October 12, 2025 at 8:21 PM
Celebrating my new life . Felling better everyday and continuing working on finding a cure for HPS pulmonary fibrosis. I had my double lung transplant May 27 2025, I'm feeling better.Transplant is not a cure is changing one condition for another !! So we still committed to finding a cure for HPS!!!
February 28, 2025 at 3:42 PM
This times are hard but is nice to come back and remember the good times
January 20, 2025 at 2:03 AM
This times are hard but is nice to come back and remember the good times