Calan
@calancdkl5.bsky.social
Proud of the human I have become, proud Mum, Proud Wife, Proud Social Worker and Proud Patient Advocate and charity chair - CDKL5 UK BSc in Social Work and MSc in Global Health Policy
Reposted by Calan
✨🎙️ New podcast episode is out and we are SO excited to have Carol-Anne from CDKL5 UK in the studio talking about life with her soon-to-be twenty-year-old daughter, Amber!
open.spotify.com/episode/5tpG...
open.spotify.com/episode/5tpG...
Episode 14: Carol-Anne’s Life with Amber (age 20)
CDKL5 in Color · Episode
open.spotify.com
April 20, 2025 at 5:46 PM
✨🎙️ New podcast episode is out and we are SO excited to have Carol-Anne from CDKL5 UK in the studio talking about life with her soon-to-be twenty-year-old daughter, Amber!
open.spotify.com/episode/5tpG...
open.spotify.com/episode/5tpG...
Back in Rome for the 5th “In Search of Lost Time” workshop which this year is focusing on focal cortical dysplasia’s and auto-immune disease with epilepsy, view from the hotel entrance #rareepilepsy #cdkl5 #epag
December 16, 2024 at 7:20 AM
Back in Rome for the 5th “In Search of Lost Time” workshop which this year is focusing on focal cortical dysplasia’s and auto-immune disease with epilepsy, view from the hotel entrance #rareepilepsy #cdkl5 #epag
Feeling amused the cat posts are fewer but corgi posts have picked up! Not a mad cat lady or a mad corgi lady! #deerhounds
November 14, 2024 at 3:32 PM
Feeling amused the cat posts are fewer but corgi posts have picked up! Not a mad cat lady or a mad corgi lady! #deerhounds