Having the intramural study exist is what opens the door to future opportunities in other higher amount grants for ME/CFS. I have no idea what the future holds, but that was a benchmark we needed to hit.

If it wasn't for PEM, I have some ideas on PEM. But, its been a problem over here lately.

Small fiber neuropathy (SFN) (aka small fiber polyneuropathy)

And Sjogrens (they listed sicca)

Other comorbids (not complete)
Orthostatic intolerance (OI), Postural orthostatic tachycardia syndrome (POTS), NMH or vasovagal Syncope

joint hypermobility, Ehlers Danlos Synsrome (EDS)

Thoracic Outlet Syndrome (TOS), Eagle syndrome, MALS, Nutcracker, May Thurner,
Chiari, CCI, AAI

My three cats

Not LC, but was thrilled to see a publication on #mecfs & voice/speech abnormalities
www.mdpi.com/2077-0383/14...

The one who sees kids is also retiring soon...but he has trained a replacement. She sees adults too, but I'm not sure she's able to take any new patients (because obviously one doc for every person in the DMV is too many).

There's also a functional med who charges a ton in NoVa.

The patches definitely have a fragrance. It is not as bad as many, but still very much there.

I would think any type of "pain cream" could be compounded because they do specialty mixes of all kinds of pain creams (seriously, the combos!) So calling & asking for fragrance free seems reasonable.

I use Belmar in Golden, CO. $67.50 is my $90 LDN price. They contact me about refills.

Hadn't heard about your National Compounder. But I'll add it to my list that I know & rec:
Belmar
Skips (FL)
CareFirst Compounding (NJ)
AgelessRX (has prescribers, if one can't get a local dr to write a script)

Cool! 😎

I had meetings this morning with staff from #Oregon senators @wyden.senate.gov & @jeff-merkley.bsky.social as part of @solveme.bsky.social Advocacy Week 😁

Looking forward to some meetings on Thursday with staff from @salinas.house.gov office and other house reps!

#MEcfs #PwME #LongCovid