British Paediatric Surveillance Unit
44 following
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CRID - Unique Patient ID for rare disease clinical research
CRID - Unique Patient ID for rare disease clinical research
@thecrid.bsky.social
The Zebra Alliance Community
The Zebra Alliance Community
@thezebraalliance.bsky.social
DEBRA UK
DEBRA UK
@charitydebra.bsky.social
Lucy McKay
Lucy McKay
@loomoomahoo.bsky.social
Rare Disease Research Network_RDRN
Rare Disease Research Network_RDRN
@rd-rn.bsky.social
Rare Diseases International (RDI)
Rare Diseases International (RDI)
@rarediseasesint.bsky.social
The BMA
The BMA
@bma.org.uk
The BMJ
The BMJ
@bmj.com
The Health Foundation
The Health Foundation
@healthfoundation.bsky.social
Great Ormond Street Hospital for Children NHS Foundation Trust
Great Ormond Street Hospital for Children NHS Foundation Trust
@greatormondst.bsky.social
University of Oxford
University of Oxford
@ox.ac.uk
University of Oxford Department of Paediatrics
University of Oxford Department of Paediatrics
@paediatrics.ox.ac.uk
ERDERA
ERDERA
@erdera.bsky.social
The King's Fund
The King's Fund
@thekingsfund.bsky.social
Royal College of Paediatrics and Child Health (RCPCH)
Royal College of Paediatrics and Child Health (RCPCH)
@rcpch.bsky.social
Open Research and Public Engagement Roadmap
Open Research and Public Engagement Roadmap
@engagedroadmap.bsky.social
NIHR Cambridge Biomedical Research Centre
NIHR Cambridge Biomedical Research Centre
@cambridgebrc.bsky.social
NIHR Bristol Biomedical Research Centre (BRC)
NIHR Bristol Biomedical Research Centre (BRC)
@bristolbrc.bsky.social
Rare Disease and Neurodevelopmental Disorders Lab
Rare Disease and Neurodevelopmental Disorders Lab
@rdndlab.bsky.social
Institute of Genetics and Cancer
Institute of Genetics and Cancer
@uoe-igc.bsky.social
Cambridge Rare Disease Network
Cambridge Rare Disease Network
@camrare.bsky.social
LifeArc
LifeArc
@lifearc.bsky.social
Unique
Unique
@uniquecharity.bsky.social
Coram
Coram
@wearecoram.bsky.social
Department of Health
Department of Health
@health-ni.gov.uk
Research in Practice
Research in Practice
@researchip.bsky.social
Mental Health UK
Mental Health UK
@mhealthuk.bsky.social
NIHR School for Public Health Research
NIHR School for Public Health Research
@nihrsphr.bsky.social
Sense
Sense
@sensecharity.bsky.social
Article 39 children's rights charity
Article 39 children's rights charity
@article39.bsky.social
WHO
WHO
@who.int
Healthwatch
Healthwatch
@healthwatch.bsky.social
UK Health Security Agency
UK Health Security Agency
@ukhsa.bsky.social
NHS Kent and Medway
NHS Kent and Medway
@nhskentandmedway.bsky.social
Politico
Politico
@politico.com
The Times & Sunday Times
The Times & Sunday Times
@thetimes.com
Association of Medical Research Charities
Association of Medical Research Charities
@amrc-uk.bsky.social
Health Research Authority
Health Research Authority
@hralatest.bsky.social
Nursing and Midwifery Council
Nursing and Midwifery Council
@newsnmc.bsky.social
The Telegraph
The Telegraph
@telegraph.co.uk
ADPH London
ADPH London
@londonadph.bsky.social
Emma Sparrow
Emma Sparrow
@emma-sparrow.bsky.social
The Lancet
The Lancet
@thelancet.com
Bluesky
Bluesky
@bsky.app