Bohring-Opitz Syndrome/ASXL1
@bohring-opitz.bsky.social
Providing information about Bohring-Opitz Syndrome (BOS) and awareness through a worldwide exchange with guidance and parental support at www.bohring-opitz.org
Newly diagnosed with Bohring-Opitz Syndrome/ASXL1? Join the BOS Parent Support group.
Newly diagnosed with Bohring-Opitz Syndrome/ASXL1? Join the BOS Parent Support group.
More than you can imagine - Bohring-Opitz Syndrome/ASXL1.
#rarediseaseday #rdd2025 #bohringopitz #bosaware
#rarediseaseday #rdd2025 #bohringopitz #bosaware
February 28, 2025 at 8:41 AM
More than you can imagine - Bohring-Opitz Syndrome/ASXL1.
#rarediseaseday #rdd2025 #bohringopitz #bosaware
#rarediseaseday #rdd2025 #bohringopitz #bosaware
February 28, 2025 at 5:16 AM
Newly diagnosed with Bohring-Opitz Syndrome?
Get support from our network of families around the world. In our support group we can offer you information, support and advice on any question or concern you have related to Bohring-Opitz Syndrome. bit.ly/BOSgroup
Get support from our network of families around the world. In our support group we can offer you information, support and advice on any question or concern you have related to Bohring-Opitz Syndrome. bit.ly/BOSgroup
January 19, 2025 at 7:50 PM
Newly diagnosed with Bohring-Opitz Syndrome?
Get support from our network of families around the world. In our support group we can offer you information, support and advice on any question or concern you have related to Bohring-Opitz Syndrome. bit.ly/BOSgroup
Get support from our network of families around the world. In our support group we can offer you information, support and advice on any question or concern you have related to Bohring-Opitz Syndrome. bit.ly/BOSgroup