Barbara
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bitemedravet.bsky.social
Barbara
@bitemedravet.bsky.social
California Democrat, Mom of 4, one now an Angel, forever in my 💜
📚,🐕,MCU, history, politics, hoodies,jammie pants, BTS, Dravet Syndrome Foundation
Lost some of my 🔥 Feb 25th, but I’ll get it back and my girl will be cheering me on from Heaven.
👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻
April 21, 2025 at 9:30 PM
This is stunning, thank you. 💜
March 2, 2025 at 12:25 PM
I was considering moving a dresser from the garage into her bedroom that will now be mine - then remembered she had scrawled her name on the back, many years ago, before she lost so many functions.
March 2, 2025 at 12:24 PM
I’m as prepared for that as possible. I think. My daughter had a rare syndrome so the moms are a pretty tight bunch. I know they will always be there for me - but I also know every death is a terrifying reminder that their child might be next, so continuing support can be uncomfortable for all.
March 2, 2025 at 12:20 PM
Oh my gosh, I just realized that; that you had to go through the holidays without her. 💔
March 2, 2025 at 11:51 AM
I feel you. I keep saying I look forward to the day I can…look forward.
March 2, 2025 at 11:50 AM
Only 6 days here. I wish I could sleep more - I thought that’s all I would do. And sleep just means waking up with my Carrie still gone, so I kind of dread it anyway.
March 2, 2025 at 11:36 AM
We will be having a celebration of life for Carrie within the next week and a half and are including a designated DSF donation spot. I hope to raise several hundred dollars. Yours is a splendid organization, that we have benefited from so much. I hope
February 27, 2025 at 3:14 AM
Thank you so much. Holy moly this hurts
February 26, 2025 at 6:38 PM
Without question.
February 20, 2025 at 6:05 AM
Done!
February 18, 2025 at 6:36 PM