They should be doing all they can instead of worrying about us tho.

10 I got more than enough sleep and I’m still resting. I’ll take it

Has anyone else dealt with lupus postpartum? How do you manage flares and pain without relying on prednisone? Any advice on quitting vaping while dealing with chronic illness?

I also want to quit vaping—I know it’s likely worsening my flares, but it’s my only comfort after losing so much. I feel so depressed and alone in this.

I’m back at work and will hit 1 year on February 5th, making me eligible for FMLA. I’ve had so many call-offs since this started, and I’m fresh off maternity leave, so I can’t afford to be sick. I’m looking for a PCP to help with FMLA paperwork

—mouth sores, fever, fatigue, and extreme joint pain. It feels like no one cares or understands. When I ask for alternatives to prednisone, I’m told there are none.

I saw a rheumatologist who refused to prescribe pain meds or prednisone until labs came back. After losing it, I was fired as a patient. Now, I’m at a clinic taking Hydroxychloroquine (200mg 2x/day) and trying to taper off prednisone (down to 20mg). I’m flaring every 2 weeks.

This time, the pain started in my hands, traveled up my arms, and became so severe I couldn’t hold my baby. The ER checked for blood clots and sent me home, dismissing my pain.

There’s a special on Groupon $60 for a year membership.

It should’ve been free then lol

I just purchased the first 3 books. Too late to get in on January’s discussion but I’ll be ready for February 🙂‍↕️