Ben H
@benhmecfs.bsky.social
ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
(I should note it was *eventually* a reasonable conversation…with admission that there is no cure and that not much can be done for now bar managing co-morbid conditions.
But psych being the very first point of reference was…disappointing).
But psych being the very first point of reference was…disappointing).
November 28, 2023 at 7:40 PM
(I should note it was *eventually* a reasonable conversation…with admission that there is no cure and that not much can be done for now bar managing co-morbid conditions.
But psych being the very first point of reference was…disappointing).
But psych being the very first point of reference was…disappointing).
Reposted by Ben H
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& advised to go for a walk when he no longer was able to control his muscles or eat. The newspaper writes during the last year they have been in contact with more than 200 carers & patients who tell the same story about failure from the Danish health system leading to deterioration for patients
& advised to go for a walk when he no longer was able to control his muscles or eat. The newspaper writes during the last year they have been in contact with more than 200 carers & patients who tell the same story about failure from the Danish health system leading to deterioration for patients
October 1, 2023 at 7:53 PM
2/
& advised to go for a walk when he no longer was able to control his muscles or eat. The newspaper writes during the last year they have been in contact with more than 200 carers & patients who tell the same story about failure from the Danish health system leading to deterioration for patients
& advised to go for a walk when he no longer was able to control his muscles or eat. The newspaper writes during the last year they have been in contact with more than 200 carers & patients who tell the same story about failure from the Danish health system leading to deterioration for patients