@BendyHEDS&Co
@bendyhedsandco.bsky.social
For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
Reposted by @BendyHEDS&Co
The conference aims to raise awareness and understanding among healthcare professionals, researchers, policy makers, patients and advocates about ME/CFS, long Covid and other post-viral illnesses.
📆 When? 12-13 November 2025
📍 Where? Online
📆 When? 12-13 November 2025
📍 Where? Online
November 10, 2025 at 11:10 AM
The conference aims to raise awareness and understanding among healthcare professionals, researchers, policy makers, patients and advocates about ME/CFS, long Covid and other post-viral illnesses.
📆 When? 12-13 November 2025
📍 Where? Online
📆 When? 12-13 November 2025
📍 Where? Online
Reposted by @BendyHEDS&Co
Momentum is growing for our Making the invisible visible campaign on 8th November 2025, to mark World Ventil8 Day - why not join us?
Visit the campaign website to learn more and register 👉 bit.ly/mtiv25
#MTIV25 #MTIV #SaferAirProject #IndoorAirQuality #MTIVNews
Visit the campaign website to learn more and register 👉 bit.ly/mtiv25
#MTIV25 #MTIV #SaferAirProject #IndoorAirQuality #MTIVNews
Making the invisible visible 2025 — The Safer Air Project
bit.ly
October 27, 2025 at 1:35 AM
Momentum is growing for our Making the invisible visible campaign on 8th November 2025, to mark World Ventil8 Day - why not join us?
Visit the campaign website to learn more and register 👉 bit.ly/mtiv25
#MTIV25 #MTIV #SaferAirProject #IndoorAirQuality #MTIVNews
Visit the campaign website to learn more and register 👉 bit.ly/mtiv25
#MTIV25 #MTIV #SaferAirProject #IndoorAirQuality #MTIVNews
Reposted by @BendyHEDS&Co
Tag your friends to help get the message out! @greensagainstcovid.bsky.social 💚
✅ We demand #CleanAir to stop the spread of airborne infectious diseases & protect schoolkids, workers & vulnerable friends & family from #Covid & #LongCovid
✅ We demand #CleanAir to stop the spread of airborne infectious diseases & protect schoolkids, workers & vulnerable friends & family from #Covid & #LongCovid
November 8, 2025 at 3:09 PM
Tag your friends to help get the message out! @greensagainstcovid.bsky.social 💚
✅ We demand #CleanAir to stop the spread of airborne infectious diseases & protect schoolkids, workers & vulnerable friends & family from #Covid & #LongCovid
✅ We demand #CleanAir to stop the spread of airborne infectious diseases & protect schoolkids, workers & vulnerable friends & family from #Covid & #LongCovid
Reposted by @BendyHEDS&Co
2/2
We are currently working to rearrange the session to ensure that the evidence session still goes ahead and will share further news on this once a new date has been secured.
An update from the APPG's Chair, @joplatt.bsky.social MP, is attached.
#MyalgicE #MyalgicEncephalomyelitis
We are currently working to rearrange the session to ensure that the evidence session still goes ahead and will share further news on this once a new date has been secured.
An update from the APPG's Chair, @joplatt.bsky.social MP, is attached.
#MyalgicE #MyalgicEncephalomyelitis
October 29, 2025 at 9:31 AM
2/2
We are currently working to rearrange the session to ensure that the evidence session still goes ahead and will share further news on this once a new date has been secured.
An update from the APPG's Chair, @joplatt.bsky.social MP, is attached.
#MyalgicE #MyalgicEncephalomyelitis
We are currently working to rearrange the session to ensure that the evidence session still goes ahead and will share further news on this once a new date has been secured.
An update from the APPG's Chair, @joplatt.bsky.social MP, is attached.
#MyalgicE #MyalgicEncephalomyelitis
Reposted by @BendyHEDS&Co
More on DecodeME and our partnership with the University of Edinburgh 👇
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
October 30, 2025 at 3:35 PM
More on DecodeME and our partnership with the University of Edinburgh 👇
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
Reposted by @BendyHEDS&Co
People with disabilities have been victimised by successive governments for a long time. Reform has threatened more cuts for this. How do you propose to support people with disabilities?What can you say to encourage them to support the Green Party?
November 6, 2025 at 3:19 PM
People with disabilities have been victimised by successive governments for a long time. Reform has threatened more cuts for this. How do you propose to support people with disabilities?What can you say to encourage them to support the Green Party?
Reposted by @BendyHEDS&Co
The internet cut out ending the Space early — new Space link is here!
Ella Eastin and Isabel Burnett are sharing their stories as dysautonomia patients and how that spurred their professional medical paths x.com/renegaderes/...
Ella Eastin and Isabel Burnett are sharing their stories as dysautonomia patients and how that spurred their professional medical paths x.com/renegaderes/...
Renegade Research on X: "https://t.co/fig4J4O6On" / X
https://t.co/fig4J4O6On
x.com
October 25, 2025 at 6:17 PM
The internet cut out ending the Space early — new Space link is here!
Ella Eastin and Isabel Burnett are sharing their stories as dysautonomia patients and how that spurred their professional medical paths x.com/renegaderes/...
Ella Eastin and Isabel Burnett are sharing their stories as dysautonomia patients and how that spurred their professional medical paths x.com/renegaderes/...
Reposted by @BendyHEDS&Co
A - I agree with the chronology you set out.
"by the beginning of February we are more aware of, a potential impact of, Long Covid on children"
Technical Advisory Report February 2021
#Wales #LongCovidKids #LongCovid
"by the beginning of February we are more aware of, a potential impact of, Long Covid on children"
Technical Advisory Report February 2021
#Wales #LongCovidKids #LongCovid
October 22, 2025 at 3:37 PM
A - I agree with the chronology you set out.
"by the beginning of February we are more aware of, a potential impact of, Long Covid on children"
Technical Advisory Report February 2021
#Wales #LongCovidKids #LongCovid
"by the beginning of February we are more aware of, a potential impact of, Long Covid on children"
Technical Advisory Report February 2021
#Wales #LongCovidKids #LongCovid
Welcome ex 🐦#NEISVoid member. I haven't been very active on here in last few months, been practising self help basically.
October 14, 2025 at 11:18 PM
Welcome ex 🐦#NEISVoid member. I haven't been very active on here in last few months, been practising self help basically.