Becky
@beckyrwhin.bsky.social
I do NOT approve any AI.
You are NOT ALLOWED to use my images. Parent carer and very broken person who is fortunate enough to laugh with my whole self. Total lefty.
You are NOT ALLOWED to use my images. Parent carer and very broken person who is fortunate enough to laugh with my whole self. Total lefty.
Recovering from this tough time is hard and messy. To a certain extent I think my husband and I have ended up clinging on to each other for dear life. It's how we've coped. I would be lost if I hadn't had this closeness, not just to him, but our other kids too.
October 7, 2025 at 8:12 PM
Recovering from this tough time is hard and messy. To a certain extent I think my husband and I have ended up clinging on to each other for dear life. It's how we've coped. I would be lost if I hadn't had this closeness, not just to him, but our other kids too.
I've always been something of a hermit and a loner, but since the long hospitalisation of my daughter, it's turned up to 11
October 3, 2025 at 2:27 PM
I've always been something of a hermit and a loner, but since the long hospitalisation of my daughter, it's turned up to 11
I really really miss having a bath
October 2, 2025 at 9:32 PM
I really really miss having a bath
It has been hard to see our daughter change so much. I've struggled with sadness for what has been lost.
But being with her and seeing how hard she tries to move her body, even when doing so triggers a seizure, is mind-blowing. The love I feel is massive.
I guess as a family we're regrouping
But being with her and seeing how hard she tries to move her body, even when doing so triggers a seizure, is mind-blowing. The love I feel is massive.
I guess as a family we're regrouping
September 30, 2025 at 8:53 AM
It has been hard to see our daughter change so much. I've struggled with sadness for what has been lost.
But being with her and seeing how hard she tries to move her body, even when doing so triggers a seizure, is mind-blowing. The love I feel is massive.
I guess as a family we're regrouping
But being with her and seeing how hard she tries to move her body, even when doing so triggers a seizure, is mind-blowing. The love I feel is massive.
I guess as a family we're regrouping
Our new life is often overwhelming. I really miss having spontaneous zone out time.
September 29, 2025 at 6:17 PM
Our new life is often overwhelming. I really miss having spontaneous zone out time.
The line is pretty blurred at the moment
September 29, 2025 at 7:00 AM
The line is pretty blurred at the moment
A lot of the last 8 weeks has felt chaotic. Full of love but equally matched by mayhem.
September 26, 2025 at 9:54 PM
A lot of the last 8 weeks has felt chaotic. Full of love but equally matched by mayhem.
Getting used to our new normal has been difficult
September 25, 2025 at 1:24 PM
Getting used to our new normal has been difficult
A couple of quickies
September 23, 2025 at 9:35 PM
A couple of quickies
So I did actually draw one picture since A and I came home at the end of July. I haven't wanted to post it as it's pretty raw, but I've decided to post it now.
Oof
Oof
September 21, 2025 at 6:56 PM
So I did actually draw one picture since A and I came home at the end of July. I haven't wanted to post it as it's pretty raw, but I've decided to post it now.
Oof
Oof
Not sure it's finished tbh and may tinker with it, but I cannot describe how good it feels to be drawing again, finally.
September 21, 2025 at 6:24 AM
Not sure it's finished tbh and may tinker with it, but I cannot describe how good it feels to be drawing again, finally.
Another trip to Oxford unfortunately, this time seizure related. Hoping it's a swift one this time. 🤞
August 27, 2025 at 9:05 AM
Another trip to Oxford unfortunately, this time seizure related. Hoping it's a swift one this time. 🤞
I've missed my partner so much this last year. Can't wait to be properly back home
July 24, 2025 at 7:09 AM
I've missed my partner so much this last year. Can't wait to be properly back home
Tuesday morning was fraught with scary desats and hitting 999
It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast.
Today we'll take her home from Oxford for the second time this week!
It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast.
Today we'll take her home from Oxford for the second time this week!
July 24, 2025 at 6:58 AM
Tuesday morning was fraught with scary desats and hitting 999
It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast.
Today we'll take her home from Oxford for the second time this week!
It was a frightening and demoralising day but thank goodness, our daughter has bounced back fast.
Today we'll take her home from Oxford for the second time this week!
Bad news folks. We're heading back to Oxford
July 22, 2025 at 11:22 AM
Bad news folks. We're heading back to Oxford
Oh my goodness, today's the day! My daughter is coming home
July 21, 2025 at 5:31 AM
Oh my goodness, today's the day! My daughter is coming home
Then poor Sheila had to go to the MDT with the same people she lost her shit with
June 29, 2025 at 1:01 PM
Then poor Sheila had to go to the MDT with the same people she lost her shit with
This happened recently, and I lost my shit.
It's not resolved but my general Banshee level has moderated. It has to. I have to keep going to MDT's and talking to people who hold my daughter's life in their hands.
So, dear Sheila the Banshee, I hear you, even when I have to pretend you're not there
It's not resolved but my general Banshee level has moderated. It has to. I have to keep going to MDT's and talking to people who hold my daughter's life in their hands.
So, dear Sheila the Banshee, I hear you, even when I have to pretend you're not there
June 29, 2025 at 10:10 AM
This happened recently, and I lost my shit.
It's not resolved but my general Banshee level has moderated. It has to. I have to keep going to MDT's and talking to people who hold my daughter's life in their hands.
So, dear Sheila the Banshee, I hear you, even when I have to pretend you're not there
It's not resolved but my general Banshee level has moderated. It has to. I have to keep going to MDT's and talking to people who hold my daughter's life in their hands.
So, dear Sheila the Banshee, I hear you, even when I have to pretend you're not there
I originally started drawing this about the conference I went to recently. I found closing my eyes and trying really hard to drink all the words in did help. But equally now A is back in Critical Care, it's taken on a different more emotional meaning. Though don't worry folks, she's recovering well
June 12, 2025 at 10:24 AM
I originally started drawing this about the conference I went to recently. I found closing my eyes and trying really hard to drink all the words in did help. But equally now A is back in Critical Care, it's taken on a different more emotional meaning. Though don't worry folks, she's recovering well
Last night there was a dinner and dancing. The floor filled up with gorgeous youngsters, all with rett syndrome. The sheer joy was palpable. One of the organisers turned to me and said 'Thats why we do this. They are our future' ♥️
June 1, 2025 at 11:07 AM
Last night there was a dinner and dancing. The floor filled up with gorgeous youngsters, all with rett syndrome. The sheer joy was palpable. One of the organisers turned to me and said 'Thats why we do this. They are our future' ♥️
Another one from the conference. I ought to explain it, but y'know what, I might just leave it hanging here for a bit.....
June 1, 2025 at 11:02 AM
Another one from the conference. I ought to explain it, but y'know what, I might just leave it hanging here for a bit.....
More drawings from the Reverse Rett conference.....
June 1, 2025 at 10:46 AM
More drawings from the Reverse Rett conference.....
Am at the Leap Rett Conference in Manchester. Burst into tears the minute I entered. Being surrounded by the families of and people with Rett Syndrome, just felt so safe. It's been a terrible year for our daughter and being here I knew everyone would totally understand.
May 31, 2025 at 2:15 PM
Am at the Leap Rett Conference in Manchester. Burst into tears the minute I entered. Being surrounded by the families of and people with Rett Syndrome, just felt so safe. It's been a terrible year for our daughter and being here I knew everyone would totally understand.
Am at the Leap Rett Conference in Manchester. It's organised by brilliant charity Reverse Rett.
It's my first time going to a conference and I'm so relieved I can hide behind my sketchbook as a)there's a lot of peopling and b)huge amounts of info to process.
Really enjoying it
It's my first time going to a conference and I'm so relieved I can hide behind my sketchbook as a)there's a lot of peopling and b)huge amounts of info to process.
Really enjoying it
May 31, 2025 at 2:02 PM
Am at the Leap Rett Conference in Manchester. It's organised by brilliant charity Reverse Rett.
It's my first time going to a conference and I'm so relieved I can hide behind my sketchbook as a)there's a lot of peopling and b)huge amounts of info to process.
Really enjoying it
It's my first time going to a conference and I'm so relieved I can hide behind my sketchbook as a)there's a lot of peopling and b)huge amounts of info to process.
Really enjoying it