Sending love to everyone living with a rare disease today. Sign this petition from the #EveryLifeFoundation to support funding for research for everyone impacted by a #RareDisease everylifefoundation.quorum.us/campaign/111...
#RareDiseaseDay #DisabilityAwareness #TakeAction

Hey #Iowa! Have you called your reps to tell them to vote NO on the Reconciliation Bill yet? #HouseofRepresentatives #CallNow
Even if you aren't an Iowa resident, you can call them and urge them to do the right thing. Funding for #Medicaid is on the line here! #DoTheRightThing #America

THEY'RE GUTTING SOCIAL SECURITY FUNDING, FOLKS! www.ssa.gov/news/press/r...

#AmericanDestruction #AmericanDownfall #SocialSecurity #Disability #DisabilityAwareness

Have you ever heard about mindful clicking?

This is a perfect example of something that I might hate-click on, but because @nytimes.com continues to put this kind of shit out, and I really hate it, I will not give them the engagement metric that will tell them to publish more like it. Do better NYT

From the latest Heather Cox Richardson Substack.

Great news! We can now all commit all the fraud we want! American criminals first! #America #ThisIsAmerica

They believe God has chosen them and they can do whatever they want.

Highly recommend

Important read before it gets banned. #Books #Education #EducateYourself #SeparationOfChurchAndState

Shout out to my #PraderWilliSyndrome community: If you don't want to support Meta anymore, but you want to chat about diet, recipes, and ask questions about Rare Bridge AI outputs, I have created a Discord Server for AI questions and a Recipe Forum channel. Invite: discord.gg/UFcZUwdNZ5
#PWS

Next, I asked for a story that the new nanny could tell him. Here's the result. #AIForGood #AIstory #GenerativeAI #Disability #DisabilityParent #Transitions #PraderWilliSyndrome #RareBridgeAI

We recently needed to remove our son from daycare - the daycare did not have the resources to cater to his needs. This is a huge transition for him. To lessen the blow, I asked the "Chat with docs" assistant on rarebridgeai.org to write a bedtime story that might help with understanding this change.

Now that I'm no longer looking at meta apps, I'm finding much more valuable content in Discord spaces and Substack subscriptions. I'm absolutely going to miss the PWS support groups, but maybe there can be another space for those in the future as well? @kristi-cole.bsky.social ?? 😉