Bart Le Fermier
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bart-lefermier.bsky.social
Bart Le Fermier
@bart-lefermier.bsky.social
160 followers 120 following 34 posts
Long Covid since feb '21.

Posts Replies Media Videos
bart-lefermier.bsky.social
Politieke aardverschuiving t.o.v. Long Covid, ME en andere PAIS?
jetroz.bsky.social Jet Roz @jetroz.bsky.social · Apr 1
BREAKING:

Politieke aardverschuiving. Wilders, Van der Plas, Omtzigt en Yeşilgöz verklaren “het licht te hebben gezien” over #LongCovid en andere PAIS. “Dit is de grootste crisis van Nederland… of wat zeg ik? Wereldwijd!” 🧵👇
April 1, 2025 at 11:59 AM
bart-lefermier.bsky.social
Ik ben al 5 jaar ziek. Ik ga eerder achteruit dan vooruit. Huisgebonden, vaak bedgebonden. Verdwenen uit de maatschappij en uit de levens van dierbaren. Met mij honderdduizenden anderen
 
#NietHersteld #5JaarLongCovid #LongCovidAwarenessDay2025

@niethersteld.bsky.social @jetroz.bsky.social
March 15, 2025 at 1:00 PM
bart-lefermier.bsky.social
Pretty good analysis about the #BC007 saga.

Valid points made about the disastrous setup of the trials + the communication used. And ending with the question, is there still a glimmer of hope?

www.berliner-zeitung.de/gesundheit-o...
Das Wundermittel, das Long Covid heilen sollte: Die irre Geschichte des Medikaments BC 007
Ein Berliner Start-up entwickelte ein Mittel für Herzkranke, schwenkte in der Pandemie auf Corona um, wollte plötzlich Long Covid heilen. Nun ist das Versprechen geplatzt – oder doch nicht?
www.berliner-zeitung.de
December 8, 2024 at 12:46 PM
bart-lefermier.bsky.social
Bluesky friends,

I recently started with #LDN for #LongCovid.

To get an impression: are people interested in (ir)regular updates? Or already sufficient stories about LDN out there?
two men are sitting in a chair with the words what a terrible waste of time written below them
ALT: two men are sitting in a chair with the words what a terrible waste of time written below them
media.tenor.com
November 24, 2024 at 11:28 AM
Reposted by Bart Le Fermier
ixabil.bsky.social
Goede draad via putrinolab

Aangaande sommigen die dysautonomie behandelen en beweren dat severe PAIS met pem die je ziek maakt door even te lopen of zitten niet bestaat.

Wel op X maar hier een threadreader:
threadreaderapp.com/thread/18590...
Thread by @PutrinoLab on Thread Reader App
@PutrinoLab: Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and c...
threadreaderapp.com
November 20, 2024 at 1:09 PM
Reposted by Bart Le Fermier
binitakane.bsky.social
Wise words from Matt Haig.
I Long for an Internet where it would be possible to talk in a totally nuanced way about things. Where you could say I am broadly on your side about this, but I also think about this, without people thinking you are the other side. I long for sideless conversations. Conversations as spherical as the world we live in.
November 20, 2024 at 6:27 PM
bart-lefermier.bsky.social
❓ Tips voor Chromebook?

Mijn laptop loopt op zijn laatste benen.
ik gebruik laptop nu alleen voor wat artikelen lezen / X & Bluesky / netflix / youtube / potje schaak.
Geen zware applicaties - of uitvoerige berekeningen in excel.

Iemand tips?
November 20, 2024 at 5:05 PM
bart-lefermier.bsky.social
Gister #LDN opgehaald voor #LongCovid.

Spannend want zulke interventies blijft een vorm van Russich Roulette. In juli was de poging met aripiprazole geen succes - uiteindelijk een wekenlange/maandenlange terugslag.

Nu nieuwe poging...
Two small medication bottles and a white capsule on a table.
November 19, 2024 at 11:01 AM
bart-lefermier.bsky.social
And as a follow-up - the confirmation of bad news.

News from Berlin Cures themselves.

"The analyses of the main endpoints did not show evidence of superior efficacy of the BC 007 treatment arms over the placebo arm"

www.berlincures.com/en/news/phas...
Topline results of Phase 2 Long Covid trial do not show evidence of superior efficacy of BC 007 over placebo arm
Berlin Cures is home to an unrivaled platform-technology established around BC 007
www.berlincures.com
November 13, 2024 at 10:09 AM
bart-lefermier.bsky.social
😢 Concerning news about #BerlinCures which does explain the cancelation in Barcelona. #bc007.
"On November 12, 2024, the Charlottenburg District Court ordered provisional insolvency administration over the assets of Berlin Cures GmbH"

verbraucherschutzforum.berlin/2024-11-12/v...
verbraucherschutzforum.berlin
November 13, 2024 at 9:41 AM