There is support available for completing the Survey if you need it. end #LongCovid
researchsurveys.deakin.edu.au/jfe/form/SV_...

At the end of the survey, please tell us which of the 3 surveys about daily life you prefer. Their names are at the top of each section.

Many members in the Long Covid community have collaborated with the researchers, and your participation is greatly appreciated. 4/5

This will help provide better care for all of us. It will help to document symptoms like PEM, which are missed in most scales, and also add some of the sensory experiences like noise and light sensitivity, that came for many with the Long Covid. 3/5

This is part of the preparation for measuring outcomes for upcoming large clinical trials in Australia for LC treatments.
By participating in this survey, and encouraging people you know WITHOUT Long Covid to complete it, you will be helping to develop LC specific assessment tools in Australia. 2/5

lol. No. I got sucked into Substack and Threads in the interim and haven’t been here. Now I need to spend time trying to figure out how to navigate this platform.

Thanks. It seems like a few pages with no posts. I’m not sure if I should start sharing my Aurora posts here but I’m giving it thought.

I’m hearing some “farside” rumours…

Same. I use the same opening word all the time and it was bound to come around occasionally! I think I read it was the most common opening word?

Is emerge on bluesky? Not finding.

Yes I thought it was an interesting recommendation since she doesn’t have pain issues at all. But I guess it’s just a general anti-inflammatory as well? 🤷🏼‍♀️

I’m guessing they don’t want anyone in Australia…

My 14-year-old granddaughter, long Covid since March 2022 but not on social media. LDN has helped me but Pediatrician won’t prescribe it, only Fluoxetine which none of us feel happy about. Her personality is not depressed or anxious but I can see how we could get there…
Maybe going to try NAC. 

Shared!

Completely infuriating. I have long COVID friends participating. Queuing to participate because it’s a local study!

Exactly.

Thanks. It somehow helps to know there are caring, understanding people like you out there.

SO glad you are here. Grateful for your voice. I really feel like I have an advocate.

14 yo granddaughter 2y LC. No treatment available till she’s 18. Australia.

in Tasmania (Australia!)