Amber
@aschmugge.bsky.social
Occasionally misplaced Minnesotan. (she/her)
Leg function, can't hold phone bc hands going fast too.
Will update when can. Love y'all ❤️
Will update when can. Love y'all ❤️
January 26, 2025 at 7:35 AM
Leg function, can't hold phone bc hands going fast too.
Will update when can. Love y'all ❤️
Will update when can. Love y'all ❤️
New specialist minimally helpful in immediate term. Minimal options in near term (bc underlying health so bad). Some promising for long term care.
Dr almost fascinatingly appalled at my local health care system & basically told me to get to an ER in another care system. So that's fine. 🙃
Dr almost fascinatingly appalled at my local health care system & basically told me to get to an ER in another care system. So that's fine. 🙃
January 18, 2025 at 5:43 AM
New specialist minimally helpful in immediate term. Minimal options in near term (bc underlying health so bad). Some promising for long term care.
Dr almost fascinatingly appalled at my local health care system & basically told me to get to an ER in another care system. So that's fine. 🙃
Dr almost fascinatingly appalled at my local health care system & basically told me to get to an ER in another care system. So that's fine. 🙃
But also hospital could have actually cared for me. They only gave me fluids for a couple days & tried one nausea med & nothing else. Most recent Dr decided on its FND (grr, and also it's not) and basically just wanted me to leave.
Upside, it is more comfortable here at home at least 🙃
January 17, 2025 at 12:48 AM
But also hospital could have actually cared for me. They only gave me fluids for a couple days & tried one nausea med & nothing else. Most recent Dr decided on its FND (grr, and also it's not) and basically just wanted me to leave.
Upside, it is more comfortable here at home at least 🙃
Been admitted since Saturday. Headed home soon though 🙃
January 16, 2025 at 11:21 PM
Been admitted since Saturday. Headed home soon though 🙃
Love this development for you so much ❤️
January 16, 2025 at 1:29 PM
Love this development for you so much ❤️
Thank you so much for sharing your experiences and the much needed well wishes
January 10, 2025 at 7:23 AM
Thank you so much for sharing your experiences and the much needed well wishes
Ha, it didn't even register to me as being there.
I guess I can at least feel lucky I don't seem to be getting the headache too (*knock on wood*), as a couple of you mentioned that.
I guess I can at least feel lucky I don't seem to be getting the headache too (*knock on wood*), as a couple of you mentioned that.
January 10, 2025 at 7:22 AM
Ha, it didn't even register to me as being there.
I guess I can at least feel lucky I don't seem to be getting the headache too (*knock on wood*), as a couple of you mentioned that.
I guess I can at least feel lucky I don't seem to be getting the headache too (*knock on wood*), as a couple of you mentioned that.
No. Pedialyte has sucralose in it, among other things I react to. I've been looking for a few years now & never found an electrolyte product I tolerate. Scratch is the closest I've come but my mcas reactions are too severe at the moment for the fruit & citric acid in theirs.
January 10, 2025 at 7:18 AM
No. Pedialyte has sucralose in it, among other things I react to. I've been looking for a few years now & never found an electrolyte product I tolerate. Scratch is the closest I've come but my mcas reactions are too severe at the moment for the fruit & citric acid in theirs.
Thanks for the info, glad it helped you
January 10, 2025 at 1:38 AM
Thanks for the info, glad it helped you
Ugh. I`m glad things are easing up now and hope your path fully to the other side is short and speedy. Good job, Dr K, your palliative care/bedside skills are superb!
January 10, 2025 at 12:03 AM
Ugh. I`m glad things are easing up now and hope your path fully to the other side is short and speedy. Good job, Dr K, your palliative care/bedside skills are superb!
Ooh, broken kneecap sounds super unpleasant. I'm glad the maintenance injections are working for you!
January 9, 2025 at 11:36 PM
Ooh, broken kneecap sounds super unpleasant. I'm glad the maintenance injections are working for you!
If you do not have an answer for the question I actually asked, could you please just not answer?
If you desperately think I should want or need to know whatever you want to tell me anyway, just ask if I want to hear it first.
If you desperately think I should want or need to know whatever you want to tell me anyway, just ask if I want to hear it first.
January 9, 2025 at 10:52 PM
If you do not have an answer for the question I actually asked, could you please just not answer?
If you desperately think I should want or need to know whatever you want to tell me anyway, just ask if I want to hear it first.
If you desperately think I should want or need to know whatever you want to tell me anyway, just ask if I want to hear it first.
Also, if you read the post, I literally never asked if you or anyone else thought I had worried myself into feeling sick, or for basic & largely useless advice like "treat your symptoms & keep a journal". If you don't have an answer for what I actually asked, please go away.
January 9, 2025 at 10:39 PM
Also, if you read the post, I literally never asked if you or anyone else thought I had worried myself into feeling sick, or for basic & largely useless advice like "treat your symptoms & keep a journal". If you don't have an answer for what I actually asked, please go away.
Fucking hell dude, if you think you are being helpful, you are not. My symptoms are very in line w/the common side effects of B12 shots. When they started is right in line w/every adverse reaction I've had to a med, injection, or supplement ever so maybe my mast cell disorder got things rolling.
January 9, 2025 at 10:39 PM
Fucking hell dude, if you think you are being helpful, you are not. My symptoms are very in line w/the common side effects of B12 shots. When they started is right in line w/every adverse reaction I've had to a med, injection, or supplement ever so maybe my mast cell disorder got things rolling.