Anne
anneinayrshire.bsky.social
Anne
@anneinayrshire.bsky.social
Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping

Largs, Scotland
Hope you can see them ok
September 6, 2025 at 7:21 AM
Wont be able to
Not on FB, many years since on LinkedIn (no idea p w etc).
But I added some extra messages (here) after that message to explain what I was meaning
September 6, 2025 at 7:18 AM
I can't cope with more than one platform.
Phone & screen use can be painful and worsens my ME symptoms unfortunately
September 4, 2025 at 7:16 AM
Hope you dont mind these messages Sarah.
You can maybe let the tech folk/whoever know?
Just want to help it all do as well as possible
Take care
September 4, 2025 at 6:53 AM
Was going to try and attach the screenshots I took on the 2 different days, but too much for me just now!
Really struggling
September 4, 2025 at 6:51 AM
And if you just randomly check on the petition to see how it's going, then want to share it - the only option is to share on Facebook?
No other options available.
Its weird . . . ?
And must be limiting how often it's being shared
September 4, 2025 at 6:50 AM
I donated again the other day.
Party so I could add a comment and also see if the sharing option worked better - if u did it just after donating before u left the site.
It brought up more options as being available but only the email one worked.
Twitter & WhatsApp were shown - but they didn't work
September 4, 2025 at 6:47 AM
If not, I'll try and type it out over a few tweets/messages
Its just easier in one DM or email even.
Just want to see the crowd funder doing as well as possible.
Have to stop now
As too much for me just now
September 4, 2025 at 6:43 AM
But I'll try and share as much as I can
Its just that screens, Internet etc are quite exhausting for me. And trigger headaches quite fast
Will look at the crowd funder again later or tomorrow to see if the other sharing options back on
August 30, 2025 at 10:12 AM
I'm not on Facebook
And rarely even use Bluesky
Its just too much for me.
I only use twitter really just for the info on it .
It would be great if you could share this on Twitter/X too?
Just for further reach . . . ?
August 30, 2025 at 10:08 AM
Donated and retweeting
So badly needed
August 30, 2025 at 10:00 AM
Realise, of course, that your doing much more than shining a light on it
You've lived thru all the awfulness of it
And Maeve died because of it all
August 11, 2025 at 8:20 AM